I'm sorry you have migraines, from experience they are not fun!!! What kind of pain?. I wake up with one almost every morning and after Imetrix, heat and my little ritual I do, yes my neck is tender and stiff for a while and sometimes all day. I use deep heat type lotions, sprays or gels. I can touch my temples and there's pressure pain but once the pain from the migraine itself is gone I'd not say there is "pain per say " in my head. Does that help at all. I'd tell the Dr of anything you are experiencing, Most of the time there's an explanation and I feel better. Good luck, I do pray they get better.View Thread
I understand completely, been there done that. After many test and trying years of diff meds I am now on 300mg Neurotin, there is a generic name, with a zaniflex 4-5x a day. This is like Lyrica but without the side effects for me. The headaches aren't as long or bad but yes I still get them. Imetrix 100mg pills and shots stop them or atleast slow them down in the severity. It's all that's helped in all the years and literally has given me my life back.
I know I cannot get too hot or tired! There are days that I have to just give in and rest/nap. I can make plans but rest the next day if I need to a far cry from where I was a year ago.
Thats all that helps but believe me you are not crazy. Sometimes we just need validation as others don't understand. I don't like the word "sick" because otherwise I feel ok.View Thread
I have tried everything for migraines, including acupuncture, Botox, dozens of meds etc., but bedsides Imetrix pills and/or injections I'd not found much relief on preventive only those to attempt to abort them..
Until recently and I'm taking about 3000mg daily of Gabbapentin with a zanaflex with each dose. This combination has seemed to help better than anything I've previously tried but still have some. They aren't as bad or last as long and Imetrix usually helps most of the time . I had tried Lyrica and it did ok but the side effects were bad and Gabbapentin is pretty much in the same family of RX.
I've never heard of Cefaly but am going to look it up, I'm open to anything. Hope this helps someone, it's worth a try. I'm willing to try Celaly whatever it is! Thanks.View Thread
In your shoes for many many years as well. I am presently on disability for migraines after all laid on my couch for three years with no life. My depression was horrible. I knew if the headaches went away then the depression would stop and I could get a life again. Also like you I had been on numerous medications to prevent the headaches that did not work, the only thing that I found was Imitrex to abort them when they came. If I caught them in time it 100 mg pill might work but if not I would inject Imitrex and that would work 30% of the time. To me that was wonderful under the circumstances. I tried Botox it worked the first round but not after that. To make a long story short I am currently on Neurotin 300mg about 5times a day and 3 at bedtime. I take Zanaflex 1 which with each dose of that, but 2 at bedtime. This combination has helped more than anything throughout all my years of migraines. Neurotin is a form of Lyrica family without the side effects for me. Lyrica had worked for a while (got me off my couch and stopped the cycle) but the side effects were bad. I could go on and on about the medications I've been on, the doctors I have been to, the test that I have had and the ordeals that I have been through. However I feel like you probably already know. This last doses of medicine has helped and I can go weeks now without a headache and when I have one it does not last as long and it's not as bad. I can usually take care of it with the Imitrex pill or shot.
I hope this helps in someway but I would definitely try the Neurotin or Lyrica along with the Zanaflex, which is a muscle relaxer.View Thread
I have had migraines most of my life and when I was about 50 they started every day. I've tried everything from Botox treatments all kinds of medications, you name it. The rx I found that worked was Lyrica but the side effects were pretty bad. A few years later I changed doctors and he started me on Nurotin, Gabbapentin generic name. The side effects are nothing like the Lyrica but is the same type of medicine. The good news is I find that it's working. It made me sleepy at first but I've had to get used to them. I take 300 mg four times a day and 2-3 300mg at bedtime. I also take a generic Zanaflex with each one of the pills but I had to get over the part of being tired but that passed too. When I do get a headache it's not as bad and it does not last as long so it's well worth a try.View Thread
I'm 65 and had migraines since I was a teenager only to get worse in 50's. I've tried everything out there, even Botox treatment ts to no avail. The Imetrix shot DOES Abort them ( or enough to possibly function) and only 100mg pill if I catch it in time, 25 &50 mg did little if anything at all.
With all this said I'm hear to tell you as of last fall my new Dr tried me on Gabapentin, that's the genetic for neurotin. It's similar to lyrica without the many side effects. I tak e 1 300mg and a zanaflex (muscle relaxer) 4 x day and 2 each at bedtime. This makes me tired si I e had to get use to the dosages but it's been well worth it. The migraines are fewer between and less severe. I still can't get really tired or hot or any of the other big triggers I have but for the Horst time I can make plans.
I just wanted to share dome positive news. I'm on disability for migraines so please k ow I understand.View Thread
Your history sounds like mine, I get migraines just about every day too. My quality of life is pitiful but I'm still trying to find answers. I wanted to say in responsevtomyiurvpostbthat I have tried Botox injections. I had 2 rounds, 3 mo apart. The 1st set of injections cut the severity down and the length of hrs they lasted in a 24 hrs period. I had as many but the quality of my life was so much better. I could even make plans and as you know that's huge! However the 2nd round didn't work very well and actually were presenting with strange sensations so I didn't get anymore. I would pray through my fears and go try the Botox at least once. I still may attempt it again but have to say for 3 months the migraines were better. The injections are a piece of cake and it's over very quickly compared to the horrible constant pain of migraines. I'd try the Botox!View Thread
First I want to say that since you posted, lance Armstrong has been found guilty for enhancement drugs. And with that said he obviously couldn't endure even his "cycling" pain. Yes you are right, no one understands this pain unless they've literally walked in our shoes, or better said laid on our couch.
I've had chronic migraines for 30 years and like most on this site, I've ended up at last house on the block - Botox. I documented for 3 mos. 1-10 on severity and how long they lasted. All the while taking imetrix injection, way more than recommended but to function.
I presented this diary to Neuro, (31 free days in 3 mo) was approved by Medicare and 2 weeks later I had my first round of Botox. This 1st round they seem to be better, less intense and less frequent even tho I still had only 37 free of migraines in 3 months, but I was willing to do it again. That was 8/13/12
My forehead was in a permanent frown position for the 3 months and now have deep frown marks as the result of round if Botox. However I felt they helped enough to do it again. So 3 mo later in 11/13I had another set of Injections. This time he injected my forehead higher in hopes to reduce the frown expression. And it did but the headaches effect was poor.
I am to go back 2/14 but can't decide to go through this again. I not only have headaches pretty much everyday again the Neuro won't allow me the amount of Imetrix that my insurance allows. His nurse said they'd not be able to show they are improving if I'm taking the same amount of medicine. That's when I told her "the Botox was not helping this time!! ".
Today 1/26/14, my temples are tender and tingle. This is where 2 1/2 mo ago had injections, also pain in my neck on right side is tight. I am almost afraid to keep getting them, if the Dr won't give me the emergency injections and/or pills in the Interim. I'm willing to talk to the Neuro and see what he says but this gets very depressing and very old.View Thread