First I want to say that since you posted, lance Armstrong has been found guilty for enhancement drugs. And with that said he obviously couldn't endure even his "cycling" pain. Yes you are right, no one understands this pain unless they've literally walked in our shoes, or better said laid on our couch.
I've had chronic migraines for 30 years and like most on this site, I've ended up at last house on the block - Botox. I documented for 3 mos. 1-10 on severity and how long they lasted. All the while taking imetrix injection, way more than recommended but to function.
I presented this diary to Neuro, (31 free days in 3 mo) was approved by Medicare and 2 weeks later I had my first round of Botox. This 1st round they seem to be better, less intense and less frequent even tho I still had only 37 free of migraines in 3 months, but I was willing to do it again. That was 8/13/12
My forehead was in a permanent frown position for the 3 months and now have deep frown marks as the result of round if Botox. However I felt they helped enough to do it again. So 3 mo later in 11/13I had another set of Injections. This time he injected my forehead higher in hopes to reduce the frown expression. And it did but the headaches effect was poor.
I am to go back 2/14 but can't decide to go through this again. I not only have headaches pretty much everyday again the Neuro won't allow me the amount of Imetrix that my insurance allows. His nurse said they'd not be able to show they are improving if I'm taking the same amount of medicine. That's when I told her "the Botox was not helping this time!! ".
Today 1/26/14, my temples are tender and tingle. This is where 2 1/2 mo ago had injections, also pain in my neck on right side is tight. I am almost afraid to keep getting them, if the Dr won't give me the emergency injections and/or pills in the Interim. I'm willing to talk to the Neuro and see what he says but this gets very depressing and very old.View Thread
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