Hello, My adult daughter started having severe headaches about 2 years ago and went to the ER. They did the usual tests, but nothing was abnormal. Then she finally started seeing a neurologist and he prescribed the normal meds for tension and migraine headaches. She was taking fioricet and soma, and Relpax for the migraine headaches.
This went on for more than 3 months and she was just not getting any relief and was in so much pain. The medications did not touch her headaches. Finally, her neurologist sent her to a well known neurosurgeon in the Medical Center and he looked at all of her MRI's and other tests and said that he knew what was wrong. On one side of her brain the blood vessel was almost completely flat. It is supposed to be open and full of spinal fluid. Her neurosurgeon picked up the phone while we were all there and scheduled her for a craniotomy for the next week.
My daughter's persistence actually saved her life. If this brain surgery had not been done to correct the vein that was closed down, she would have died.
My message to any of you that have continuing headaches or start to have headaches and take the appropriate meds to treat them and you still have the headaches is run as fast as you can to a neurologist and get the proper tests done and go from there.
Never in a million years did I expect that my daughter's problem was so dangerous and how it might have killed her if left undiagnosed.
Please do not think that having a continual headache is normal. When your dr. prescribes any type of medication for the headache and it does not get better then I suggest that you see a neurosurgeon. I mean I am hoping that you have already seen a neurologist first and then go from there.
We all learned about this very unusual medical problem and I am so relieved that the neurosurgeon was so knowledgeable to figure out what was the problem and operate in order to correct everything.
Of course this was a rare type of condition, but even so, please see a neurologist if you have continual headaches.
Hi lovelittlemermaid, I have been having tension, migraine headaches for the past 40 years now. My headaches actually rule my life. I have a wonderful neurologist that I see on a regular basis.
The past year or so I have been getting a different type of headache. It is like a shock and the pain is unexpected and very sharp and severe pain. When I saw my neurologist this past week I asked him about this new type of headache that comes unexpectedly and does not last for very long. He said that it is a real headache condition but there is nothing new that I can take for it. I was relieved to hear him tell me this.
Do you take any pain meds for your headaches? I take fioricet w/ codeine and summatriptan for the migraine headaches. He also prescribes promethazine for the nausea. These medications really do help me a lot with the tension or migraine headaches. I was getting botox in my neck to relax those muscles, but I have not found it to be very helpful lately.
All of my CT scans show nothing is wrong, but the headaches are the real deal and put my life on hold quite a lot.
I have had in the past TMJ and the oral surgeons convinced me that I needed to have jaw surgery with total jaw joint replacement. I started having these jaw surgeries when it was 1983 and it never helped it only made my jaw hurt much worse. Well, after having 6 jaw surgeries I said "no more" and the last jaw surgery was in 1995. I cannot express just how much you all should not let a oral surgeon start doing surgery on your jaw. My jaw implants were from Vitek, which ended up causing many huge problems with their implants. Finally, they were shut down and the FDA recalled their implants in 1990. The implants have many dangerous materials in them and once implanted in a person they continue to cause severe damage and pain.
My message to anyone that has headaches is see a neurologist and for heaven's sake do not let a dr. operate on your jaw.
I hope that some of this info is helpful to you. Good luck, meaningfulc1952View Thread
Hello ajrmama3, I have had the botox injections in my neck for a few years now that my neurologist does. I have not found them to be of much help with my migraine headaches at all. The botox does relax my stiff neck muscles but that is all.
You say that you are taking hydrocodone for the pain. My experience with that medicine is that is does not help at all with my headaches. I take fioricet with codeine and if it is a migraine I take summatriptan. Relpax is a very good migraine medicine too. I see that you take that when you can.
Maybe you should not discuss your headache problems with your family since they are not being helpful at all. You could always say that you have a very good dr. that is treating you for the migraines and leave it like that.
I take Lexapro also. My pain mgt. dr. prescribes valium and skelaxin for me to help with my muscle spasms. Of course valium is and can be addicting for some people.
Are you seeing a neurologist? If you are not then I recommend that you find a good neurologist and go from there. Some of them do not want to prescribe meds like I am taking and some of them will. It is just a matter of how these particular neurologists are when it comes to medications.
Just because your CT scan was normal does not mean that you do not have a real headache problem. I have had tension and migraine headaches since I was a teenager. I am now in my early 60's. Have you seen a neurologist? If you have not then I would recommend that you do.
My neurologist prescribes fioricet w/codeine and summatriptan and Phenergan. The summatriptan is for migraines and the fioricet w/codeine is for the tension headaches.
Some neurologists that I have seen in the past do not want to prescribe the medicines that I take. If that is a problem for you then I would keep on trying to find a neurologist that will be more helpful for your headache problems. There are many different medications available now to help with tension and migraine headaches. Do not give up, just find a better dr.
Hi Adviceneeded97377, I have the same problem with certain perfumes. The perfumes that are very strong will give me horrible headaches that often leads to a migraine. Now that I have figured that out I avoid wearing those particular perfumes.
There is a definite link between perfumes and migraine headaches. You should try not wearing any perfume and see what is the outcome. If that does not help then it must be another trigger than causes your migraines.
I also have migraine and tension headaches. My treatment for migraine headaches are fioricet w/codeine 30mg. and Phenergan 25 mg., sumatriptan 100 mg. and now atenolol. All of these medications have helped so much with my migraine headaches.
One more thing though. My daughter never had migraine headaches until last year. It got so bad that she went to the ER and they ran all kinds of tests and all were normal. Finally, she went to a neurologist and after he ordered more tests he saw that there was a problem but wasn't sure how to diagnose it. He sent her to a well known neurosurgeon and that dr. knew in seconds after he looked at her tests what was wrong. My daughter had a major vein on the one side of her frontal lobe in her brain that was almost shut down. It was supposed to have spinal fluid in it, but it was almost flat instead of being full. Her neurosurgeon scheduled her for brain surgery the following week and sure enough that was the problem. Now she is not having any type of headaches at all. She is suffering from severe neck pain though. That is another story altogether.
If you do not get better with medications, I suggest that you go see another neurologist and don't stop until you have an answer. The neurosurgeon saved my daughter's life. In fact he said if this was not diagnosed she probably would have died from the severity of the problem at a later time.
I hope that you find another dr. and wish you good luck. meaningfulc1952View Thread
I have had tension and migraine headaches since I was a teenager. I am 60 yrs. old now. I finally found a wonderful neurologist to help me. He has been prescribing fioricet w/codeine 30 mg. and Phenergan 25 mg. for nausea and sumatriptan for the migraines. He also has been giving me botox injections in my neck. My neck is so stiff and always hard to move without having a lot of pain.
I would absolutely change to another neurologist asap and try some of the other meds and treatments. Also, atenolol taken at night helps prevent migraine headaches. I just started on that new med and it is helping a lot. Since I started taking the atenolol I have many less headaches. I am really surprised too. Atenolol is for blood pressure problems I think.
Believe me, any dr. that says there is nothing else to try for migraine headaches well, they don't sound like they are up on the newest treatments that are available. If it were me, I would sure find a new dr.
I have had headaches migraine and tension ones since I was a teen and now I am 60 yrs. I am having botox treatments, but do not get that much relief even with them. Have a pm dr and neurologist too. This is about my 42yr. old daughter and what happened to her. Abt Sept. this yr. my daughter started having severe, and shocking headaches. After exhausting all types of MRI's, ct scans, etc. and seeing a neurologist there was no clear diagnosis as to what was causing her headaches. Very recently she was referred to a neurosurgeon in TX and we all went to that appt. last week. The new dr. looked at these tests on the computer and said there is a blockage on one side where this vein does not get adequate blood supply. In fact he said that it looked like it was not open at all. At that appt. just last week, he scheduled her for brain surgery for this week on 12-12-12 in the Med Center in Houston. This dr. is the head of the neurosurgery and only sees patients once a week. He is also a professor on the other days. After the surgery was done he told us that the vein on the one side of her brain was so pinched closed that she would have died if it had not been caught so soon. In other words, a blood clot would kill her if he had not found the REAL problem. We were all shocked and scared. I have to say that my daughter just came home after 3 days in the hospital. Amazing! The bottom line to all of you that get headaches is if you get a headache that is the most horrific and you never had them please go to the ER and keep pursuing whatever is causing your headaches. Originally, the first 2 drs. thought that she had migraines and or tension headaches and that was not the cause at all. I hope that his will be of some help to you all that are just getting headaches and have not been fully diagnosed by your own drs.
As for my headaches they are migraines and tension ones and they drive me crazy. I take 2 different muscle relaxers and lexapro, sumatriptan, and have pain mgt. dr. that prescribes methadone a total of 80 millagrams in one day. My headaches started when I was a teen, but later in my 20's, I was told that I had TMJ and the oral surgeons that I saw all told me that I needed to have total jaw joint replacement. After 6 major jaw surgeries I am left in chronic pain. The last jaw surgery was in 1995 in Dallas. That surgery lasted 13 hrs. long. When I looked at my face I looked like someone beat the tar out of my face. It was black and blue and very swollen. All that I can say in my case is that I was told originally that if I had jaw surgery my headaches would go away. Well the rest is history. They just got worse.
If any of you have the most severe, horrific headache and never had one before like that please go to the ER and then follow up with the appropiate drs.. I can assure you in my daughter's case it saved her life. That is what her surgeon told her.
Hi to All that get Headaches! This message is to anyone that has headaches and their dr. just does not know what is causing them. In my case, I have migraines and tension headaches. If someone gets a headache and normally does not and the headache persists, then please get medical help. If your primary dr. dismisses your complaint, then I would say, please see a neurologist. In other words, do not give up until you know what is going on. This could save your life if you pursue getting help for the headaches. That's all folks. I am not a Dr., but I have learned a lot about the different type of headaches that people get.