Wow! Steroids made your migraines worse. I'm so sorry. I hope they've found something else to help you when you are at your worst. The only way I can ever make the pain go away is with steroids. I know it's long term side effects are bad and I'm terrified it will stop working so I try to hardly ever use them. It's always a last resort [and when I say last resort I mean over 12 days of 8-9 pain>, but it's the only thing that helps. I end up hospitalized and that cocktail that helps is IV steroids, Deapokote drips, Phenergan and Dilaudid. It takes about 3 days but it will finally break the pain. What steroids do not help is with my trigeminal neuralgia (TN) pain. I actually came to realize that I was having these TN issues because the steroids weren't helping.View Thread
I was treated for about 8 years for my chronic migraines before I ever heard about the facet blocks. I had mine done on my cervical spine (neck). They do inject steroids. Eventually, as far as my pain management doctor has said, you can get an ablation done. But according to him, most insurances make you try the steroids at least once.
I will find out the Botox units when I see my neurologist again.View Thread
I don't know how many units. That's a good question. I will absolutely look into that. Thanks Sara.
I do also get facet blocks done. They don't help the facial pain at all (I have migraines and trigeminal neuralgia), but they help my head a little. I just had 4 levels bilaterally done a week ago. That was my 3rd time. (Anything that chips away at all this pain is worth it to me.) I have tried other nerve blocks and I'm looking into more permanent/long term remedies.View Thread
I also had issues with Botox and my insurance. At first, they approved me. I had 2 sets done and was due for my 3rd when the insurance sent a letter denying any further injections and wanting their money back for the ones I had already done! It took 4 appeals, 2 from my doctor and 2 from me, before I was able to get it approved again. I was 7 months overdue but I finally got my 3rd set done and I did not have to pay for the original sets.
Because it was SO frustrating, I like to share this story with other migraineurs so that they don't give up. Sometimes the insurance companies just make you work hard for what you need.
Another therapy that I am trying now besides meds and Botox is structural energy therapy (SET). It's a body restructuring therapy that incorporates medical massage techniques. It has been very helpful for me. You don't need a prescription from a Dr to get it done.
I have been suffering from chronic migraines for 10 years now. About 3-4 years ago the pain started changing and I've been diagnosed with trigeminal neuralgia. I have an appt to see a neurosurgeon to talk about microvascular decompression surgery. Has anyone had this done? Is there a chance that my migraine pain will also go away with this surgery? I keep hearing so much about "migraine surgeries" in the news and from friends but these surgeries seem to deal with neuralgia more than anything. It's hard to figure all these things out with so much pain and brain fogginess.