I love your moniker:) I don't know that I'll be of any help because I don't know about Type I diabetes, but I do know about migraines & cluster headaches!
I was first diagnosed w/migraine when I was 10; I'm now nearly 58 and I typically have a migraine daily or I get stuck in a 2 - 4 weeks cluster.
What I want to point out to you is there is no question that, at least in part, my migraines were hormonally related. My PMS was off the charts and migraines incapacitated me for days, sometimes weeks. Although birth control pills regulated my periods, they were not good for migraine. Migraines did infrequently attack the back of my head and nausea/vomiting was a constant companion. With age, the vomiting has ceased and nausea is only sometimes present.
When I went thru menopause, my migraines got worse; then, I was diagnosed for having cluster headaches. Both persist today, every day.
One of the best things that happened to me has been to come under the care of a neurologist. He has been carefully monitoring me for about 6 years.
Your d is but 20 and I'd hate to think she has decades of pain to look forward to. I hope she can find an excellent, knowledgeable, and sympathetic neurologist or at least someone who is thoroughly familiar with migraines.
I couldn't help but LOL, Lisa, when I read about your funny eyebrows:D I got a severe Gregory Peck eyebrow after my 1st treatment, but it gradually disappeared and now I just don't have any of those deep lines trekking across my forehead.
My so-called preventive med is Gabapentin, but when I went off of it, oh boy, did I find out the hard way that it, in fact, helped more than not, so I went back on it, even though I hate the cognitive impairment it causes.
You're right, once the migraine cycle gets going, you just have to ride it out, usually in bed, no lights, no sounds, nothing to eat, and praying the nausea does not spill out of your mouth. I just went through this Friday through Sunday. UGH!
I hope you continue to gain relief, in any form.View Thread
It is rare when I hear of another 24/7 migraine sufferer,so I feel for your husband, and you, too, for that matter. Topomax was ineffectual & I also get Botox injections, 32 every 12 weeks. I noticed a dramatic reduction after the 1st treatment; I had only about 18 - 20 each month in btwn treatments. However, with each subsequent treatment, I think I haven't actually appreciated the difference. I was ready to call it quits after the 4th treatment, but then decided to ask for my family's input. All of them thought there was enough improvement for me to continue, so I did. Next month will be my 8th treatment. I still get a migraine virtually daily; perhaps once every 3 - 4 months I'll have a migraine-free day.
Then again, I have days when 1st I take Fioricet; about 2 hrs later, I take 2 tabs of Maxalt; 4hrs later I take an Imitrex injection, & still I am in debilitating pain, laying in a darkened room. Thankfully, these are the kind of days that are now less frequent. I'll take the daily migraine I can---hopefully---nip in the bud w/the Fioricet.
I've learned over time not to try to figure out what kind of headache I'm getting. I use to question is it sinus, or allergies, or tension, or migraine, but per doc's orders, the second I feel the pressure anywhere in my head, I'm to take the 1st line of attack. Fioricet seldom works if I wait longer than 10 minutes.
Enough about my experience. I'm curious, did your husband's doctor prescribe any so-called 'preventive' migraine medication (except for the Botox) or only 'abortive' meds to work in concert with the Botox? Has any combo been especially helpful?View Thread
This question hits close to home: Which is worse, failing or never trying?
I can tell you I failed only when I didn't try. I've often quipped that my mother did not teach me how to thrive, but she sure taught me how to survive. For years, my coping skills carried me along from adolescence all the way through myriad jobs, marriage, parenting, homeschooling them K-12, and having an accomplished paraprofessional career with the YMCA for nearly 10yrs. Of the latter, I was forced to quit because certain medical conditions prevented me from satisfying the position's requirements. My coping skills had run out. I had no fight left in me; I was exhausted.
It's now 3yrs later. I have applied for SSDI 2x. I have become a semi-recluse; my social skills have atrophied. One's world becomes very small when it's only the 4 walls to look upon.
In mid-October, I got angry. I got angry at myself for becoming a victim. Sure, I've got a few medical issues, but not one of them is life-threatening! And, sure, my med issues prevent me from doing what I used to be able to do. So what?
I decided to create a NEW reality, a new base line, if you will. I've taken into consideration my qualifications, my limitations, and I decided to go back to college to pursue another paraprofessional career, one that will allow me to work with learning disabled students.
I begin my studies in January; financial grants have paid for tuition and books, and my studies are online until the field work. Education whets my appetite for more, so I'm expecting to get quite a boost out of this 2yr period, and, who knows, maybe I'll go on to a 4yr degree! It doesn't matter, not right now. What matters is I got up out of my recliner, took a shower, fixed my hair, put on something other than pjs, and made a decision to better my lot.
My 19yr old son said to me when he found out about my new line of action, "Mom, I'm glad to see you are not giving up." I don't need anymore encouragement than that!
Trying is not failing. Failing is not trying.View Thread
When you first described a sensation of a toothache pain, I was going to suggest the possibility of a sinus infection. When I'd get one and leave it untended, it would indeed seep down into my gum line and the toothache was unbearable prompting me to go to the doctor only to be told that it was a sinus infection! Unfortunately, this has happened more than once with me!
However, when you go on to describe the burning sensations on the right side of your body, then I'm at a loss, and can only exhort you to beat down ever doctor until you get a correct diagnosis and treatment. Do not neglect this,dear.
Hi Everyone~~I think I'm a new mbr here; don't recall signing in under "migraines" before. Regardless, I wanted to share my experience re sodas and migraines. If the headache is just beginning to roll in, perhaps a soda (my pref, diet mountain dew) can prevent or at least diminish the effects and duration. If I wait much longer after the onset, no soda will help, not then, not later. Re: mouthwash. I have been prone to severe sinus infections over 40 decades. For a year now, I've been religious about gargling with an antiseptic mouthwash and I have had a dramatic reduction in infections. My allergies still kick up something fierce, but sinus infections seem to be a thing of the past---thank goodness! Recently, I had to go 2wks before being able to purchase mouthwash, and during the same period of time, my husband acquired a mild infection lasting about 3wks. Guess what? I got a sinus infection! Was it coincidence? Is it bc I wasn't gargling for 2wks, or is it bc my husband passed it on to me? I don't know. But, I am again gargling, and I've no longer an infection. Moral of the story: I will continue this maintenance of gargling with an antiseptic mounthwash daily!View Thread
WOW! Dr. Collins! Even tho' I knew most of the info you offerred, except for "reflexes," I am just impressed and grateful you took the time to explain. Thanks for that consideration. I hope you post more info!
Yes, diet mountain dew has caffeine. Caffeine is a funny thing, sometimes it's exactly what is effective and other times it can make things worse. There are otc and prescription drugs that contain caffeine, e.g. Excedrin Extra Strength and Fioricet. Excedrin ES just doesn't work for me anymore. If I feel the slightest throb or pain and take Fioricet, it usually prevents a full blown migraine.
I just recovered from a 5 days migraine; none of my prescriptive drugs (I have 3) were effective. It's just a guessing game sometimes.
If I was reacting to sodas the way you are, I'd stop drinking the sodas!
To Swayze & JARhodes~~I am no expert, sorry to say. But, I feel so bad for you to be suffering so, and to not have received an answer to your entries.
I, too, have sufffered with migraines since I was first diagnosed at 10yrs. My mother did not believe a child could possibly have a headache, let alone a migraine, so there was no treatment.
I am now 57yrs, and I have chronic sinusitus, chronic migraines, and seasonal allergies. I no longer try to discern what kind of headache I have so I can give it its applicable medicine. Instead, my neurologist has insisted I medicate with one of the 3 abortive meds prescribed, or any combination thereof, IMMEDIATELY, no questions asked!
It took me a while to concur bc migraine meds are so much more $$$ than sinus or allergy, but now, I do comply with an immediate does of any one or combo of any of the 3 abortive meds, and usually meet with desirable outcomes, less severe, less duration. For me, that means getting a migaine 4 days out of 7, duration now is about 2-8hours, and severity (pain) is about 4-5/10 on pain scale.
This is a dramatic improvement over what I used to experience: migraines 300 days/yr.; some lasting up to 3wks without reprieve; and insane pain, 7-9/10pain scale, with me slamming my fist into my temple as hard as I possibly could. Of course, sometimes ER visits were necessitated and infusions were administered bringing pain level down to about a manageable 5-6/10, better than nothing!
Now, I've also been on a "preventive" prescription, Gabapentin, which has been increased gradually over a period of 2yrs, now up to 2400mg/daily. It is largely responsible for really bothersome cognitive impairment, dizziness, and loss of balance (I often walk with a cane now). When Gabapentin is no longer effective, I don't know what I'll do! Topiramate caused hallucinations---very scary---so I was taken off after only 1mo use.
That's my story. You probably didn't need to hear another story, but somehow I keep hoping you might read in someone's testimony of an idea which you had not yet considered, and that after you try it for a while, might actually bring you desirable results. I pray so... moxieView Thread