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For the last several months I have been undergoing testing for MS.
Here are my symptoms:
Nystagmus, Numbness and weakness in full right foot traveling up to my knee, and numbness in half of left foot, vision tracking issues combined with blurred vision, balance issues (do okay most of the time walking will occasionally have to catch myself, but when stopping and turning I have to always catch myself, intimacy issues, emotional outbursts, severe exhaustion, hypersensitivity in all lower extremeties.
Here are the tests I've had done:
XRay followed with Steroid Pac; Physical Therapy; Femaile Exam; B12 Lab - Good; Neurological Exam; MRI Brain - Lumbar (2 Lesions one on lower left Tspine, and one on left cerebellum); Lumbar Puncutre - Negative; Lord knows how many labs I've had done - all in normal.
Starting to feel like I'm crazy... Neuro says it's like a needle in a haystack and that he may just need to recheck me in 3-6 months. I understand I"m being impatient, but 3 months (I know people suffer years
), and I just want answers, whether MS or not, the diagnosis doesn't matter to me. My symptoms grow with each day, minimal relief from neurotin.Not sure if should wait the 3-6 months or seek 2nd opinion. I hate to waste another drs' time without an official dx. I do live in an area where there are several MS institutes...
Any help would be greatly appreciated. As I said not sure where this is going, only light my dr has given me is that I have representing symptoms of MS and has not said what or if any else it could be, however with lumbar puncture negative there's not much more they can do right now...
Thank you so much in advance...View Thread
She had tingling in her feet while walking for 2 weeks. Our neuro requested a MRI which showed 2 active small brain lesions and 1 active spinal lesion. She said that brain lesions were not causing the attack, but the spinal lesion was responsible for tingling in feet. My wife was also tested negative for optic neuritis.
She took Prednol (1000 mg for 7 days), and her light tingling symptoms passed about 90%.
Are there any ways (drugs) to prevent another attack? İs it possible to delay or minimize a future possible episode?View Thread
I would like to know if anyone has experienced hair loss while using betaseron and if so, do you have any suggestions or remedies to stop it?View Thread
My symptoms are back pain and stiffness for more than a year, balance issues, bladder urgency, and stiff legs, as well as having one side weaker than the other. There's been no change until I started taking baclofen which reduced the stiffness.
Looking for feedback on this.
Thanks!View Thread
Surely the time has finally come when we should AT LEAST be funding objective research into other approaches. Regardless of your personal prejudices this AT LEAST warrants further investigation.
www.cannabissearch.com/medical_benefits/multiple-sclerosis
Just my 2c.
Patrick Monk. RN Hospice Case Manager. SF. Ca. USA.View Thread
Thank you,
LisaView Thread
I've been trying to do some research. Is it recommended to be tested for MS if you have close family members with it? I'm Just wondering if I should of been tested years ago or if others in my family should be.View Thread
msmaystudy@gmail.com
Give your name and city/state and we'll reply with the details.
It starts May 1 and has a generous honorarium.
Thanks.
RuthView Thread
http://igg.me/p/321295/x/2612729
Please check out what I'm up to, if you haven't already!
Thank you so much,
KateView Thread
Our 13 year old son has had 2 flare-ups in the last 5 months, the first related to optical neurosis and the second, decreased skin sensation in the abdomen area. Before the initial he had no history of any medical issues.
His initial diagnosis with the Optical Neurosis was ADEM, then Clinically Isolated Syndrome. With is second flare-up, his diagnosis was again stated as ADEM. Each time, treated with hospitalization and high dose predisone.
After 5 MRI's, 3 Lumbar Punctures, multiple blood tests and a CatScan, we saw a ped. MS specialist who confirmed his diagnosis of MS.
We are contemplating a second opinion but as parents, we are questioning if that is just to put ourselves at ease because based on the symptoms and their resolution, high dose prednisone, based on what we've read and speaking with other neurologists, the diagnosis is pretty close to 100%.
The hard part now is choosing a treatment option or whether we choose one at all. Being that he is 13, do we hold out until he has another flare-up to begin treatment?
Any input from any forum members who have experience or children who have had to be treated would be appreciate.View Thread
http://owndoc.com/lyme/multiple-sclerosis-is-lyme-disease-anatomy-of-a-cover-up/
This is my view anyway.......View Thread
I was looking over my records from the last 4 years and Never saw anthing about the supposed Lyme Diease test that was supposed to have been done and was supposed to be Neg. I ran into a site ,probably the best one yet about Lyme facts.
http://www.freewebs.com/teenswithlyme/
Because I have always wondered if the bite rash can come back or can reoccure. Just check this out if you have any questions about Lyme facts and it's symptoms...View Thread
I just thought I would my update after having my nerve conduction tests last week. They came out fine
However, I'm going to go through more testing for MS. My neurologist I finally got one that knows their stuff lol) has concerns because of my speech and memory issues, along with tremors and jerks, some urine leakage, ringing in ears, and now a creepy skin feeling. The creepy skin feeling drives me nuts ... Sometimes I feel as if some or some things are crawling on me and when I go to look there's nothing there (even worse when I try to sleep). I have to go for another MRI with contrast and eventually a spinal tap when my neurologists gets my records from my old doctors. Until then, all I can do is wait. ~Lovelyhzleyes~View Thread
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