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Falls

Recently I have had some falls. The 1st one in January, fell down a flight of stairs for no reason just...

Posted by mistyh12ceh

1 Reply | Reply | Watch This Discussion Report This | Share this:Falls Recently I have had some falls. The 1st one in January, fell down a flight of stairs for no reason just...

Been diagnosed with MS since 2007. Now have left-s...

Hello, I have had many episodes with different symptoms but this left-sided tingling and numbness is new. My...

Posted by goombay89

1 Reply | Reply | Watch This Discussion Report This | Share this:Been diagnosed with MS since 2007. Now have left-sided numbness and tingling. Hello, I have had many episodes with different symptoms but this left-sided tingling and numbness is new. My...

18 years old with Symptoms of MS, but still no dia...

Okay, so im new here and just wanted to ask if anyone on here with MS had missed diagnoses with it...

Posted by MissUndiagnosed

Okay, so im new here and just wanted to ask if anyone on here with MS had missed diagnoses with it before, like doctors saying its not MS when you have the symptoms, and then it turns out you do have it.

Im 18 years old with a 2 year old son, About 6 months ago, i woke up one morning with one pupil noticeably larger than the other, and trouble seeing. I went to my eye doctor (Because i do have an astigmatism) and had an emergency medical eye exam. Everything looked normal, and they told me to follow up with my doctor. The next morning, my eyesight was way worse, so i went to the hospital and was admitted. After spending 2 days there and having numerous tests run, they told me they couldnt find the cause and sent me home. Since i cant afford a primary, i just ignored it, and in a few weeks it went back to normal. About 2 months after that, i was watching a movie when all of a sudden my legs felt jumpy and tingly. I thought they were just falling asleep and ignored it. The next morning, i woke up and my legs were numb. My mom said it was just restless leg and told me it would go away, so i went about my business as usual. The next morning, i couldnt move my right foot at all, and the numbness in both legs was noticeably worse. I went to the hospital again, and all they did was run an EKG and tell me im fine and send me home. I got fed up, the next night i went in to a different hospital in our area, and they admitted me. I stayed in the hospital for a week and a half, having numerous cat scans and MRI's of my head, neck, spine, and pelvic area. I also had a spinal tap. The doctors thought for sure this was the onset of MS. Everything came back fine, except for one CT scan of my brain which showed what looked to them like a lesion, pointing to MS. So they did an MRI of my brain, which came back clear with no lesion. They ran lab work, and EVERY little piece came back normal. They couldnt find the cause, but i clearly couldnt even walk or move my right foot. They sent me home, with physical therapy and said to follow up with a nuerologist, but i cant afford a nuerologist, so i havent seen one. I had one session of physical therapy a week after being discharged from the hospital, and then a few days later, i could walk fine and symptoms were going away. Now, about a month later, i still have some numbness on the surface of my skin on my left leg and side, but i have full function of all of my parts again. About a week ago,i was beinding over to dry my hair, and i felt this buzzing down my spine to my foot. It scared the hell out of me. It happens almost everytime i bend over now, or extend my neck. Its not painful, just buzzing and vibrating. Can anyone shed some light?View Thread

Posted by MissUndiagnosed

1 Reply | Reply | Watch This Discussion Report This | Share this:18 years old with Symptoms of MS, but still no diagnoses. Okay, so im new here and just wanted to ask if anyone on here with MS had missed diagnoses with it...

Possible MS?

I guess I am diagnosing myself since doctors can't seem to. I have been healthy and very active all my life...

Posted by lmyrna

1 Reply | Reply | Watch This Discussion Report This | Share this:Possible MS? I guess I am diagnosing myself since doctors can't seem to. I have been healthy and very active all my life...

spinal tap

When Dx of MS-I know that the spinal tap is part of the process, if positive is most likely MS is Dx, but if...

Posted by An_240911

2 Replies | Reply | Watch This Discussion Report This | Share this:spinal tap When Dx of MS-I know that the spinal tap is part of the process, if positive is most likely MS is Dx, but if...

I have MS, and I'm starting a new online community...

Hi everyone, My name is Kate Milliken and I've had RRMS since 2006. In 2009, I made a documentary about...

Posted by KateMilliken

0 Replies | Reply | Watch This Discussion Report This | Share this:I have MS, and I'm starting a new online community! Hi everyone, My name is Kate Milliken and I've had RRMS since 2006. In 2009, I made a documentary about...

Need help...

I have been trying for three years to try and find out whats wrong with me I have numerous symptoms that are...

Posted by An_250912

2 Replies | Reply | Watch This Discussion Report This | Share this:Need help... I have been trying for three years to try and find out whats wrong with me I have numerous symptoms that are...

Cognition issue

Hi everyone! Long story short.....I had my annual review at work last week. My director questioned me about...

Posted by farside_fan

8 Replies | Reply | Watch This Discussion Report This | Share this:Cognition issue Hi everyone! Long story short.....I had my annual review at work last week. My director questioned me about...

Frustration with Doctors, Symptoms, and Diagnosis

I have been struggling for over 6 years with "Something" that has kept me from working and recently, from...

Posted by skilee

3 Replies | Reply | Watch This Discussion Report This | Share this:Frustration with Doctors, Symptoms, and Diagnosis I have been struggling for over 6 years with "Something" that has kept me from working and recently, from...

Diagnosis

I know that getting a diagnosis can be a tricky thing. I've done my reading. I'm very frustrated with the...

Posted by CateHarp

5 Replies | Reply | Watch This Discussion Report This | Share this:Diagnosis I know that getting a diagnosis can be a tricky thing. I've done my reading. I'm very frustrated with the...

HOW DO I GET MY NEUROLOGIST TO TEST FOR AND RULE O...

I guess I should give a brief background of my situation and hopefully I can get avise on how to proceed. I...

Posted by MOM5XOVR

I guess I should give a brief background of my situation and hopefully I can get avise on how to proceed. I was a very athletic as a child and participated in competitive gymnastics. Almost from birth constipation has been a huge problem and issue for me, I would get dark circles under my eyes and even run a fever at its worst. Adolescence helped some but I usually would only move my bowels right before my period each month. Basically I only went one week out of a month, but at least I went. I have been difficult to wake up for as long as I can remember, but a severe bout with mono seemed to be the start of a lifelong issue with excessive sleepiness. For years it was the family joke, I would fall asleep talking to people and could be asleep in a second at any time. When I was pregnant with my fourth child I began having pain and numbness and tingling in my arms and hands, which they diagnosed as carpal tunnel syndrome. This lasted almost continually or three years before it subsided. In addition I have complaining of lower leg pain which to date there has never been a diagnosed cause determined. About 7 years ago when I was nearly killing myself driving due to falling asleep and even began to dream while I was supposively awake, a sleep study concluded I have narcolepsy. I am not convinced this an accurate diagnosis, but my neurologist seems to have ruled out MS just because I do not demonstrate the walking gait of his other MS patients. Other symptoms have arisen and each time they are all treated as separate issues, but all seem to point to possible MS to me. NO one has ever tested to rule it out. I know I suffer from a severe vitamin D deficiency. I also have severe bladder control issues and at 47 it is pretty embarrassing for this to be an everyday issue, I do not go anywhere without bladder control protection on. IBS is the diagosis for the bowel issues and all I know about the bladder control issue is it isn't cancer. I have complained of musle weakness , but due to my previous muscle development doctors don't consider me weak. Everything is getting worse now,mediction doesn't control supposive sleepiness caused by narcolepsy. Leg and hand pain and weakness is more frequent and severe. I have begun to experience odd vibrations in my pelvic area which initially had me searching for a cell phoe, this is what it fels like a vibrating cell phone. This is intermittant and comes and goes. Going down steps my legs vibrate and feel weak, going up steps and walking feels like it takes huge amounts of mental effort a well as physical effort. It is as if I am forcing them to move. Was diagnose with ADD from a child, but have been really struggling with attention and mental confusion to a degree that alarms me. Every day it is something different or new. Yesterday my right knee felt weak, unstable and hurt. Knee still weak but no pain today. Today the muscles in my upper arms hurt an my hands feel weak. My hips bother me off and on and so does my right foot. I am tired of seeing multiple doctors for each different thing only to find out nothing, does it see reasonable for a doctor to at least rule MS out?View Thread

Posted by MOM5XOVR

1 Reply | Reply | Watch This Discussion Report This | Share this:HOW DO I GET MY NEUROLOGIST TO TEST FOR AND RULE OUT MS?? I guess I should give a brief background of my situation and hopefully I can get avise on how to proceed. I...

IT WAS THE SAME BUT DIFERENT...

SOMETHING HAPPEND TO ME LAS NIGHT...OK, I'M MS PATIENT,BUT THE GOOD MS, REMITTING/RELAXING,OCASSIONALLY I HAVE...

Posted by ZALJO65

0 Replies | Reply | Watch This Discussion Report This | Share this:IT WAS THE SAME BUT DIFERENT... SOMETHING HAPPEND TO ME LAS NIGHT...OK, I'M MS PATIENT,BUT THE GOOD MS, REMITTING/RELAXING,OCASSIONALLY I HAVE...

Scared to death! (Optic Neuritis and Multiple Scle...

Hey all, okay here's my story, from a month i woke up finding a big blind spot in my right eye without...

Posted by Antivirusabdo

Hey all,

okay here's my story, from a month i woke up finding a big blind spot in my right eye without any pain or headache or any other symptoms, i ignored it for 3 days then when i didnt find any improvement i went to the ophthalmologist and he told me that everything's fine with my eye there's nothing wrong and then he requested a visual field and he saw the blind spot there, then he told me that's "probably" an Optic Neuritis so transferred me to a neurologist who requested a MRI+C which was normal too, then he said also that's "Probably" Optic Neuritis but he wasn't sure because he didn't see the Inflammation through the MRI and i started to take steroid pills (40 mg) per day but i wasn't so convinced that it's an Optic Neuritis because i didnt find my self suffering from its symptoms specially the pain and headache parts, so i went to another ophthalmologist who requested an "OCT" and he told me if there is any inflammation it will appear in it, i made it and found nothing also, the OCT was normal then he told me maybe there was a very Simple inflammation and it's gone but it takes up to 6 months to recover and to improve the sight and he advised me to continue on the steroid pills, now i am on steroid pills since 3 weeks and i didnt find any improvement, the blind spot is the same (20% of my right eye) but from reading about it i knew that in 85% i won't recover my sight again but i kept hoping that maybe i am from the 15% that do recover their sight after an Optic Neuritis
what really now scaring me, what i read about the relation between Optic Neuritis and Multiple Sclerosis socially if you took Steroid pills (oral) as a treatment
specially i do suffer from problems in my immune system (Psoriasis) already, i really can't sleep from thinking about that and MS specially i read about many topics and many people suffered from MS after an Optic Neuritis and also many people suffered from Optic Neuritis many times again after treated from it!
am really so scared and don't know that to do, i reduced the steroid dose from 40mg to 10mg because there's no inflammation now (if there was in the past!)
i cant stop reading and thinking about it, and how my future gonna be
sorry for the long topic but i wanted to explain everything to you

Thanks A lot in advance

View Thread

Posted by Antivirusabdo

2 Replies | Reply | Watch This Discussion Report This | Share this:Scared to death! (Optic Neuritis and Multiple Sclerosis) Hey all, okay here's my story, from a month i woke up finding a big blind spot in my right eye without...

lesions brain

hi im new to this website, i have a question. back in dec 2012 i was in observation due to creepy crawling on...

Posted by An_250655

1 Reply | Reply | Watch This Discussion Report This | Share this:lesions brain hi im new to this website, i have a question. back in dec 2012 i was in observation due to creepy crawling on...

new type of relapse

I am currently in the throws of another relapse of MS. This time it is the hug on one side and tingling on...

Posted by Anon_21607

0 Replies | Reply | Watch This Discussion Report This | Share this:new type of relapse I am currently in the throws of another relapse of MS. This time it is the hug on one side and tingling on...

Burning Feet - MS or What?

I've had Multiple Sclerosis since '88, and it's the standard Relapsing/ Remitting kind. About 4 years ago,...

Posted by BeckyToney

2 Replies | Reply | Watch This Discussion Report This | Share this:Burning Feet - MS or What? I've had Multiple Sclerosis since '88, and it's the standard Relapsing/ Remitting kind. About 4 years ago,...

Hello again everyone

It's Tanya again. I just thought I would give you all an update. I have not seen a neurologist yet, but...

Posted by Lovelyhzleyes

2 Replies | Reply | Watch This Discussion Report This | Share this:Hello again everyone It's Tanya again. I just thought I would give you all an update. I have not seen a neurologist yet, but...

Accupuncture

Does accupuncture assist in relief of any oof the pain and other symptoms?

Posted by An_250593

1 Reply | Reply | Watch This Discussion Report This | Share this:Accupuncture Does accupuncture assist in relief of any oof the pain and other symptoms?

New Comer

Hey I am new here so I will just give an overview of my condition. Last Jan I was in the hospital the dr...

Posted by thewoods3

1 Reply | Reply | Watch This Discussion Report This | Share this:New Comer Hey I am new here so I will just give an overview of my condition. Last Jan I was in the hospital the dr...

MRI did not show MS but all the symptoms are there

I am a 32 yr old woman with 2 kids. My husband recently left me because I was having serious issues that...

Posted by ashley121680

I am a 32 yr old woman with 2 kids. My husband recently left me because I was having serious issues that kept getting worse but he puts me off as a nutcase and nothing is wrong, i just want ppl to feel bad for me. My symptoms are, which have only been worsening, bladder leakage..numbness and tingling in all extremeties, falling randomly due to legs giving out, dizziness, vertigo, headaches (severe), lack of ability to think straight, lathargic, balance issues, and loss of hearing just to mention a few. I had a MRI of the brain w and w/out contrast coming back as normal. My neurologist is a nutcase, both my husband and I heard him say that if the brain came back ok, he was ordering a T-spine and C-spine because MS does not always show in the brain but now he denies ever saying that and it is not dictated in his notes. I have a family history of MS and all the symptoms. But now the MRI came back fine and he says it is stress and brushes me off. In the meantime, I have had my children taken away from me by their dad until I find out what is wrong and get help and I am now at a dead end. Everyone thinks I am crazy and making this all up (why I would do that I do not know) but now I am forced to seek another neurologist which I can not get into see until late April. I can not work, unless I find a job where it is exceptable to piss yourself and walk into walls and fall asleep randomly. I am at a dead end here and this alone is going to put me into depression. Let alone I am in severe pain much of the time and have nothing to take because this dr thinks I am nuts. I found out after I started seeing him that he has a horrible reputation for misdiagnosis and being a jackass. I just do not know what to do. I have Meniers Disease which causes some of the symptoms such as vertigo and headaches and balance issues but everything else can only be explained by damaged T-spine which I need a dr to order an MRI of...I understand people go years without a diagnosis but I can not wait years to get my kids back and now the whole family thinks I am crazy and don't feel the kids are safe with me until I find out what is causing my problems and start getting help for them. Anyone else have this sort of problem? I feel so alone with this. My husband left me and took the kids thinking I am a attention seeking, lying, making up symptoms (although he has seen me in action) and I just want ppl to feel bad for me. I feel so alone in so many ways right now. I do not have insurance and no income because no job will keep me. My husband thinks I just dont want to work. Rediculous. I am a paralegal and made good money. If I could work I would! I just need support and have NONE because no one understands the severity of the Meniers Disease and passes me off as a loon now that the MRI shows nothing =/View Thread

Posted by ashley121680

3 Replies | Reply | Watch This Discussion Report This | Share this:MRI did not show MS but all the symptoms are there I am a 32 yr old woman with 2 kids. My husband recently left me because I was having serious issues that...

Includes Expert Content

Rash

I need help. I have had a rash that has been with me since March 2011. Little by little it has spread...

Posted by whymebb

1 Reply | Reply | Watch This Discussion Report This | Share this:Rash I need help. I have had a rash that has been with me since March 2011. Little by little it has spread...

Rash

I need help. I have had a rash that has been with me since March 2011. Little by little it has spread...

Posted by whymebb

2 Replies | Reply | Watch This Discussion Report This | Share this:Rash I need help. I have had a rash that has been with me since March 2011. Little by little it has spread...

Ok I Need to know what this means please?

I just got a copy of my most recent MRI W/ Contrast report and it shows that I have many areas in my brain...

Posted by An_250370

1 Reply | Reply | Watch This Discussion Report This | Share this:Ok I Need to know what this means please? I just got a copy of my most recent MRI W/ Contrast report and it shows that I have many areas in my brain...

Includes Expert Content

Ok I Need to know what this means please?

I just got a copy of my most recent MRI W/ Contrast report and it shows that I have many areas in my brain...

Posted by An_250370

Need help!!!

Ok I am highly frustrated today. I was diagnosed as possible MS almost 6 years ago which is around the same...

Posted by TKDeveaux

1 Reply | Reply | Watch This Discussion Report This | Share this:Need help!!! Ok I am highly frustrated today. I was diagnosed as possible MS almost 6 years ago which is around the same...

Includes Expert Content

Need help!!!

Ok I am highly frustrated today. I was diagnosed as possible MS almost 6 years ago which is around the same...

Posted by TKDeveaux

1 Reply | Reply | Watch This Discussion Report This | Share this:Need help!!! Ok I am highly frustrated today. I was diagnosed as possible MS almost 6 years ago which is around the same...

Back, ankle and foot pain

I am a vet, so i go to the VA Hospital to see my dr. I was living in Va. the moved to sc last july. I never...

Posted by shalinda

1 Reply | Reply | Watch This Discussion Report This | Share this:Back, ankle and foot pain I am a vet, so i go to the VA Hospital to see my dr. I was living in Va. the moved to sc last july. I never...

Numbness, Tingling, but not weak. Is it MS?

For 5 months, I had constant numbness and tingling up and down my legs and arms, down the back of my neck and...

Posted by tnshopper

1 Reply | Reply | Watch This Discussion Report This | Share this:Numbness, Tingling, but not weak. Is it MS? For 5 months, I had constant numbness and tingling up and down my legs and arms, down the back of my neck and...

MS - weight gain

Hi, I'm new to this site, but have been reading the posts on weight gai & MS. I have had MS now for...

Posted by daiseymae

2 Replies | Reply | Watch This Discussion Report This | Share this:MS - weight gain Hi, I'm new to this site, but have been reading the posts on weight gai & MS. I have had MS now for...

Possible MS...need to vent

Hi all, I have had "symptoms" for over 10 years and no definite diagnosis. I have tremors...which have...

Posted by EMANDMSMOM

1 Reply | Reply | Watch This Discussion Report This | Share this:Possible MS...need to vent Hi all, I have had "symptoms" for over 10 years and no definite diagnosis. I have tremors...which have...

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