I have RRMS and have been on Tysabri for almost 4.5 years. I do get tested quartly for JCV virus, always been negative.The Ty has been keeping the disease at bay , however I have become more symptomatic. I did have lesions on the brain, optic nerve and lumbar and c-spine. My memory is terrible and gradually becoming worse. I recently had been tested with a neuropsych eval. Yesterday I was told the results which indicated I have dementia. I am 44 years old. They suggested for me not to even work. Wondering if this is normal? Does anyone else with MS have this at my age? I go to my Neuro on 4/9 along with my husband, hoping for more answers. Any input would be greatly appreciated. VickiView Thread
I think I am having a MS Flareup..I am numb from below my waste down. It''s been 5 1/2 weeks and still getting worse. Had MRI'a on cervical and thorastic spine and no ne leisons showed up and nothing showed active. Has anyone experienced this. I am wondering if this will go away anytime soon. Also will it go away all at once or little by little.View Thread
Hello Fellow MSers! I've been on Avonex since 1996 and STILL have side effects that can be miserable at times. I'm thinking about switching to Gilenya (fingolimod) in the future (no injections!!!) and would like to hear of anyone's feedback on the subject.
I haven't discussed anything with my neuro yet but I'm trying to understand the pros and cons of the possible switch in therapy. Most likely, my neuro will tell me...."don't fix it if it ain't broke" so any feedback appreciated.
A year ago, my neuro decided I might have CIS - Clinical Isolated Syndrome when I was DXed in 1996 with relapsing remitting MS......but also said I most definitely have MS, even though I've never had a problem since day of DX and have stayed on Avonex every week....except for the past 6 months.
Any feedback available? I'm so sick of the weekly injections and pills sound so much better! Am I stepping from the pan into the fire?
I've been with ms now going on 4yrs and neurologist says doctor is wrong and now this new one I'm seeing knows my doctor that diagnosed me with ms and says that he wouldn't say I have it without real evidence and being symptomatic for that long and he couldn't do nothing yet my old neurologist put me on a med that caused strokes and death. I'm scared to trust another neurologist but I hear she works with MS patients all the time and is licensed in the treatment of MS.View Thread
A close friend of mine, saw on a show like a Dateline talking about Bee Pollen as a huge help to MS patients....
Posted by An_255864
A close friend of mine, saw on a show like a Dateline talking about Bee Pollen as a huge help to MS patients. I never heard about this until now. I would love to hear any good or bad news about bee pollen and MSView Thread
My oldest daughter was 12 years old when diagnosed with MS. She is now 20years old. My son is 15years old and diagnosed with shingles today. I know there has been linkage to that particular virus and MS. Are there precautions i should be taking with my other children being that they're at higher risk? Should he be put on a antiviral? Im worriedView Thread
It has been a while, so if some have replyed or inqured I needed some down time. I also got annoyed with not being able to correct type errors. Ms people do not need a site thats a struggle to use. I am taking Gilenya now. Bye to years of Betaseron, cannot take new meds that have hiving side affect and my relapse rate has slowed. I am habing more pain, tingling and numb spots. Steroids no longer help exacterbations. I could be worse. Humor helps at times. Like flying threw the air. Landing in next isle. Customer picks you up for saying excuse me as you flew past. Make sure you say hello im supergirl. Lucky for me not hurt from the home run slide with carpet burn. NE winter been rough on being active. Look forward to spring. Hope many of you are stable, and newbies your not alone. View Thread
I got diagnosed 3.5 years ago but my neurologist said I probably had it for 20 years ago when a doctor was...
Posted by An_255729
I got diagnosed 3.5 years ago but my neurologist said I probably had it for 20 years ago when a doctor was treating me with lyme disease. I am feeling depressed and I miss working so much. I have pain in my right buttock down to my foot, I have had it sin December of 09. Went to one doctor and he told me it was the pririformis muscle. I now found out I have a herniated disc and that the pain I am having is probably being caused by my sacriatic join. I am going to a pain management doctor tomorrow and I will beg him to give me a shot tomorrow. I have just spent the last day and a half researching on the internet about what foods I should be eating. I wish I had done this when I first got diagnosed but I am doing it now. If anyone has any pearls of wisdom to help me not to feel so bad about missing working and all my friends it will be deeply appreciated. -KatherineView Thread
Hi everyone I am new to this but my fiancee has been diagnosed RRMS and I am trying to find out as much as I can to be supportive. If there are any books or sites other than this one that anyone can suggest that would be great.View Thread
I need some input I was diagnosed in 2011 my symptoms at the time was loss of sight in right eye extreme neck...
Posted by An_255702
I need some input I was diagnosed in 2011 my symptoms at the time was loss of sight in right eye extreme neck tightness and pain and constant headaches 3 years down and I still suffer from same symptoms and neurologist says he is not thinking M.S symptoms which I don't understand since these are the things that led me to the MRI that shows multiple lesions and spinal tap that showed M.S has anyone else experienced this pain with their neck? and any suggestions of a doctor that could help me if the neurologist can not? Thank you in advance for any suggestions.View Thread
I read many articles about the potential benefits of Bee Pollen to Multiple Sclerosis. I created this discussion to hear every-ones inputs and even experiences on this subject. I started taking Bee Pollen not very long ago (Approximately 3 weeks). If the benefits of Bee Pollen to MS are in fact true, Bee Pollen can be a very serious candidate of it possibly being used as medication ?
I've always had severe muscle spasms in my legs, back, and moderate nerve damage in both legs and one arm but lately, the spasms are bad in my legs and get worse when i bend down to pick something up, especially when i bend using my knees, the spasms increase so much I can hardly get back up and the pain is terrible a 10 for sure and I have a high tolerance because I've had this disease for 16 years now, so I've learned to deal, my medications help, but lately, this is getting bad, today I literally had to have my son help me stand back up and then both legs swelled up badly...so i got off them and rested, but still swollen and in pain....my question to you all is, and I thank you in advance for any help you can give me, is has anyone else dealt with this, my fear is losing my ability to walk maybe its a relapse...i'll find out...but its getting alot worse over this past year....thanks for you helpView Thread
Hoping someone can give some insight. About 15 yrs ago i started having some health issues. Was told it possibly coukd be several things. Each episode i would have was almost stroke like but was told it wasnt a stroke. Ive also been told i had early signs of MS. Was even turned down from insurance because my medical history said "possible" MS. My frustation has kept me from staying with a doctor. Well ive started seeing a frequency in certain things. My hair has gotten brittle & my bangs havent grown in 5 years. About 4 months ago i started having eye problems. Now the last couple of days ive been having issues with borh feet getting that pin prickly feeling. Just a little confused and worried. Im a 45 year old female.View Thread
I have SPMS stage 5.5 and I have a bleed in the lower pons of my brainstem. I've been told that they cant opperate . This is my 2nd opinion. Should I even try to get more help or should I just accept it and stop? I dont know if I have the strngth to fight anymore.View Thread
Recently, when I have an orgasm, there is little to no semen produced out. When I urinated afterward my urine looked normal. I am worried. I do not know what this could be. I have not had any surgeries of the pelvis and have not been diagnosed with diabetes.View Thread
I am taking daily shots with the autoshot. I havd notice that I always bleed alittle when I do my shot in mt...
Posted by An_255431
I am taking daily shots with the autoshot. I havd notice that I always bleed alittle when I do my shot in mt thighs. I am on 4 on the autoshot but I dont have enough fat to pinch. Does anyone else have this problem, or and suggestions on what I could try. Thanks for any helpView Thread
My mom has had Multiple Sclerosis for almost 40 years. She has been legally blind since the beginning and now is wheelchair bound. She can only walk a few steps with a walker. She has bowel and bladder problems. More recently she is having cognitive problems including short term memory issues and processing issues. Has anyone ever heard of someone feeling like this? She feels like she has seen TV programs and soap operas before? She says to her everything is a repeat even the news sometimes.View Thread
I have a question about the 24 hour rule. My eyelid has been twitching since yesterday A.M. Continued through the day yesterday. Woke up with it again this morning and still occasionally going through the day. Is this something I should call my doctor about?View Thread
Hello Community, My name is Danyelle and one of my best friends has MS. I have decided to dedicate my life to helping him battle the disease. I was wondering if any of you can advise me to healthy eating solutions and other resourceful information. I am not familiar with the disease nor what I can do to assist him. I have a background in personal training and am very much into nutrition and juicing. I plan to start going to his Dr appointments and researching as much as I possibly can. I sincerely appreciate your time... ~DanyelleView Thread
My boyfriends mother is very ill. She has had M.S. for years and her youngest son who is now 24 has given up everything to take care of her at their home, however he too is now very ill and needs to be hospitalized for a severe drug addiction which he is ready to seek help for. They basically have no money, possibly no home very soon here and now if he is unable to seek treatment for himself unless there is help for her. Its my personal opinion that they will both die very soon if it isn't addressed. Basically I need resources to help them help themselves because at the moment everyone feels that all is lost. If possible any help would be greatly appreciated.View Thread
I served twenty months in Viet Nam and received an honorable discharge in 1972. In 1976 I went blind in my...
Posted by An_255050
I served twenty months in Viet Nam and received an honorable discharge in 1972. In 1976 I went blind in my left eye for ten days. A neurologist told me I probably had M..S. The M.R.I. wasn't invented ten and there was no way of knowing for sure. I did not think to contact the V.A. until 1981. They ran tests and told me I did not have M.S.
When the MRI was invented I had one and there was now proof of M.S. The V. A. has a time limit of seven years to claim and, although they recognize other neurological disorders caused my Agent Orange also they do not recognize Agent Orange as a cause of M.S.
I have my V.A. records where I told their doctors I had been having M.S. symptoms since 1976 - within their seven year window.
First, I do not believe M. S. must manifest itself within seven years and second I do not understand how the V.A. can recognize some neurotically illnesses but not M.S. as being caused my Agent Orange.
Intrested in anyone on the new therapy, Tecfidera. Is it helping you? what side effects are you having? Notice any spinal cord pressure, migraine, blurry vision, or new neuropathy? I would be great full to anyone willing to respond. Feeling worried and insecure.View Thread
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.
The opinions expressed in WebMD Communities are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. Communities are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service or treatment.
Do not consider Communities as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.