What you describe is very familiar. I tend to feel heat in the face, too, and need to sleep with a fan blowing at my head. The rest of my body feels varying degrees of cold and hot.
Multiple Sclerosis does interfere with the systems that regulate our body temp. But other things can cause it, too, a thyroid imbalance being one. Perimenopause and menopause can cause these symptoms, too. But if you've had doctors run tests for these things and they found nothing off, then you can probably chalk it up to MS nerve damage.
Not much to be done about it. But it can change over time, if that's any consolation. Hope this helps.
Sounds as though your doc is on top of it and doing all the right things. Gabapentin is used for a wide variety of nerve discomfort, that and Lyrica are the go to drugs for all those strange sensations we feel. I hope you remain stable on your new disease-modifying therapy. Please do keep us updated on how that's going for you.
I have patchy numbness that is permanent. Generally, if a new symptom lasts that long then it isn't likely to resolve. But bear in mind that everybody experiences this disease very differently. Numbness can change, as can any of our symptoms. There's no way to determine what will happen for you. The most we can do is keep track of our symptoms and be sure to report any new or worsening symptoms to our neurologists.
You didn't mention if you reported this to your neuro and that they've determined whether you are having a relapse. If you have the relapsing-remitting form, that kind of new numbness can mean you are having nerve inflammation and might benefit from steroid therapy. Steroid therapy won't affect the outcome, but it can shorten the length of a relapse.
If you haven't discussed this with your neuro, it's important that you do. I hope you have the best outcome. Gentle hugs to you.
I sympathize with you; feeling low or no libido can make us feel even more isolated, freakish, and unlovable. I felt the same way for the first 6 or 7 years (actually more like 8 or 9), and I'd met my husband during the latter part of that and the sex was never that great for me. But something woke up my sex drive and I became like a teenager again. It might have been the hormone changes that came along with perimenopause at the time, I'm not really sure. Several years have passed since them and I'm now in menopause. My sex drive is still alive and well. I'm divorced now and not in a relationship, but I still have a good time by myself, lol.
Physical intimacy is a vital part of a romantic relationship, and I hope you don't write it off completely. Things can change! Most importantly, having a partner that is willing to explore intimacy with you--provided you are equally open to it--can help you discover new ways to get aroused that you didn't know existed. Or, exploring without feeling any pressure to perform can relax us enough to feel arousal.
It wouldn't hurt to discuss your concerns with your doctor and perhaps seek some counseling. Chronic illness can cause both physical and emotional problems where sex is concerned, and a doctor can help you explore what may be at the core of the difficulty. If sex is physically painful, definitely consult a doctor about that.
This thing is clearly getting you down, and that is a sign of feeling helpless. All is not lost. I hope you'll seek some professional advice from your docs.
Wouldn't it be nice if our doctors could precisely map our lesions and show us how they direct correlate with our symptoms? Alas, such a rational approach to our disease management only results in heartbreak, lol.
I also have lesions in C-5,6 with numbness and burning/various other neuropathic sensations in my left leg. Nerve signals get distorted on their way to and from brain, spine and limbs in such complex ways. If our doctors are often at a loss for an explanation, we can hardly hope to make sense of it all.
All we can do is track our symptoms, report the new ones and the worsened old ones if they last more than 24 hours, and follow our doctors' recommendations for symptom management if these sensations become very bothersome.
I mistakenly responded to a 6-year-old post, lol. Now that I've read your post, I just wanted to let you know I'll be thinking of you and hope you'll let us know what the surgeon says. What does your neuro think about the shooting pains?
Spasticity is when a muscle is overly toned and permanently "flexed," it cannot relax. It can be painful, but not necessarily so.
I know it's hard to avoid, but I would discourage you from trying to determine in a literal sense whether your symptoms match the MS symptoms that you've read about. There is no typical case of MS, and we don't all experience symptoms exactly as they are described.
What I would encourage you to do is go to your doctor and describe this foot and ankle pain and stiffness. A physical--or what is called a "neurologic" exam--will determine whether you have spastic muscles. There are medications such as muscle relaxers that treat this condition. Personally, I take baclofen for my leg spasticity. You don't need a disease diagnosis to be treated for spastic muscles, by the way.
It sounds as though your doctor is doing the right things as far as testing you for MS and keeping an eye on you for follow-up. Having a clear lumbar puncture doesn't rule out MS. An MS diagnosis is made by looking at a variety of test results, looking at the symptom history and neurologic exams. Part of diagnostic testing is ruling out other causes, and this can be done with a panel of blood tests to check for diabetes, Lyme, and a bunch of other things that would show up in the blood serum (which MS does not). In the meantime, it's important that you keep a symptom log and call your doc whenever something new flares up, or something old worsens and causes you pain and distraction.
This way you and your doc are creating a history of symptoms to refer to down the road, and any uncomfortable symptoms are being treated so you can maintain your quality of life. No matter what your diagnosis turns out to be, your personal symptom history is how your disease is affecting you, and that's the most important thing to know.
I hope this makes sense, and I hope you'll make that call to your doc real soon. And do let us know what you learn.
Your symptoms could be caused by any number of medical conditions. No one on a health forum, including a doctor, can possibly point you in one direction to investigate.
It's good that you will see a PCP this week. Make a symptom log, write down as many things as you can recall and for how long you've experienced them. It's a doctor's responsibility to listen to your history, examine you, and start investigating causes by ordering various tests.
The thing with autoimmune disorders is that they are often diagnoses of exclusion. Try not to diagnose yourself as you seem to have done with lupus. With all the differential diagnoses, it's tough enough for doctors to solve the mystery. You can help them by being thorough in your documentation of symptoms, and reporting new symptoms and making an appt. to see the doctor.
In the case of MS, there is no one definitive test. Diagnostic tests are ordered by a neurologist and include brain and spine MRIs, a neurologic exam to test strength, coordination, balance, vision, and sensation, evoked potentials that measure the speed of electrical signals that travel from the eyes and ears to the brain, and a lumbar puncture that checks the spinal fluid for inflammation. Blood tests will rule out diabetes and other things, MRIs will rule out stroke, tumors, spine disease, adrenal conditions, etc. An EMG will rule out peripheral nerve damage.
I hope you will let us know the outcome of your Wednesday appt. Do keep us updated on your progress. I hope it isn't MS, but if it is, know that you have lots of resources for support and info here and elsewhere on the internet. Good luck.