It's time to get a second opinion. Though it is possible to have MS and have negative brain/spine MRIs early in the disease, your symptoms could be caused by a number of other medical conditions.
Blepharospasm syndrome, from what I've read, only affects the face/eyelids. It doesn't account for your other problems. And yes, they could all be related.
If you want to pursue more MS testing, you might try to find an MS specialist. Or at least see another neurologist.
At any rate, your doc should be investigating further to determine the cause of your symptoms, and working with you to find symptom meds that work and that you can tolerate.
We MSers take gabapentin and Lyrica for neuropathic pain. I have rib pain sometimes, too, and heat can relieve it. A heating pad relieves my leg and neck pain as well.
When I first presented with MS symptoms, I had to see six specialists before i found one who took me seriously. I was misdiagnosed and blown off as having panic attacks. So, you must be assertive and push your doc for answers and symptom relief. If s/he isn't willing, find another doc.
Hope this helps, and I hope you'll find some answers and relief very soon.
You are right to seek out another doctor, someone should be investigating this further and trying treatments that would make you more comfortable.
You didn't mention how long you've had the vertigo or whether you've tried any meds for it. There are drugs such as meclizine and others that might help.
As far as the cause, lots of medical conditions can cause vertigo and tingling besides MS. Try to keep an open mind and not diagnose yourself. Not to scare you, but my mother developed vertigo and nausea in January, they thought BPPV too, the doc treated her with meclizine, but she was diagnosed with terminal lung cancer a month later, it had metastasized to her brain. I'm not saying you have something that serious, simply that it can be caused by any number of things.
To answer your question about MS being possible even with a negative MRI, yes, it's possible. If you want to explore that avenue further with a neurologist, it certainly wouldn't be a waste of time to rule out neuro possibilities.
I hope you'll find relief soon and get the mystery solved.
What you describe is very familiar. I tend to feel heat in the face, too, and need to sleep with a fan blowing at my head. The rest of my body feels varying degrees of cold and hot.
Multiple Sclerosis does interfere with the systems that regulate our body temp. But other things can cause it, too, a thyroid imbalance being one. Perimenopause and menopause can cause these symptoms, too. But if you've had doctors run tests for these things and they found nothing off, then you can probably chalk it up to MS nerve damage.
Not much to be done about it. But it can change over time, if that's any consolation. Hope this helps.
Sounds as though your doc is on top of it and doing all the right things. Gabapentin is used for a wide variety of nerve discomfort, that and Lyrica are the go to drugs for all those strange sensations we feel. I hope you remain stable on your new disease-modifying therapy. Please do keep us updated on how that's going for you.
I have patchy numbness that is permanent. Generally, if a new symptom lasts that long then it isn't likely to resolve. But bear in mind that everybody experiences this disease very differently. Numbness can change, as can any of our symptoms. There's no way to determine what will happen for you. The most we can do is keep track of our symptoms and be sure to report any new or worsening symptoms to our neurologists.
You didn't mention if you reported this to your neuro and that they've determined whether you are having a relapse. If you have the relapsing-remitting form, that kind of new numbness can mean you are having nerve inflammation and might benefit from steroid therapy. Steroid therapy won't affect the outcome, but it can shorten the length of a relapse.
If you haven't discussed this with your neuro, it's important that you do. I hope you have the best outcome. Gentle hugs to you.
I sympathize with you; feeling low or no libido can make us feel even more isolated, freakish, and unlovable. I felt the same way for the first 6 or 7 years (actually more like 8 or 9), and I'd met my husband during the latter part of that and the sex was never that great for me. But something woke up my sex drive and I became like a teenager again. It might have been the hormone changes that came along with perimenopause at the time, I'm not really sure. Several years have passed since them and I'm now in menopause. My sex drive is still alive and well. I'm divorced now and not in a relationship, but I still have a good time by myself, lol.
Physical intimacy is a vital part of a romantic relationship, and I hope you don't write it off completely. Things can change! Most importantly, having a partner that is willing to explore intimacy with you--provided you are equally open to it--can help you discover new ways to get aroused that you didn't know existed. Or, exploring without feeling any pressure to perform can relax us enough to feel arousal.
It wouldn't hurt to discuss your concerns with your doctor and perhaps seek some counseling. Chronic illness can cause both physical and emotional problems where sex is concerned, and a doctor can help you explore what may be at the core of the difficulty. If sex is physically painful, definitely consult a doctor about that.
This thing is clearly getting you down, and that is a sign of feeling helpless. All is not lost. I hope you'll seek some professional advice from your docs.
Wouldn't it be nice if our doctors could precisely map our lesions and show us how they direct correlate with our symptoms? Alas, such a rational approach to our disease management only results in heartbreak, lol.
I also have lesions in C-5,6 with numbness and burning/various other neuropathic sensations in my left leg. Nerve signals get distorted on their way to and from brain, spine and limbs in such complex ways. If our doctors are often at a loss for an explanation, we can hardly hope to make sense of it all.
All we can do is track our symptoms, report the new ones and the worsened old ones if they last more than 24 hours, and follow our doctors' recommendations for symptom management if these sensations become very bothersome.
I mistakenly responded to a 6-year-old post, lol. Now that I've read your post, I just wanted to let you know I'll be thinking of you and hope you'll let us know what the surgeon says. What does your neuro think about the shooting pains?