I'm so sorry you've had to go through this. Not all neurologists are good at diagnosing and treating MS, and that's why it's important to try to find an MS specialist. If you're struggling to find one, you can contact your local chapter of the National Multiple Sclerosis society for a list of specialists in your area.
Please don't give up, there is help out there for you. Many of us struggle with what you are going through right now, you're not alone. Get a second opinion. We have to advocate for ourselves to get the care we need and deserve.
Are you taking a muscle relaxer? Your extreme neck tightness sounds like muscle spasticity, which is increased muscle tone that can cause cramping and intense pain. It is one of the most common MS symptoms, I have it myself.
I take baclofen for spasticity, there are other meds for it as well. I also use a heating pad and it works well for me.
Having herniated discs in your neck can cause pain, too. If you have spine problems they would have shown up on an MRI. I have that condition as well and I use a heating pad for the neck/arm pain it causes.
Your neuro ought to know all about muscle spasticity and should be testing for that whenever they give you your physical neurologic exam (which should be every time you see them) that tests strength, reflexes, coordination, balance, and sensation. If your neuro doesn't talk to you about tightness in your muscles then something might be amiss. You might want to find another neuro.
You're wonderful to want to educate yourself about your fiancee's MS There are plenty of sites out there where you can learn about MS and also interact with people who are caregivers of loved ones with MS who are experienced and knowledgeable. Here are several:
I have had short periods of inexplicable worsened spasticity/muscle spasms and pain in the legs, but I wasn't in a flare. My neuro put me on Lyrica for the pain and I got some relief, but I'll add that those worsened symptoms were temporary and my legs returned to baseline spasticity/weakness after a few months.
I have had to increase my baclofen dose for spastic muscles just recently after many months of increased stiffness. It happens periodically.
It's really important to stay active every day. Try not to sit for long periods of time, that will stiffen our legs and invite spasms faster than anything.
If you can manage it, do stretching every day to ease spasticity in addition to taking a muscle relaxer. Calf stretches are very easy and they will make an immediate improvement. Gentle, basic yoga is one method of stretching. Aquatherapy is a safe and painless way to stretch/exercise those legs, too. A PT order from your neuro can make that happen.
Sounds as though it's high time you saw your doctor. If you don't have a neurologist, I'd suggest you see a primary care doc and describe all of your symptoms, when they started, and how long they lasted. Make mention of the earlier suspicion of MS; that along with a neurologic exam and history ought to lead to a referral to a neurologist.
But also be aware that other differentials would need to be ruled out all over again. Stroke, Lyme disease, diabetes, thyroid, etc. Blood tests would be done, it might take some time, so be prepared.
Now, brittle hair and non-growth of bangs are things I had at your age, too, but I think that had more to do with medications or hormonal changes and less to do with MS itself. The good news is that now at age 56, my hair has been on the mend for a while, the front hairs have been growing and the hair is a lot more supple. I went into menopause this year. Who says there aren't things to look forward to in middle age, lol? I'm fatter around the middle but I've got prettier hair I can wear in a longer style now. Ya gain some, ya lose some.
I hope you'll contact your doctor about your latest symptoms and stand your ground about getting testing and referrals. Don't let them blow you off. Tell them how your symptoms are affecting your quality of life and you need to see some follow through about these things. That should kick their butts.
Discuss this with your doctor right away. Research tells me that this isn't unheard of among men with MS. Having a dry orgasm isn't harmful in itself, and the causes of a dry orgasm can range from nothing serious to an enlarged prostate. I hope you'll soon call your neuro for an evaluation.