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Joined: 02/05/2010
My Story:
Michigan-based writer and MS patient advocate/consultant. Diagnosed with RRMS in 2005. Therapies: Copaxone 4.5 years, Rebif four months, Tysabri one year, took no DMDs for two years, then started Tecfidera in Sep. 2013. No MS in family history.

See my list of essays about living with MS at:

For an earlier set of essays, see my personal blog titled "Doc, It Hurts When I Do This" at:

Latest Activity

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Reply: what's wrong with me
Hi medmistry, I've attached an article below addressing your issues. What might have...More
Posted by hackwriter
Dear lostalaskan, You haven't mentioned the results of testing. Have you had brain and...More
Posted by hackwriter
Reply: Do I need to give up on doctors
Dear Elaine, Did a neurologist diagnose you in 2007? That doctor should have discussed...More
Posted by hackwriter
Dear shirl1642, I'm so sorry, shirl, did this happen recently, as the result of a...More
Posted by hackwriter
Reply: MS when you're older
Hello, I'm 55, mildly symptomatic since age 12, had my first full-blown attack at age...More
Posted by hackwriter
Reply: having another baby with ms
Dear angela, Studies on child-bearing and postpartum long-term disability show...More
Posted by hackwriter
Reply: ADEM - Acute Disseminated Encephalomyelitis
Suzanne, Thanks for the update, that makes more sense--and keeping you on Avonex makes...More
Posted by hackwriter
Reply: Eating Rare Steak May Help to Cure MS
Dear SelfExperimenter, If you're being serious--about which I have grave doubts--there...More
Posted by hackwriter
Reply: ADEM - Acute Disseminated Encephalomyelitis
Dear FSF, I'm a little confused by your report that you think you may have ADEM. Is...More
Posted by hackwriter
Reply: New Therapies
I meant to address my response to lisasnyc, too More
Posted by hackwriter