Hi, An 204959 and welcome! I'm just back from a summer off (I work for a school) and wanted to comment on your post. I have had to use a cane for about 3 years now-I have a lot of weakness and numbness in the left leg and stumble a lot. Sometimes I even need to use the motorized wheelchairs at large stores.
Two months ago, I was assigned a new primary (I'd been trying for about 9 months to get a new primary) I gimped into her office and tried to lay out the laundry list of symptoms. She immediately stated she thought I had PTSD and this was at the heart of all my problems! She also did not want her patients looking on the internet for info (that would just confuse me!) and did not believe in prescribing pain meds (despite the bone-deep pain in my hips and left leg).
I'm really proud of you, walking away from that doctor so quickly. It took me many years to develope the guts to be insistant and stand up for myself. You have also chosen to talk to many others that share your problems and can support you in your efforts to get better.Over the last year, the folks in this community have helped me more than they can know, and I know they will help you too. Kudos to you and hang in there!View Thread
Kim, thanks for responding...that's a good question. When I turn my head or body, when I stop turning, I don't stop turning. Does that make sense? I"m trying to stop but it feels like I'm still moving, which frequently causes me to run into things. It's like when I stop moving, the room takes off.
In answer to the driving issue, I've only had two minor instances, when turning a corner, and it only lasts a split second. I guess it's my feeling of responsibility towards the kids.
Also thanks for the "cowgirl up"! My mom says the same thing-she never had to discipline me as a child. I already felt so guilty she didn't need to. And you are right-I have enough to worry about without dealing with someone else's opinion about my illness.
1) Yes 2) 99-108 3) If I absolutely have to go out in the heat, I wear a large hat and long sleeves because of the sun. I also have a container with some ice and a couple of rags. When I get too hot, I dig a rag out of the ice and wipe myself down with the icy water and sit in the shade for a few minutes. A large glass of iced tea and some good company go a long way toward helping handle the heat!
Hy everybody! Hope everyone out there is holding up well. My question is: in the last two days, I ran into a fire extinguisher cabinet and tore a three-corner tear in my right arm. This morning I ran into the door jamb, jamming my index finger pretty good. I don't think it's broke but it's pretty sore.
When I brush my teeth or lean over to wash my face, I have to be very careful not to keep leaning till I go face-first into the faucet! I guess what I'm trying to say is, my balance sucks!
Since I have yet to find a doctor in the group I must use who will take all these symptoms seriously, I'm afraid to mention the balance issue to anyone else for fear I'll lose my driver's license.
Has anyone else in the MS community run into this problem? How do you deal with serious balance issues? My supervisor occasionally asks me to help drive students and I'm getting concerned-what if one of these "episodes" happens while I'm driving?
Also, thank you all for sharing your dreams and ideas in this community! It means a lot to me that you all treat me with respect and dignity, even if I've gone face-first into my sink! LOL!
Wow, what timing! We were talking about this today! I'm considering filing for disability and was discussing it with a co-worker who is also very mobility impaired.
I have felt awful about "causing a ruckus" at my workplace. They have required me to move back to my old job (which I cannot handle physically and struggled for 2 years to transfer out of) or go home.
I'm really feeling guilty about insisting on my rights under the ADA-I'm perfectly capable of performing the duties of my current position. Make a special request? I'm not sure I could. Tell me more about how to do this...
Years ago, I worked at Ruidoso Downs in New Mexico. If I could find a full-time permanent job there, I would move in a heartbeat! The altitude is not exessive, the weather in general was, while I was there, pretty mild and the humidity stayed fairly low (there were frequent thunderstorms, but as soon as they blew over, is was pleasant again) I've heard they get some snow but I can handle that a lot better than I can handle heat.
Hi all! If any of you are watching the news, you are probably aware that central and north/east Oklahoma has been hit by multiple tornados.
I work at a residential school and have been monitoring the weather conditions for about 7 hours now. Not only are we responsible for a lot of children, we all have relatives in various parts of the state, so of course we are worried about them as well.
There are two of us here that have MS or suspect MS. My friend has developed atrial fibrillation and, due to the worry and stress of this wild weather event, her heart if fluttering quite a bit this evening. She wants to know if she should be watching for a flare.