Was diagnosed with disc problems in 2001, have had neck and lower lumbar back problems for years.
An MS diagnosis is made after doing a number of tests that include brain and spine MRIs; evoked potentials; a neurologic exam that tests your strength, coordination, balance, reflexes, and sensation; and a lumbar puncture.
Never had a evoked potential done, reflexes are good, strength is still good not what it was when I was lifting. Balance is not so good but left leg doesn't work very well but that happen from lifting.
Was told I have the JC virus. Have taken MS drug they don't work.
Have done lots of research on MS, stress now has shown it can show signs of MS.
Doctors need to do a complete history, have dealt with a lot of losses including 4 daughters, but know where is that listed in my medical records. I'm tired of fighting with doctors.
Told my last doctor if he can show me that I have MS I can handle that not this is what it looks like,but what it is.View Thread
Having a positive LB puncture does it mean you have MS ?
I was diagnosed in 2001 with MS, I have shown NO signs of MS.
Have had muscle weakness in left leg, having other problems Neurologist saw what
Looked like MS was MS NOW everything is MS.
Two neurologist have said I have degenerated disc disease but now it's a disagreement
and I'm in the middle.
Thanks for the reply Dr. Lava I know longer have a primary care physician. I have done a lot of research and everything I've found shows it could be cerebrovascular disease, it also shows that the lesion that show MS could also be caused by this. I have contacted my MS doctor to be tested for this and he refused to look at as anything but MS.
It's nice to know that another doctor is more opened mined to other thoughts.View Thread
Thanks for the info. Asked my neurologist if the problem with walking was from the spinal stenosis at L5,L4,L3 &S1S2, or was it from the MS.
He said he didn't know and no neurologist could say what is causing it.
Talked to the doctor about CCSVI not to have the procedure but being tested just to see if there was blockage as I have shown some signs.
While getting my Tasabri they checked my blood pressure I asked to have it checked in both arms your allowed 10 points between arms mine was 20 points.
Again nothing was done I guess I just have to wait.View Thread
I was diagnosed in 2005 with MS my neurologist did an MRI, and spinal tap and he says I have MS. No other test were done, I have been a weight lifter for many years, had a lifting injury and lower back as caused me pain ever since my MRI shows spinel stenosis in lower back, and middle back. Been on betaseron, Tysabri and was told they are working.
I'm so confused on is it MS or like other neurologist have said it's degenerative disc disease?
Need your help.
I can understand what Dave was saying about the techno term. I used to be a personal trainer, I found you have to keep it basic, Explaining those terms.
Closed Chain, Open Chain I think these term are confusing
Eccentric Contractions, Concentric Contraction.
SLR's what do those terms mean.
I agree not only MS patients but all those that train don't do enough stretching.
I have been on Tysabri for 4 years It doesn't work on me that way but I don't get side effects like I do with other Meds. I too am JC positive my doctor keeps checking for PML signs. He has never talked to me about coming me off Tysabri. I guess you have a better more concerned doctor, who worries about your health then I have your lucky.
Good luck on a different Med.View Thread
I have read a lot about this, and yes to MS patients like my self it does show promise.
I reed the WEBMD article about this from there"expert".
The procedure has been done very successfully in Canada,the problem isn't the procedure and weather it works it the Doctor doing the procedure and the level or ability to do it.
Getting checked is the first obstacle as the FDA has not approved it, Second is most doctor will not do the checks, to find out if that could be causing MS problems.
Let's not forget the money issue, drug companies don't want you using the money slotted for there overpriced band-aides on drugs that may or may not work. Just to find out that there might be something that will work.
Research is only good if your looking to find answers to a problems, and not spending time on something just to say it doesn't work.
FDA approved Tysabri until someone died, then it was rechecked to find the problems, something that should have been First.
I'm not saying CCSVI is the answer to the MS cause,but I'm saying lets REALLY check patients to see if the cause could be something that could be fixed.
There is no cause yet for what is causing MS, No drug for fixing MS just a lot of them for treating symptoms.
I always thought you have to know what is causing the problem, before you can find the way to fix it?
I guess until then MS patient will have to wait until the drug companies get more money with the talk of finding a cure, and doctors who don't have a clue on the cause will continue to just say it's MS but have NO problem or care for the patients to write more prescription. I wonder what happened to the HYPOCRATIC OATH?View Thread