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Multiple Sclerosis Community

Reply: how long / are you from

SSI and Social Security is a Stage process. I showed MS signs in 95 knew nothing...

Posted by Cactibabe1

6 Replies | Reply | Watch This DiscussionReport This| Share this:how long / are you from SSI and Social Security is a Stage process. I showed MS signs in 95 knew nothing...

Includes Expert Content

Reply: multiple sclerosis

Thanks Dr. Lava for sharing this. I have MS my primary Care Dr. always make sure I have...

Posted by Cactibabe1

3 Replies | Reply | Watch This DiscussionReport This| Share this:multiple sclerosis Thanks Dr. Lava for sharing this. I have MS my primary Care Dr. always make sure I have...

Staying the Course?

Hello MS Friends, I am going to wait on my going on Gilenya, with my allergies and...

Posted by Cactibabe1

4 Replies | Reply | Watch This DiscussionReport This| Share this:Staying the Course? Hello MS Friends, I am going to wait on my going on Gilenya, with my allergies and...

Not giving up or in....

Thanks for caring. I been off the community for a while. Between the hives and MS...

Posted by Cactibabe1

0 Replies | Reply | Watch This DiscussionReport This| Share this:Not giving up or in.... Thanks for caring. I been off the community for a while. Between the hives and MS...

Reply: Staying the Course?

Doctors? Whew, I am on a new med and gave up Betaseron. Once you become...

Posted by Cactibabe1

Doctors?

Whew, I am on a new med and gave up Betaseron. Once you become immune, it does not help. It was a great med for me for 8 years. I Good news is still hiving. Not being on meds 8 months has put me in secondary MS. Numb spots and fatigue. I am lucky, I still walk with a cane and have a great team of doctors all working together. My neuro wanted me to go for psych testing on cognitive issues. The doctor had seen me before asked why do you have a cane. I knew then that MS meant nothing to him and was not familiar with MS. I had to meet with him month before the test. He seemed nice asked how I was, why I had a cane and my life. I was proud I went to college, sad over mother's death and felt I come through a lot. His test was over the top. In his report school was pointless, mothers death not import and too dumb to do puzzle. His assistant did the test and thought I did well. He did not per his comments. No mention of items I did do well on. Had me there 8 hours.

Since I have numbness in fingers having me work on a puzzle fast, pick up put in and pin pick up no can do. Since my memory was affected, I was not able to answer many questions. I did draw a very nice picture of a woman dressed for work. When results came in tsent it to my doctors, was negative and judgmental.

He did not consider side affects of Betaseron, steroids having MS. My going back to college with MS and graduating was not important. Said people with MS cannot hold jobs, I must of lied about my BSW and I am a dumb illiterate women with ADD? This was not the test the doctor wanted. He was not looking to see if I am smart or dumb. He wanted the areas attacked by lesions reviewed.

I did not wish to go to this doctor another neurologist sent me 10 years ago and did not like doctor felt he had bias on MS and refused to consider it. Did not do the test asked. He is supposed to be the Dr. in my area to go to. My doctor was trying to find someone closer to home.

I was there excessively long 8 hours with MS. My current doctors did not even wish to show me the results. All Dr's were displeased and Neuro felt I was better then 10 years ago. My primary made a copy after I asked. He was suspicious that this doctor did not send a copy to patient, who it was on and insurance was paying for test.

Felt he may have ran 15 or more test to get extra money from the insurance co when he bills them. Next time Dr. will send me to MS Center. Good news is I have started Gilenya and this is my 2nd week and no issues. Only thing I can say is choose doctors wisely and do not believe all you are told if the doctor is deceptive. Go with the feeling your gut tells you.View Thread

Posted byCactibabe1

4 Replies | Reply | Watch This DiscussionReport This| Share this:Staying the Course? Doctors? Whew, I am on a new med and gave up Betaseron. Once you become...

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Reply: sex, meds, MS

Do not look at it as a downer, yet. It could be any number of reasons. Speak with Neuro,...

Posted by Cactibabe1

4 Replies | Reply | Watch This DiscussionReport This| Share this:sex, meds, MS Do not look at it as a downer, yet. It could be any number of reasons. Speak with Neuro,...

Reply: Staying the Course?

Thank you for caring, If it were not for many of you after coping all of these years....

Posted by Cactibabe1

4 Replies | Reply | Watch This DiscussionReport This| Share this:Staying the Course? Thank you for caring, If it were not for many of you after coping all of these years....

Includes Expert Content

Reply: sex, meds, MS

Please talk to your Neuro and OBGYN there may be meds or other methods to help....

Posted by Cactibabe1

4 Replies | Reply | Watch This DiscussionReport This| Share this:sex, meds, MS Please talk to your Neuro and OBGYN there may be meds or other methods to help....

Reply: everything sounds extra loud?

The worse thing is when doctors do not listen and shrug off what we are going through....

Posted by Cactibabe1

8 Replies | Reply | Watch This DiscussionReport This| Share this:everything sounds extra loud? The worse thing is when doctors do not listen and shrug off what we are going through....

Reply: everything sounds extra loud?

This is great news. Stress makes it worse. We cannot help feeling low over MS. Sometimes...

Posted by Cactibabe1

8 Replies | Reply | Watch This DiscussionReport This| Share this:everything sounds extra loud? This is great news. Stress makes it worse. We cannot help feeling low over MS. Sometimes...

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