Polymayalgia rheumatica is diagnosed by symptoms (pain in muscles) an elevation in sedimentation rate and a very quick response to steroids. It is hard for me to tell you waht to do next since I do not know what other testing has been done. Talk with your Rheumatologist about these symptoms and see what else the Rheumatologist has to suggest.View Thread
Sometimes the MRI will be negative at first, but eventually lesions will be seen. Sometimes the magnet strength can be a factor. If the lesions (plaques) are small, the usual 1.5 Tesla magnet may miss these lesions. Using a more powerful 3 Tesla magnet can pick up missed lesions. It would not hurt to see an MS specialist. However sometimes it will take some time until a diagnosis is made. I know it is frustrating, but the diagnosis should be secure before you are started on medication for MS.View Thread
Brain atrophy occurs in everyone as we age. However in multiple sclerosis, the atrophy occurs a bit more quickly. The change in brain volume represents loss of nerve cells. The medications that we use for multiple sclerosis reduce the number of attacks and therefore there is less damage and destruction of nerve cells. We think we changed the natural history of this disease with our medications. Unfortunately none of our medications are perfect and they are unable to stop disease. We are still looking for more effective medications that will stop the disease from progressing. It is important that patients with multiple sclerosis beyond a therapy to help reduce the number of attacks, thereby protecting more nerve cells.View Thread
I do not know if creatine will be a problem for you. However, I don't know that this is something you need to take. Multiple sclerosis does not directly damaged muscle and you might want to discuss any supplementsyou take with your physician.View Thread
Women with MS tend to do very well during pregnancy. The immune system attack is reduced (by changes in hormones) and it is rare for a woman to have an exacerbation during pregnancy. After the delivery, as the hormonal changes normalize the risk of an attack returns to baseline and by around the 4th month post delivery there is a slightly greater risk of having an exacerbation. We usually ask our patients to stop their MS medications around a month before starting to try to get pregnant and then restart the medications after delivery o rif they decide to breast feed, after they stop breast feeding.View Thread
It can be difficult to make a diagnosis of MS and sometimes takes a while. PSP, however is usually very different in it's presentation. Sometimes it makes sense to get another opinion to help pin point a diagnosis. If PSP is a concern it would be worthwhile seeing a neurologist who specializes in movement disorders. If you are near a medical school, you might call the Department of Neurology there and let them help you see the appropriate neurologist. As far as your frequent blood clots, it may be helpful for you to see a hematologist.View Thread
If you are having more difficulties, you need to pursue this with your neurologist. It may be time to take a fresh look at what is going on and see if there are things that need to be treated.View Thread
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