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The Ct was neg, the MRI showed "shadows", LP ruled out MS, lupus, infection I think. I continue to have little strength in my legs most of the time (PT has made it worse), my balance is off, and I get weak and exhausted at just the slightest exertion - needless to say I cant work right now from it.
My recent neuro says I have "complex migraines", the many EEGs he has done in the last year just show "some kind of seizure activity"(he doesnt know what from, but wont say I have seizures I guess since he hasnt seen them or not affecting my whole life???) the EMGs just show CTS, though I have had times where I could hardly lift my legs during the test and it still showed nothing(muscle tests were also neg).
All my weakness didnt start until after this major migraine episode-had spasms before but not so much weakness. I walk like I am drunk most of the time and I have fallen several times-once I fell and tore a few tendons in my rotator cuff and had to have surgery, another I sprained my ankle real bad and couldnt get up very well. I really cant get up from the floor or even a chair w/o support now.
Recently I have been getting dizzy/nauseated sometimes, which is usually when I get a BAD Ha only I dont have a Ha at the time. I take meds for my migraines-preventative and abortive(which make me feel worse, but my Ha goes away).
I can blame some of the migraines on disc problems in my neck I have had since the accident. I dont understand the physical issues? I have been tested til my veins are dry and I should glow in the dark or stick to a fridge.
I have always wondered if I could have MS from some of my sx, but no one else(drs) seem to think so. I take meds for other problems(asthma, new hbp, gerd/IBS, chronic pain(fibro) none for seizures.)
I may be making a mountain out of a molehill as they say, but I know something is wrong that I cant explain and cant get an explaination out of any dr either (no infectious dis-white count was off/ok now??, sed rate all over the map always high. no arthritis, no this, no that). Now I have been having dreams that I am having a seizure spasm and wake up sore like I have had one in my sleep (THIS concerns the neuro)
Could all this recent issue just be from my migraines??? Or should I be looking for something else (or just give up and live with it???) I have good and bad months with my Ha's now-used to go 6 mo-yr w/o a Ha, now I have them at least once every month or more.
Im sure there is more that I didnt put in this long reply, but that is another thing, I cant remember ****.
ktdid70View Thread
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