Hi Yes I can relate to the heat issues. Once I get into cooler air I'm better. I too wake up in the middle of the night if I get hot.
What I normally do is keep my house temp at 70. If it gets cold I can add more clothes or grab a throw. I keep a fan next to my bed if I end up getting hot. Also they have cooling vest that you can purchase to help in situations like that. Think about getting on so you can enjoy company.
Hi, The support you are giving him is great. Having a good support system is good for people with MS because we go thru so much mentally.
I am still trying to figure all the stuff out myself. Healthy wise; as far as food I am trying all organic and non processed foods. No sugar and salt. From reading it says salt and smoking can be bad for your health. Good thing I am not a smoker nor am I a big fan of salt. But the less chemicals the better. As far as vitamins: vitamin D3 and Omega 3. Although I am trying Tumeric. It is to stop inflammation and I am also trying Magnesium. It works with a ton of other chemical reactions in the body and its really good for constipation. Just started the last two. Stretches or working out is very helpful. They say yoga is very good.
Thats mostly all I do. I do read alot about it to educate myself. But this site is pretty good with info. Don't know where you guys are with this but good luck. View Thread
I am definitely sorry that you all are going thru this. I am 31 dx'd 9yrs ago and was just told I am Secondary Progressive. It is much on my husband and I so I think I can understand how you guys feel. I think of my future of what can possibly be waiting for us. My faith in God is what keeps me going and positive.
I too at times feel that I have nothing left. But when I think about it what else is there to do but hold on. The next day, or hour, or minute may change. What I can say is do what you have to for herand continue to give her the best care you can give. Even if that means giving her around the clock care. I know it can be expensive. Recently I have asked for volunteers at my church to come and assist me. Maybe you can ask for volunteers to come and help. Don't give up she needs you not just phydically but emotionally. I know you can be her rock you've done it for years. Make sure you talk with someone about your feelings. Will think about you guys and keep you in my prayers.View Thread
Hi, I am 3 I. I was dx'd in 2005. I have had every sympton. My neuro says I am still in the RR stage. Just saw a new neuro who says I am SP. Under RR, no meds worked for me, nothing. With SP, chemotherapy is the only disease fighting drug I can take.
I am currently in a scooter. What I am doing now is eating right. Basically fruits vegetables and grassfed meats. I guess its working cuz I had an MRI there was a decrease in the lesions.
All of my hope is in God. Whatever He has planned is what it is. At 22 this was not in my life plan of course but it is what it is. God is my hope. Staying positive.! Believe a cure will happen.View Thread
Having a good attitude about it helps make it easier to deal with it. I wasn't dx'd until I was 22. My neuro at the time told me the MRI scans indicated that I had it longer. My 1st year of college is as far back as I can remember some symptoms occurring. I was 17 as well. I am 30 now and still dealing with symptoms and having a good attitude regardless. I suffer with the fatigue and numbness in my hands and feet. I've graduated from college, gotten married, and have worked in the corporate world. You may have some days where you don't want to do anything no matter what may happen keep living your life. Go on with your dreams and goals. Remember having MS is not the end of the world.View Thread
SirGCal, I have been doing the natural eating off and on. I"m on now. Hoping to stay on. Its expensive for us because we are living off one income. Thank God my husband works in engineering. Having MS is very expensive as well. You are right about grassfed meat tasting better. Not having salt isn't bad, its the sugar that I have a problem with kicking. I love slushes. Everything else I can substitute for. I drink water just not enough because it wakes me up at night and I can't go back to sleep for about 3 hrs. I went for a few years with either not sleeping at not ot only sleeping 3hrs. Sleeping aids don't work. I've tried Physical Therapy, Massage Therapy, and Chiropractic Therapy all at once. I stopped because you can imagine how much that was for a month. Someone just suggested that I try acupuncture also and tumeric to decrease the inflammation. I suggest you try one, some, or all. They will give you some relief. The shaking in the limbs for me comes from not having enough muscle mass.View Thread
I was 22 when I was dx'd. Now I'm 30 and dealing with majority of the symptoms and issues that you've mentioned. Despite how bad it may seem, you must keep a positive attitude and your spirits up. Never give up. Keep fighting. Yes, there have been plenty times when I get frustrated and want to left go but even if we did it doesn't really accomplish anything but more suffering. Enjoy the people around you and keep the faith. Always look for the next day to be better than today. I've read Dr. Wahls book and tried following her process. I did feel and she a change. My husband and I are starting to go gluten free. Nutrition seems to be the way to go bcuz nothing else works. My neuro told me, after my last MRI, that I have an aggressive form. I have lesions on my spine and brain. I have a huge one about the size of a walnut on my brain. So although my status may look bleak I must keep going. I still got life to live, things to do. My faith in God helps out alot especially when I an down and out. So I say to you we have to keep fighting by living our life the best way we can. Not many read my blog either only my hubby and bffView Thread