LadeeEmpress I just want you to know you are a beast!!! My hubby use to tell me I'm lazy too, until I had a talk with him. I actually had to talk to all of my immediate fam and friends. I think our husbands, family, and friends have to adjust to the changes that we have to as well. My aunt came to visit and she told me to run. I looked at her like she was crazy and said if I can't barely lift my leg to walk what makes you think I can run? I really wanted to call her an idiot but that wouldn't have been nice. Q&A would be nice to have with everyone in your circle. Just to explain some things and answer questions. On those bad days we do need someone to be attentative to our needs.
I am thinking about applying for SSI, since I was fired last year from my job for taking FMLA. Since then the stress from not having a job has taken affect and I have gotten worse. I understand about the fatigue and sleeping alot. Right now as I am responding I can stop typing and fall right to sleep and sleep for about 3 hrs. I too have weak hands. 1/2 of my left hand is completely numb and cold. And I'm afraid of going out by myself because I'm afraid of falling. So please update us on your hearing with the judge.
Guess what I am only 28 and been dx for six years. I just started getting worse last year. I feel like my life is passing me by.View Thread
I've decided to start the Copaxone. My hubby and I said we are just going to deal with whatever happens as it comes. If I get pregnant, I'd get pregnant and stop the med. But now I'm having so many flare-ups all at one time, I need to just try to slow the process down and pray for the best.
Thanks leximinor for posting. You give me hope. Posting this has been a big help in the decision I need to make.
Hackwriter is right. You have to stop taking certain drug therapies and pregnancy helps with the symptoms. My neuro says, "Pregnancy is the best medicene." If you don't mind keep us posted throughout your pregnancy.
Right now I am just frustrated. Its like I want to have a baby like immediately but on the otherhand how long can I put up with these symptons/flare-ups/ whatever.
My neuro is good and I like him but he kind of has me concerned about my last MRI. So how do I choose? I know I still got some time on having kids. Thing is I don't work and I have many lesions. This past year has been a challenge. Walking has gotten worse as time goes on and thats whats really bothering me.
Its been two weeks and I'm still struggling to make a decision...lolView Thread
Hi, I am very frustrated right now. I need to make a decision and I'm just stuck. Hoping for some insight or ideas anything.
I don't know where to begin, well I guess the beginning. So okay I was diagnosed with MS in the Spring of 2005 at the age of 22. I had symptons such as numbness in hands/feet and blurred vision. So as the years went by I began developing more and more symptoms. This last year has been dreadful! I got fired from my job because I had to take STD for a surgery I needed to have. My walking has gotten to the point where some days I need a walker. I am at the point now where my Husband and I are ready to start a family. I had been taking Betaseron since being DX and have changed Neuro's 3x. (Now I think I have found the right one for me.) This past Dec we discovered that the Betaseron wasn't working. Since my husband and I are ready to start a family we decided (along with my Neuro) to not take any meds and get prego. He told me I should wait three months to get the Betaseron out of my system before trying. Now I am having infertility issues and I'm getting no relief from my MS symptoms despite the fact that I have a steroid injection once a month. Everyone wants me get back on a med treatment so I can feel better. I want a baby and I want to start Copaxone, so I'm torn. The thing thats holding me back is I want a baby NOW!!! and whose to say that the next med will even help with atleast some of my symptoms. Am I being foolish? or do because I'm bored?View Thread
I was diagnosed 6yrs ago and I had my worst year last year. I was taking Betaseron but had to stop in December 2010 because I started building antibodies. I was prescribed copoxane but I haven't started it yet. I started experiencing symptoms such as numbness, extreme fatigue meaning I have difficulty sleeping, constpaton, muscle spasms, and weakness n my arms. So I decided to try neurontin. I've always had a rx on fle at my local pharm that was told to use when I needed it. After the first dose, I felt some relief but everthing came back the next day. The upside is I am sleeping now but too much. I heard that you have to play around with the amount of mgs to take per doc. Is that the case for me from ypur experence? Let me know I feel horrible.Calling my doc tomorrow.View Thread
My first symptoms were tingling in my spine which lasted for about a month, an electric feeling in my left arm which I was told it was carpal tunnel and weakness on the left side of my face and I was told it was Bell's palsy. They each lasted for about two weeks. I was given muscle relaxers and Xanax for my face, and a pain med for my arm. I was diagnose six month later at the age 22. I haven't had the tingling in the spine for about 5 yrs now.
When I was diagnosed, I had anemia, low B12 levels, low protein levels, and vitamin D deficiency. I didn't have diabetes or any other health issues. It would be a good idea to have some blood work done if you haven't. Atleast if any of your blood levels are low you can take some type of supplement to help. Also there is no harm in taking vitamins. Ask your neuro which are in your best interest to take.
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