Hi! I'm new to this site. I was just wondering if you can still have MS when all the testing came back normal?
Just a summary about me, I started having intermittent symptoms in my early 20's and became more frequent in my mid 30's. I experience tingling and numbness on the left side of my face and down my neck into my arm along with nerve pain and stabbing pains, usually in the middle of my back.
I was diagnosed last year with fibromyalgia and referred to another neurologist because of my symptoms. I was admitted to the hospital because the tingling and numbness became worse and I was slurring speech and left side of my face was droopy.
I went through alot of testing, bloodwork, MRI's, evoked potential and lumbar puncture. Stroke, lyme disease and lupus were ruled out. But i'm a little confused as to why i'm still being treated for possible MS when MRI's, evoked testing and lumbar puncture ALL came back normal.
I do still have symptoms, much like you, it isn't continuous. I haven't really developed any new symptoms but my neuro is testing me every time I have symptoms that last for more than a week.
Still nothing on my mri's so just waiting to see what happens. I don't take medication, my neuro doesn't want to give me anything to tx ms until there's clinical proof. The meds I was taking in the beginning were for nerve pain. I didn't care for the side effects and I opted to not take them. I've just learned to live with the pain.
The only thing I'm doing now is trying to eat a healthier diet, nothing processed, fresh meats and vegetables. I limit my sodium intake, drink ALOT of water and I do take vitamin supplements. Multi vitamin, Vitamin D3, B complex and magnesium.
I also try to reduce stress by exercising. Sometimes the most I can do is walking, but it has helped. My severe fatigue has progressively gotten better, not sure if it's the diet and exercise, but I'll take it!
Hope this helps, I know how frustrating it has been and still is. The not knowing is the worse part!
Thanks for responding. Any info helps tremendously. I've been so worried since all my symptoms started to worsen and become more frequent. I've been having symptoms off and on for about 15-18 yrs. But in my mid 30's they became stronger and more frequent after the birth of my 1st child.
Very stroke like, I actually thought that's what it was. The first time it happened, the numbness and tingling, I was driving with my newborn in the car. I pulled over and had to call 911. I was brought to the hospital and admitted. Testing was done and I was released the next day. That was 2005. The neuro I saw never did a MRI and told me it was stress or depression. I spent the next 4 yrs being told a bunch of different things.
I only question my dx because all my tests were normal. No findings in my MRI's, LP, evoked testing or EMG. I don't think I had the light test. So far I haven't been formally dx with MS, just a "possible" MS.
Thanks for your response. There was a medication I was on when I was admitted to the hospital. That was Oct 2009. I don't remember the name of it but it made me feel like a zombie. So my neuro took me off that and put me on neurontin and skelaxin. Otherwise I just take vitamins and i'm trying to eat better and exercise.
I've never been diagnosed with CIS, what is that? Just the fibromyalgia and currently I have a diagnosis of "possible" MS. I only ask because all my testing came back negative. There were no lesions or spots on my MRI's, LP was negative, evoked testing normal and I had the EMG with nerve conduction. That was normal also.
I'm not sure if my neuro is a MS Specialist or not, but he's actually done alot more for me than any other neuro has. I've been seeing neuro's off and on for the past 5 or 6 yrs and not one of them has done this much testing on me and none of them even mentioned it could be MS. So I don't mean to sound like i'm not comfortable with him, I just have been reading so much about MS since he's sort of diagnosed me with it that it sounds like it usually shows up on at least one test to come to that conclusion. Or maybe I was just hoping that he was wrong.
Hi, I should add that since last year I have developed other symptoms. Just not sure what they are related to.
I get a creepy crawly feeling and it's always across the back of my head. And I also experience and tightness across my chest and back. This comes and goes, but it feels like i'm being squeezed really tight. I also experience a great deal of fatigue. Some days are ok and others are so bad, I have a hard time getting out of bed.