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I have suffered and treated for severe frequent migraines since I was 12. I was diag. with RRMS at 40 and started taking Copaxone. After about 6 mos. on Copaxone the migraines became less frequent and eventually I would only have a mild one every 6 mos. My neuro at the time said there wasn't any connection between migraines and MS and the Copaxone couldn't have helped with my migraines. Well I know differently. Especially now that I have had to switch to Avonex....my migraines are back...not as severe but they are definately returning.
I think the bottom line is we are learning so much about MS that we really can't rule anything out. I also thank God for this site where we can all share different experiences and make a connection with the symptoms that might otherwise go unnoticed as a part of MS. Case in point....MS Hug....I have had this for years and never knew it was from MS.
Best of luck to you and keep us updated.View Thread

I find it interesting that I have only recently heard of the MS hug....I have experienced this for years and never made the connection and even the drs never made the connection. Warm compresses do help as hacker says. You may want to try wearing a sports bra...I tried wearing one about a month ago when the pain was intense and it does help somewhat.View Thread



Thank you everyone for your responses and I would greatly appreciate any other comments, info, and suggests anyone has for me.View Thread

I too was diag. with TIA 29 yrs ago with basically the same symptoms. In 2000 I was finally diag. with MS after being treated for the TIA and migraines for 18 yrs. I was also sent to see a neuro and cardio. The MS diag was made after my left arm went numb which eventually led to being numb from the chest down. My primary had mention several times over the years it could be MS. I wish now I had insisted on more testing. I have been on Copaxone as well as numerous other meds for 11yrs and it has controlled my symptoms. But my point is...I feel if I had been diag. 29 yrs ago I may still be working instead of on disability. All research shows the sooner you start therapy the better chances you have to live a productive life.
Do not stop searching for the answers!!!
Best of luck to you both!!!!View Thread

Has anyone experienced the burning scalp, massive headache and burning inner ears from the Copaxone injection? Since I have never experienced these reactions before I thought maybe someone would have a similar experience.
Thanks for listening
KarenView Thread

Thank you for your responses. Copaxone has been very effective for me. I haven't had any severe flare-ups since I began my injections only minor episodes that last a few weeks. I would hate to switch therapy since it has worked so well for me. In my experience I have found that other MS patients are better sources of info then the Drs. as far as symptoms go. for instance, after I started Copaxone my migraines went away, which I had suffered with since I was 12. My Neuro said there was no connection between the two. Now they say migraines are connected with MS.
I will speak with my neuro about this episode, so far it only occurred once.
56shorty - You really do need to be on some type of therapy please continue to talk to your dr. to find the best fit for you.
Thank you both for your help.
KarenView Thread

I hope you find out you do not have either one of these diseases....but if you do they are both manageable.
Good Luck
KarenView Thread

Good luck in your quest...and you may have to fight to have it done. I believe that everyone who is diag. with MS needs a baseline test.
My best to you
KarenView Thread
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