I will have to keep in mind all your suggestions in responding to people who say this.
I feel that those of us with MS that get these kinds of comments are those whose symptoms are invisible. We do not use a mobility aid, and our issues with the heat, cramp-like pains in our limbs and fatigue are not visible. Because of this, people will not understand what we go through, even if we try to explain. This can happen if these issues come up in social situations when these issues can become a problem.View Thread
For the longest time, I have enjoyed Classical music. Lately, I have been listening to Bach, Handel and Vivaldi. All three of these composers wrote choral music, along with instrumental pieces. Choral music involves choirs and orchestras. The sound of the human voice, sung together with different pitches in harmony, is what is very soothing to me and I find myself entering into the realm of a relaxing state of mind. NancyView Thread
To all of you out there in this MS community, whether newly diagnosed or those who have had MS for awhile:
After seeing your posts covering different physical aspects of the condition, how has having MS affected your emotions regarding difficulties you may have experienced in your employment; relationships to others (marriage, family and friends); recreation (what we do with our spare time); and other areas that MS touched in our lives? Also, last of all, what would be your personal feelings that you have toward having this condition? The reason why I post this is because I have struggled with my emotions off and on over the years toward my having MS. Even though my MS is currently stable; it still affects my life emotionally in all the areas that I mentioned above. So, what about all of you? How have you handled these emotions toward having MS?
Welcome to the MS community. Not only on this on-line discussion group, but having the the condition as well.
My suggestion is for you to learn as much as you can about MS. Use this website: Webmed as a starter for information. Also, join your local chapter of the National MS Society. Both of these sources have a wealth of information and materials you need to understand what MS is all about.
I recommend this to everyone on this discussion group to do this, especially if you are newly diagnosed. The more you know of MS, the less fear you will have. Yes, MS is a serious condition and it is to be viewed with respect, but it does not have to be the foreboding subject like it used to be viewed years ago.View Thread
Do not feel like you have to tell everyone right away. You may still need moments to grasp the idea that you have MS. MS is something very big to deal with and so allow yourself time to absorb this.
My suggestion is to take your time in telling people of your condition. I did not tell people right away either and this took me a long while even to do this. There are so many people who still have the "old school" mentality that the Dx of MS is an automatic sentence to disability. We all know that this is not the case, especially with the disease modifying meds out there.View Thread