Hi there deafedteacher: I am sure that you are not the only one who has the same issues' they are just not saying. That taboo word as you say "Sex". I am sure your partner understands your MS. No doubt knows that this may happen. I believe there is a pill for women as there is for men. I wouldn't hesitate to broach this with your Physician just to make sure there is that med available and if you are able to take it b/c of your MS. I hope this is of some help to you. Again I am sure that both you and your husband have had many hurdles while being together, you being their for him and he for you. This is just another hurdle that I believe will turn out positive. Good Luck!! Maybe with some form of assistance you will feel more positive which will better your mood when the time comes'.. Take care!!View Thread
Hi there silverbonnet: I haven't been replying a whole lot on pc as it has been in and out of the shop. As I was reading your symtoms I thought, Wow! I get the same. My physician has told me that this is related to my Fibromyalgia. Now your mentioning MS. I am on a specific needle for Plaque/ArthriticPsoriasis. This needle can cause many ailments, one beingMS. It was a case of should/shouldnt' use needle (Humira). My Dr. has given me nothing for what I am going through. I am already on Narcotics due to back injury, however these meds' do not control the severe pain that I have as you, walking, first thing in am. during the day muchnumbness/cramping in legs and buttocks. Evenings gets worse. During sleep I am waking with such severe cramping(legs,feet, toes) when I try and stand, and damn its' hard to even get out of the bed I have limited balance. Of course then I have to use bthrm. The pain is so severe that I can not sit.. When I do the pain is so severe, I forget that I have to go. Need to get up. It takes roughly 10-15min. for pain to subside only to return within 1-2hrs. and even getting into bed its' like "is this pain gone because I'm still feeling it" Its' like a game its' playing, some game! I am now thinking this is not Fibro but MS. I am seeing my Physician this wk. and I am going to ask to be checked for MS. My thoughts for you is that maybe you as well have Fibro, or the MS has escalated. I hope for your sake it hasn't escalated but I would definetly ask your Physician if it could be Fibro. This effects the nerve endings, its' like a mass. Check it on this site, it will explain or possibly back issues'. I have had back issues' for some time but never have I had the pain that I now have. I do hope that I have been oof some help and I thank you for the info that you have given me. If you would like pls. email me at firstname.lastname@example.org Thanks,View Thread
I have been on Humira for Psoratic Arthritis and Psoriasis for approx. 1one yr. now. In the past 6 mths. or so I am finding that I am getting alot of back pain (however I do have back issues). Fingers' curl up with severe pain. As well I get severe pain in my legs which catches me off guard. Just recently I was coming up the stairs carrying and item, the pain hit so bad in my calves that I dropped what I was carrying. Since then I will not go up/down stairs without the use of the rail. Pain at the top of my spine. My physician has mentioned a pinched nerve at that point. Very fatigued at times. I can get up in the morning and within a half/to an hr. I could just go back and sleep. I honestly dont' know what is happening and I can honestly say it is scary. The Physician at one point mentioned Fibromyalgia, I had CVR blood test done and have heard nothing. I have many very painful trigger points, my shoulders, arms, back (top/bottom) hip pain as well as this pain I described coming up the stairs. This pain itself will wake me out of a sleep that I have to quickly get out of bed, try and balance myself and then walk around, this doesn't always work. As soon as I get back into bed the pain just shoots up again. Is there anyone out there who may have the same symptoms. I am new to the site (have been on before) however have just recently made a come back. It is very hard for me to sit, if I cross my legs or plant my feet on the floor while sitting my legs go numb. Any help anyone can give me would certainly be appreciated as to what may be going on with me. I'm worried, I have hubby mystified as well as scared and worried. I dont' know what to do. There have also been some times that when I am driving my foot will go into a cramp forcing me to pull over, take my shoe off and get out and walk around, as mentioned previously this just doesn't always work. Your answers' or anyone who has this I would certainly appreciate hearing from. I am on pain meds' however its' gotten to the point that they are not working anymore. Thanks so much for just hearing me out!!View Thread
Thank you so much Kim for your reply. The Physician has changed my meds' just within the past couple of days, so we will see how they work. As for the meds' that you mentioned I cannot take as most of them contain Aspirin and I have an allergy to it. However I thank you for replying and do appreciate any reply that I may get. This new med Dilaudid may work and may not so at least I can mention the ones' that you told me about and see what he has to say. Thank you, RitaView Thread
Hi there: So many ppl. on this site are here to help you. I think your Physician should possibly check you for Fibromyalgia. This disease (hate that word) causes' pain in different joints of your body, it can also effect your vision. Something I myself have. If your Physican is willing to work with you, it is possible that you may have bursitis/tendinitis in your shoulder which is also painful. No doubt going to so many Eye Drs' you are getting so much feedback that its hard to take it all in. Each one no doubt giving you a different answer. As well ask him/her to see a Rheumatoid Arthritis Physician. With all the answers you are getting I can imagine you just spinning wondering what is going on. You keep mentioning your eye more so than anything else. Perhaps seeing a Eye Surgeon may help you with answers as well. I dont' know all of your med. history so its really hard to pinpoint. I myself am not a Physician but I would certainly see your Physician and be bold about it. Just say "look, I'm at wits end" tell me whats going on. He/she is saying do this, do that, or nothing at all, that is of no help to you. Dont' be offensive to your Physician but go in with a list of your symptoms, let the Receptionist know that you need time with him/her to discuss your issues'. It is hardly fair to you for him to just tell you "its' nothing" and leaving you not knowing. You will hear from others' on this site, I am certainly appreciative to all of those that I have heard from on this site. There should be no need to change Physicians' unless you absolutely feel that this one is just not doing what he/she should. I wish you much luck and I do hope that you get the answers' you are looking for. Pls. try not to get yourself worked up, I know its' hard not to especially with so much going on and zero knowledge of what is happening. I dont' know where you live but I do know in Ontario Physicians are hard to find. If your symptoms worsen I would go directly to your Hospital and tell them what is going on and if they can assist you with your ailments' and possibly a new Physician if one is available for you. Please try and think "positive" neagativity sometimes' makes the problems worse. Sending you a big hug and I do honestly hope you get the answers' you are looking for. Take care!! :0)View Thread
Hi there! My name is Marly. I was put on Humira (Embrel) for Plaque/Psoriatic Arthritis over a year ago now. I have had back problems prior to due to injury. Apparently Humira can cause MS. At this time of writing my fingers' swell, burning sensation in one hand periodically. I have pain everywhere in my body, neck,arms, tingling from the knee down to my toes as well as severe cramping after I get in bed or prior to. The pain that I am writing about is quite severe even more so now in my back. I am tired all the time, low energy level, and at times' get a boost of energy and can get my hoursework done. I am sure that there is someone (member) on WebMD that could possibly let me know when they found out about their MS, what symptoms did you have. I am getting desperate, mood swings up.down. Vision is somewhat impaired at times though not always. I am waiting to see a Rheumatologist in February 2012. Pls. help if you are able. Tks. so much, MarlyView Thread
If your own Physician told you after having tests' done and medication given to you it just doesn't sound right that now a Neurologist is saying "NO". With even having your Physician baffled. I'm not saying to find another Neurologist however I would definetly have another MRI done, a spinal tap, everything that is required to determine whether it is MS. Could the Avonex Inj. helped with what your Physician said was MS. It is hardly likely that when your told "yes" MS and then "no" This disease does' not just disappear. You are still having symptoms that are unexplained then. I know myself that I had an MRI done and the Technician read the report wrong and the MRI had to be redone. Could this be a possibility. I myself am at a point of getting tested due to the unexplained pain I am in, now your making me wonder. Just as I have 2 pinched nerves in my back and 3 vertabrae that have joined, yet the last Back Specialist I seen took an x-ray, not an MRI and told me that there was nothing wrong with my back and if I didnt like what he had to say to bad. Prior to, my Physician was having me go to another Back Specialist who told me I needed surgery. I often wonder myself, are these people out to help you or just make you feel less of a person. You know yourself the pain your in, your previous diagnosis. Look for another Neurologist, your Physician may not like it but you are the one suffering not he/she. Type in Neurologists' in your area and see what kind of comments are left from others'. I believe you type in Physicans Ratings and when you find one that has a 4 or 5 star tell your Physician you would like to see that Neurologist. I wish you luck and a much better explanation as to what is causing you the pain your in if it isn't MS, then what is it??View Thread
Thank you so much for your reply. As for seeing a Rheumatologist any earlier I dont' honestly think that is going to happen unless my Family Physician can get me in sooner than the Dermatologist. I know having both diagnoses is rare and again I'm really not sure what it is that I am experiencing other than pain which is something I only ever had in my back. Now it has taken over from neck to toe. Just lately I have been losing vision in one eye almost as though a migraine is coming, lasts a couple of hrs. then goes away. Quite unusual. Myself I am not hoping/wishing to find out that it could possibly be MS. It would be quite a shock and I honestly dont' know what my reaction to this would be. The only other disease that seems to mimic what I am feeling as well is Fibromyalgia. To be honest I am lost and just want answers'. After being a person to do anything I wanted to, and now to this I can't tell you how depressing this is. Thank you again for your comment, it is much appreciated.View Thread
Hi there An_240804 : I can certainly empasize what you are going through. I would as well suggest seeing a Neurologist if you havent' yet. It sounds to me that your Dr. is basically doing tests (not being happy to do so) which I feel is a negative response to finding out what is wrong. I myself have your symptoms along with many more. Not everyone is the same when it comes to diagnosing MS. There are so many factors to look into through a Neurologist. Your Dr. may not be so happy but its your life you want back. Such may not be the case but lets try and think positive. Demand your Dr. to sent you to a neurologist. I have had MRI's done that gave a wrong reading, it all depends on who is filling out your report and sending it on to your Family Physician. I believe that your Dr. should not be "ticked off" for a better word but he is a Family Dr. not a specialist. Going to a Neurologist, he/she may have different approaches to find out exactly what the problem is. If not MS, then what. I'm positive that you will get a positive report from the Expert. I wish you well, there is no need either to feel bad about asking your Dr. It is your body, mentally and physically, not his!! My prayers' are with you and I honestly do hope that you find from that "yes" something is not right. Good Luck again and take care. Pls. try not to stress over the changes in your life. Think positive, positive, positive.View Thread
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