I was first diagnosed in 1984 (before diffinitive techniques were really available) complete numbnes from arm pits down! and also no feeling in my hands (arms yeshands no!) Did not believe diagnosis and sought help through alternative medicine. Ended up at a chiropractor who after 2 weeks of daily treatment was able to get me walking again again and back to normal after about 6 weeks. ......went on with life (as I too had small children to raise ) and did not have another REAL flre up until 1998 where everything on the entier left side went numb. By then they had MRI's EEG's, spinal taps etc and came the "most probable cause is MS diagnosis. I was lucky enough at the time to have a neuro who listened to my concerns about starting on a medication (Betaserone, Copaxone, or Avonex where the choices of then and now pretty much). She said it was MY decision to make and if alternative therapy was what "I" chose to do then she would still treat me even though I did not chose to do the drugs. Back I went to the chiro and (it took 6 months of intensive treatment almost daily but I once again was back to 95% of my original self.
Fast forward to Sept 2011....another major relapse (into a wheelchair much of the time) and I am scared, scared, scared.....even though I have fundamental belief that the "disease modifying drugs" will ultimately do more hard (i.e liver, kidney heart damage etc) I am desperate to feel better. I had after 3 months worked my way out of the wheelchair, off the walker, and onto a cane which mainly was for if I needed to travel outside the home. With my can I had worked my way up to a mile each day and was feeling proud of my progress........then came the nurse to show me how to do the Copaxone injection and my first dose. As anyone who has taken this drug knows it will make you flush and very warm feeling and leave a large lump at the injection site, but I was willing to deal with those things for this drug that was supposed to make it so my exasterbations would be "less". Well with in 3 days of injections I lost 2 months of physical therapy that I had achieved! I could no longer NOT walk a mile with a cane....I could NOT even make it across a room without one!
It took me another 2 months to get almost back to where I was BEFORE I took their wonder drug.....so PLEASE do NOT let some DR who has never had the experience of MS bully you into doing something that you do not want to. check out some info on DR. Terry Wahls from Iowa City IA. This DR ACTUALLY HAS MS and a sever case and has gone from a wheelchair to riding her bike to work 5 miles each day and has done it with changing her DIET. I was told about her by a nurse at the hospital and am following her diet advice and I am back to walking without a cane for up to 2 miles and do not have to stop each day and take a nap for 3 hours just to make it through the rest of the day! Please understand I am in NO WAY CURED and do not want to make that representation but this diet is healthy and I KNOW it is NOT doing damage to my other organs while it helps me. You should also be able to find many videos on youtube about her.
God Bless you and I hope you find the help you need. FYI Lyme disease has almost mirror ymptoms to MS and can be diagnosed with a simple blood test and CURED with anti-bioitics especially if caught early enough. If you live by a grassy area (as most of us do) and go out for walks on a regular basis i would MAKE sure that they ALSO do the test for lyme disease. I do not know what the reasoning behind it not being a standard test when people such as ourselves come in with symptoms....but you will have to INSIST probably that they at least RULE it out as a possibility of your illness.
Again best of luck to you. This disease is isolating and scary and one I wouln'd wish on even my worst enemy.....but attitude has a GREAT DEAL to do with how it progresses I think!View Thread