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Really Long Post. Please read if you have time. ...

Hello, First of all I just wanted to introduce myself as I haven't been on this site for...

Posted by Yovanova

Hello,

First of all I just wanted to introduce myself as I haven't been on this site for years.

I've had RRMS since I was 21 and I will be turning 40 in a few months. I would say that the first 13 years my symptoms were pretty mild and I recovered pretty quickly from them. Some I needed prednisone but for most of the symptoms, I recovered on my own.

In 2006, I had a bad attack which effected my whole upper body. Numbness, pins and needles, severe muscle aches, stiffness and severe coordination problems. Treated with prednisone and that lasted two weeks, but I still feel the pins and needles every day of my life for the past six years.

Up until 2010, I had mild symptoms.

2010 - numb from the waist down right down to the bottom of my feet. Severe pain as if I was being tortured. No exaggeration. I was walking like a turtle becuase of the severe stiffness and balance problems. Treated with prednisone. That one lasted 5 weeks. Until this day, I can't walk longer than 10 minutes without feeling tired.

2011 - Whole right arm right down to my hand and fingertips were numb and extremely stiff. I had no control of my arm and hand and had to constantly look for it because I couldn't feel it. I needed help getting dressed and cutting my food, etc. I couldn't use my hand at all. I had to learn how to use my left hand. That one was starting too so I only had 3 good fingers on that hand. I was using one hand for 2 months and I am still recovering. My leg was a little numb too and my balance was off. Couldn't wear heels. Again, I was treated with prednisone.

My fingers are still numb and my arms still feel achy and stiff. I have been on disability since September.

I've been taking Avonex since 2004 and my doctor wants to change my medication.

Anyway, based on the information I provided and in your opinion, does it sound as if my MS has progressed to the next stage and will my symptoms continue to get worse?

Getting info from my doctor is like pulling teeth. He's extremely busy and I am really worried. Can you please help?

Thank you!

JackieView Thread

Posted byYovanova

18 Replies | Reply | Watch This DiscussionReport This| Share this:Really Long Post. Please read if you have time. I'm not getting any answers from my doctor. Hello, First of all I just wanted to introduce myself as I haven't been on this site for...

Reply: Really Long Post. Please read if you have time. ...

Hi Katia My fingers are still numb too. I`m making a lot of mistakes right now as I am...

Posted by Yovanova

18 Replies | Reply | Watch This DiscussionReport This| Share this:Really Long Post. Please read if you have time. I'm not getting any answers from my doctor. Hi Katia My fingers are still numb too. I`m making a lot of mistakes right now as I am...

Reply: Really Long Post. Please read if you have time. ...

Hi Dot I agree with Kate too. I am getting fed up with my neuro too. I might make a...

Posted by Yovanova

18 Replies | Reply | Watch This DiscussionReport This| Share this:Really Long Post. Please read if you have time. I'm not getting any answers from my doctor. Hi Dot I agree with Kate too. I am getting fed up with my neuro too. I might make a...

Reply: Really Long Post. Please read if you have time. ...

Hi Carol, I was on Gabapentin for over a year but my neuro stopped filling my...

Posted by Yovanova

18 Replies | Reply | Watch This DiscussionReport This| Share this:Really Long Post. Please read if you have time. I'm not getting any answers from my doctor. Hi Carol, I was on Gabapentin for over a year but my neuro stopped filling my...

Reply: Really Long Post. Please read if you have time. ...

Hi Kate Sorry it took me long to respond. I had trouble signing in. I was thinking of...

Posted by Yovanova

18 Replies | Reply | Watch This DiscussionReport This| Share this:Really Long Post. Please read if you have time. I'm not getting any answers from my doctor. Hi Kate Sorry it took me long to respond. I had trouble signing in. I was thinking of...

Reply: Really Long Post. Please read if you have time. ...

Hi Dot Thank you so much for your reply. I had an MRI done in January an my doctor...

Posted by Yovanova

18 Replies | Reply | Watch This DiscussionReport This| Share this:Really Long Post. Please read if you have time. I'm not getting any answers from my doctor. Hi Dot Thank you so much for your reply. I had an MRI done in January an my doctor...

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