I'm a little confused about something. I have burning pain and numbness in my left leg. I've had two back surgeries on L4-S-1. I just had a CT Myelogram to determine if there was something in my back to be causing my symptoms. The study showed that my spine is in good shape and there are no compressed nerves. I'm happy that the test was negative but how does my MS figure into this? I have two lesions at C-5,6. I have "numerous" lesions in my brain. I've studied the diagrams of the spine and nerves. I don't understand how my left leg is being affected when I don't have a lesion where the nerve roots are. What am I missing?View Thread
Thank you for your response to my question. I wish I could say I'm satisfied with the unknowns but I can't. I guess I get my hopes built up when one of my doctors says, "it may not be the MS...let's find out."
All of are told not to assume that every symptom is related to MS but when the symptom can't be explained by something else, it falls back into the MS box! Even my non-ms drs don't know what else to say!
I should have added that my last MRI showed no new lesions. My MS dr is helping me manage the worsening symptoms with changes to my meds.
Again, many thanks for your help. Have a pleasant weekend.
Love the "brain cramp" excuse! I'm going to borrow that!
I am like the rest of you...the fatigue is debilitating and shocking as to how quickly it hits. I was diagnosed this past May 2012 and things I've learned about MS since then make sense of issues that I've had for YEARS. The good thing is that I've pushed through many of the symptoms for so long, at 53, I'm just now beginning to feel limited. The speech problems and memory problems are hardest to stand. I used to be paid to talk and I prided myself in remembering the names and backgrounds of hundreds of people that I worked with. I now can do neither.
The newest thing is that when I find myself in a large group of people with a lot of noise, I get really confused. Does this happen to anyone?
Hi Dottie, I too am recently diagnosed - June 1, 2012. I was overwhelmed at first just trying to deal with the news and with the extreme symptoms of my first big flare. Eventually, my body settled down and I became accustomed to a 'new normal.'
I recently started my third month of Rebif treatment and so far so good. The people at MS Lifelines have been so good to me. They call periodically and seem to care about me.
My biggest issue of late has been dealing with the large group of medical professionals that are now part of my life: Primary care Dr,, Neurologist, Spine specialist, physical therapist, and now Neuropsychologist. I told my neurologist that I felt like I was being pulled in too may directions and he gave me what I feel is some good advice. He said that my primary care dr is my chef! He knows me best and I can see him quickly if I need to. The Neuro is the sous chef and all the other doctors support him and the chef! As weird as this sounds, it really helped me.
Recently, I started going to therapy to learn biofeedback to deal with pain that comes from my spine. A lesion is mimicking a bulging disk and created some nerve issues in my arms and shoulder.
I've been a fighter (not literally) all my life and I sometimes get angry that I cannot fight some of these issues. Oh, I can fight but the fight is not healthy and eventually doesn't get me to a calm place. I have to learn to finesse my way through all these issues. I never thought I was the type to need therapy but my Neuropsychologist have helped me tremendously!
Let me know if I can help you. My sister in law has MS too and she has been great to talk to. Sometimes you just need someone who understands where you are coming from.
Oh, I find this helpful too: I try to write down three things I am thankful for each day and one fun thing that I've done. I keeps me focused on the good things in my life!
The shoulder pain that sent me to the first of four doctors and started me on this journey of discovery was determined yesterday to be associated with pain coming from the lesion in my cervical spine not a rotator cuff injury. I guess the good news is...no surgery! Now, to learn how to deal with the pain on an ongoing basis.
So now...I start my DMD treatment today! Since learning that I may have MS then finding out that I definitely have MS, finally I am doing something positive! The training nurse comes to my home this afternoon. Wish me luck!View Thread
Hello. I am a 52 year old mother of three and grandmother of two. I was informed by my spine specialist that I have all the indicators of MS: positive cervical spine lesion, evidence of plaque on brain. He has been my doctor for over 4 years and did my last back surgery, a fusion of the lumbar spine. I returned to him over a month ago after having the most bizarre symptoms, numbness from left shoulder to finger tips and electric shock type pain in my neck. My doctor has referred me to a neurologist and the appointment is next week. I don't know anything about this neurologist except that he is also a Clinical neurophysiologist. My question is: if this does turn out to be MS, where do I find an MS specialist? How important is it that I go to one? At my age, what can I expect? I've been a athlete and a "I can do it myself" kind of person my entire life and I need to know what the future holds.
While I have been waiting for my appointment with the neurologist (three weeks) the numbness has spread to my entire left side and I have been having some significant nerve pain in my arm and leg and lastly, I'm weepy at the most unexpected times.
Any advice that would help me for the upcoming appointment would be greatly appreciated.View Thread
Well, my appointment was today. I really liked the doctor and I think I can be satisfied working with him and his staff during the weeks, months and years ahead. He confirmed the diagnosis of MS, Relapsing-Remitting type. He agrees with me that my symptoms have been pointing to MS for at least 10 years but they always were attributed to other physical issues. After blood work, I am to go back in a short while so that we can talk about my treatment. He is recommending one of three DMD treatments: Copaxone, Rebif or Avonex. I'm reading through the material and it's a little overwhelming. My goal is to live as close to a normal life as possible -- for as long as possible. Life is good!View Thread