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I am like the rest of you...the fatigue is debilitating and shocking as to how quickly it hits. I was diagnosed this past May 2012 and things I've learned about MS since then make sense of issues that I've had for YEARS. The good thing is that I've pushed through many of the symptoms for so long, at 53, I'm just now beginning to feel limited. The speech problems and memory problems are hardest to stand. I used to be paid to talk and I prided myself in remembering the names and backgrounds of hundreds of people that I worked with. I now can do neither.
The newest thing is that when I find myself in a large group of people with a lot of noise, I get really confused. Does this happen to anyone?
NancyView Thread

I too am recently diagnosed - June 1, 2012. I was overwhelmed at first just trying to deal with the news and with the extreme symptoms of my first big flare. Eventually, my body settled down and I became accustomed to a 'new normal.'
I recently started my third month of Rebif treatment and so far so good. The people at MS Lifelines have been so good to me. They call periodically and seem to care about me.
My biggest issue of late has been dealing with the large group of medical professionals that are now part of my life: Primary care Dr,, Neurologist, Spine specialist, physical therapist, and now Neuropsychologist. I told my neurologist that I felt like I was being pulled in too may directions and he gave me what I feel is some good advice. He said that my primary care dr is my chef! He knows me best and I can see him quickly if I need to. The Neuro is the sous chef and all the other doctors support him and the chef! As weird as this sounds, it really helped me.
Recently, I started going to therapy to learn biofeedback to deal with pain that comes from my spine. A lesion is mimicking a bulging disk and created some nerve issues in my arms and shoulder.
I've been a fighter (not literally) all my life and I sometimes get angry that I cannot fight some of these issues. Oh, I can fight but the fight is not healthy and eventually doesn't get me to a calm place. I have to learn to finesse my way through all these issues. I never thought I was the type to need therapy but my Neuropsychologist have helped me tremendously!
Let me know if I can help you. My sister in law has MS too and she has been great to talk to. Sometimes you just need someone who understands where you are coming from.
Oh, I find this helpful too: I try to write down three things I am thankful for each day and one fun thing that I've done. I keeps me focused on the good things in my life!
Take care,
NancyView Thread

NancyView Thread

So now...I start my DMD treatment today! Since learning that I may have MS then finding out that I definitely have MS, finally I am doing something positive! The training nurse comes to my home this afternoon. Wish me luck!View Thread


While I have been waiting for my appointment with the neurologist (three weeks) the numbness has spread to my entire left side and I have been having some significant nerve pain in my arm and leg and lastly, I'm weepy at the most unexpected times.
Any advice that would help me for the upcoming appointment would be greatly appreciated.View Thread
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