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Multiple Sclerosis Community

HELP ! Please read my post and give me some of you...

Hello everyone, I am so sorry many of you have MS. It seems terrible. I am struggling...

Posted by usedtotri

Hello everyone,

I am so sorry many of you have MS. It seems terrible. I am struggling for a diagnosis of some sort but, can't seem to find any answers. I went from a recreational triathlete, completing 5 triathlons in a Summer season to being absolutely exhausted. I figured I was just overtrained but it lasted from late August right on into winter. Depression right? Yes a little, I live in Michigan but I spent 5 weeks in sunny Texas and Florida and have felt depression before-this wasn't it.

This March I became VERY exhausted and had extreme all over pain after raking my yard for about 10 minutes, it happened again and again. Prednisone in a burst helped a lot. I was on pain meds but then needed none. Until the Prednisone was done, then the pain came back. At the same time I developed some of the classic MS symptoms, top hits on medical search sites. MRI shows no MS.

I have had increasing pain, always starting in the right foot. The pain comes with weakness and shaking if it gets too far along. I've increased all the way up to 60 Morphine ER 4-5 times per day to manage the pain. I have tried to reduce pain relievers all along but we just keep increasing doses. I have NO answers and NEED help. I have a Rheumatology appointment, Neurology follow-up and pending appointments (on hold) at Mayo and Cleveland Clinic.

Can anyone ask me questions, shoot me some ideas? I go from playing with my boys (albeit tired and in some pain), appearing normal to the neighbors to being driven home from vacation laying in the back seat of my car absolutely sick and in pain. "He looks OK to me" "He seemed fine the other day" "He just needs to get off of those meds" And yet I've rolled out of bed, pissed my pants and crawled to the phone for help in so much pain. HELP? Anyone? I think I have MS but, the doctors just don't have it diagnosed yet. I saw a rheumatologist who listened to me for the first part of my story, about 2 minutes, and said I had Fibromyalgia (by the way she never touched me) so I got up and left her office.

A neurologist says something is severely wrong and he has some ideas but the test he did, an EMG showed nothing. The EMG doctor said "you've definitely got something going on." But I don't know what it is, yet. And the next tests, you don't want me to do right now."

OK, your turn. Anyone? Even an I feel your pain would be nice.View Thread

Posted byusedtotri

5 Replies | Reply | Watch This DiscussionReport This| Share this:HELP ! Please read my post and give me some of your knowledge Hello everyone, I am so sorry many of you have MS. It seems terrible. I am struggling...

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