Thanks Dr. Lava. I had my 2nd MRI this week and although I am still scheduled with my regular neuro. I am already scheduled to see one at the University of Miami Hospital. Your response is appreciated, now I know I am not over-reacting. My symptoms have been so bad this week, my boss had me take today off work paid so I could get some extra rest. As much as I would love my neuro to be right, the brain fog and all the other symptoms in these relapses seem much more. Besides the fact of the permanent loss of normal sensation in the right side of face and upper back for a year and a half. Thanks again for your time!View Thread
I have permanent loss of degree of feeling in right side of my face from migraines I had last year with onset of symptoms after not having problems for almost 10 years. Last night I woke at 1:30 a.m. with a like burning and even thicker numbing that side of my face. It sounds stupid, but laying there it felt like that side of my face was "hanging". I actually got out of bed and went and looked in the mirror if I could see what I was feeling...outside of the dark bag under the eye I really could not see the dramatic sensation I was feeling. I was not in pain or anything, none of my symptoms are really painful some can be irritating and frustrating and I consider myself fortunate there. Current Dr changed my "probably MS" diagnoses from 1999 to chronic migraines that have similar effects as stroke victims. My only problem is, in 1999 when I was real bad I did not have a problem with headaches. I guess I really did not have a question but just needed to talk to someone who may understand the scare I went through and I did not want to alarm my family which has been struggling all ready watching me go through this.
I have been struggling with spreading systems for over a month now. Dr has me scheduled for a 2nd MRI that can compared to the one we did in May 2011 so hopefully that will shed some light for definate answers. To complicate matters, one thing for sure is they found a small aneurism last year when looking for migraine damage on MRI so they are checking it for growth today too. Everytime something happens I have more questions than answers. I don't even care anymore what it is, I just want to be sure what my diagnosis is so I can be sure we get me treated properly and not just hide the systems with meds before they know what they are truly dealing with.
My neuro last week told me that If my doc was right in 1999 MS would have burned itself out by now. Well I just lost all confidence in him. So after these tests are done, I am looking for one that is a MS specialist in Miami Florida area that takes United Healthcare. I really need to be sure that it is not MS. As much as I don't want it, deep down I think I do...of all times this is one I really am hoping my gut instinct is wrong! Thanks for listening!!View Thread
Thanks so much Kim. The links were very interesting. I did find where on MD communities for Migraines people are struggling with migraine dx with paralysis. But seems like most of them the paralysis(numbing) is temporary. My upper back and right side of my face has had permanent decreased feeling since May 2011 that never improved and when symptoms of whatever I have worsen it's even a thicker needley numbing if that makes any sense. Maybe the problem is that I do not know how to explain the wierd feeling or lack of feeling sensations. I don't care what I have I just want to know that I am dx properly and getting proper treatment.View Thread
Been really struggling lately with many symptoms. In AZ, Was diagnosed as "probable MS" in 1999, seemed to go into remission in 2002 with very few flare ups or symptoms at all for years. Then last year I went through major Migraine Attacks that kept landing me in the ER. Now in Florida and with insurance unlike when I was AZ, I have been under the care of a neurologist. My symptoms mirror AZ but the migraines are new. Can Migraine Attacks cause the same needle, numbing, weakness, damages in the body as MS symptoms? On my MRI there were damaged areas but can they be the result of Migraine damage? My symptoms over the years match everything I have studied on MS for Relapsing/Remitting and I actually think I am going into the 2nd progression now. My upper back has loss of sensation for 1-1/2 years now and hard for me to accept that it is from a migraine I had. I am losing confidence in my diagnosis although it would be great not to have MS, but I think I may not be receiving proper treatment but I don't want to offend my DR. Not sure what to do, so I am trying to substantiate what I am being told. I know you cannot give me a diagnosis, but can this be permanent damage from migraine?View Thread