cheesegrater

Joined: 07/30/2012
My Story:
Working on diagnosis. 57 years old, when looking back at my symptoms and all the things I went to doctors for over the years, seems like there where indications in my late 30s.

Have lesions in non-specific areas, have been to Neuros and MS specialist with no diagnosis (7 neuros all together). Have verticle diplopia (vertical double vision) which is rare, seems they are having a hard time accepting that. UCSF MS director told me he thought I didn't know how to look through my glasses.... Just for the record have had bi-focals for 7 years.

Symptoms are involuntary muscle movement eyes, face, shoulders, legs, pecs (keep them up girls!), exhaustion, shooting pains, bobbly gait, inability to connect my brain to my mouth and sometimes unable to connect my brain to anything, skin eruptions. All of the symptoms come and go as they see fit, might be pretty good one day and need to lay down the next. Vision and exhaustion are a constant. I have about 60 minutes at a time of vision use before it becomes difficult to read (impossible). Have ocular migrainse and all sorts of visual entertainments.

Frustrated, angry, worried, tired and even hopeful that I just have to find the right doctor and I will get help.

Waiting for referral to UC Davis MS specialist.....

Latest Activity

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Pharmaceutical Phobias
I have some distrust of chemical drugs does anyone know of a homepathic way to deal...More
Posted by cheesegrater
Reply: Pharmaceutical Phobias
Dave, also, I've had some bad run ins with pharms. The second to the last Neuro had me...More
Posted by cheesegrater
Reply: Pharmaceutical Phobias
Thanks Dave. I don't think all meds are bad, but many of the chemical meds are based...More
Posted by cheesegrater
Visit to UC Davis MS clinic
Ok, Wow. The Neurologist spent 4 hours with me. He went over everything, brought in a...More
Posted by cheesegrater
Reply: Visit to UC Davis MS clinic
Dave, Thank you for your always humorous replys. Who knows what will happen when...More
Posted by cheesegrater
Reply: Pharmaceutical Phobias
Rory, Thanks! I'll check it out.More
Posted by cheesegrater
Reply: Visit to UC Davis MS clinic
Kim, Thank you. So far none of the tests scare me, the only one that was truely...More
Posted by cheesegrater
Reply: Multiple Neuros
I agree with ms bucket, while sometimes I think a person needs a break from the stress...More
Posted by cheesegrater
Let's have a big hooray!
I finally got my referral to UC Davis MS Clinic in Sacramento! My primary care is a...More
Posted by cheesegrater
Reply: I need answers
I hear you! I feel that way often. It's almost as if they are afraid to commit to...More
Posted by cheesegrater