Dave, also, I've had some bad run ins with pharms. The second to the last Neuro had me try something for complicated migranes, trying to see if the lights and colors were from that, I had every single side effect, gums bled, pressure behind my eyes (they started to push out), very deep cognitive issues (couldn't find my way home from the corner store).
When I called him to tell him he had me stop immediately, it was dangerous.
I also often have the opposite reaction, if it's suppose to relax you and slow you down I can become agitated and unable to sleep and vicey versey.
I have been told I'm "contra" to some medications. So I have to proceed with caution.
So far none of the tests scare me, the only one that was truely painful was the one for MG where they stick a needle in your muscles and rotate it while sending some signals through. I can't remember the name of the test, but I did it twice.
I can handle being one with toothpaste in the MRI tube and being very very still for the spinal tap.
Throw it at me! I'm willing to try to get the answers I need.
I agree with ms bucket, while sometimes I think a person needs a break from the stress of Dr's looking at you with suspision (I know that was spelled wrong, one of the new problems I have) in their eyes and doubts in their hearts, that alone is exhausting. Much less helping an aging and ill parent.
Believe yourself. Trust yourself. Keep trying. You're worth it and will be much more helpful to yourself and those around you when you find some help.
Ok, Wow. The Neurologist spent 4 hours with me. He went over everything, brought in a colleague who spent about 30 minutes with me.
Ordered a new MRI with contrast (first time w/contrast), an evoked potential test (never done) and my spinal tap results from 2 and 1/2 years ago.
Apparently there have been some advances in testing the spinal fluid over the past couple of years. He wants to review what was done and do another if it doesn't meet current criteria.
I left feeling like this was a group of people who, not only wanted to help me, but believed me.
They appear to suspect MS, but said there are still a couple of things that need to be ruled out, though I can't remember what he said.
I actually hugged him at the end of the appointment. It will be a couple of months at least to get all the test scheduled and results back, and feel like there may be some light at the end of the tunnel.
I check this sight daily and read or post. I really appreciate the support offered here.
I also got a new prescription for glasses with prisms to help with the double vision, they will be coming soon.View Thread
I have some distrust of chemical drugs does anyone know of a homepathic way to deal with MS?
I have used with great success many alternates for over the counter stuff for all regular illness and discomforts from sleep aids to flu remedies and pain relief.
I was reading about a neuro pain homeopathic recently, but haven't tried it yet. Hoping to get a real diagnosis (today's the day for UC Davis!) so I'm not just pumping a lot of stuff into me that are taking the wrong direction.
I finally got my referral to UC Davis MS Clinic in Sacramento!
My primary care is a small office the nurse/office manager often overwhelmed by any "special requests" such as forwarding records for referrals, was able to successfully get my records to UC Davis and set up the referral process correctly (2 attempts, 1 month).
Please keep your fingers and toes crossed for me! This is my 2nd MS Specialist (will be my 8th neurologist in all). I'm really ready to get confirmation of this.View Thread