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Multiple Sclerosis Community

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cheesegrater

Joined: 07/30/2012

My Story:

Working on diagnosis. 57 years old, when looking back at my symptoms and all the things I went to doctors for over the years, seems like there where indications in my late 30s.

Have lesions in non-specific areas, have been to Neuros and MS specialist with no diagnosis (7 neuros all together). Have verticle diplopia (vertical double vision) which is rare, seems they are having a hard time accepting that. UCSF MS director told me he thought I didn't know how to look through my glasses.... Just for the record have had bi-focals for 7 years.

Symptoms are involuntary muscle movement eyes, face, shoulders, legs, pecs (keep them up girls!), exhaustion, shooting pains, bobbly gait, inability to connect my brain to my mouth and sometimes unable to connect my brain to anything, skin eruptions. All of the symptoms come and go as they see fit, might be pretty good one day and need to lay down the next. Vision and exhaustion are a constant. I have about 60 minutes at a time of vision use before it becomes difficult to read (impossible). Have ocular migrainse and all sorts of visual entertainments.

Frustrated, angry, worried, tired and even hopeful that I just have to find the right doctor and I will get help.

Waiting for referral to UC Davis MS specialist.....

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Reply: Loss of sense of smell and taste and difficulty sp...

Rory, Thanks for the reply. I am waiting for a referral to go through with UC Davis...

Posted by cheesegrater

2 Replies | Reply | Watch This DiscussionReport This| Share this:Loss of sense of smell and taste and difficulty spellin Rory, Thanks for the reply. I am waiting for a referral to go through with UC Davis...

Loss of sense of smell and taste and difficulty sp...

I have lost about 70% of my sense of smell per an ear, nose and throat specialist,...

Posted by cheesegrater

2 Replies | Reply | Watch This DiscussionReport This| Share this:Loss of sense of smell and taste and difficulty spellin I have lost about 70% of my sense of smell per an ear, nose and throat specialist,...

Reply: Frustration

Kim, thank you for your response! I have applied for perm disability. As you may...

Posted by cheesegrater

2 Replies | Reply | Watch This DiscussionReport This| Share this:Frustration Kim, thank you for your response! I have applied for perm disability. As you may...

Frustration

Not yet diagnosed but sure seems like it. I get bounced back between guesses of MS and...

Posted by cheesegrater

2 Replies | Reply | Watch This DiscussionReport This| Share this:Frustration Not yet diagnosed but sure seems like it. I get bounced back between guesses of MS and...

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