I have lost about 70% of my sense of smell per an ear, nose and throat specialist, which also effects my sense of taste.
Also when I'm tired I have a very difficult time spelling, I used to be the one people came to for help with spelling and definitions. I get very confused, even spell check often doesn't recognize what it is I'm trying to spell.
I have applied for perm disability. As you may know it's a lengthy process, I am lucky to have a loving and supportive husband, he is on disability due to a service connected injury. We're in the waiting period.
My appt with the SS doc went well, but waiting for the determination. I was having a small flare when I saw her so she did see indicators. She was surprised I didn't have a diagnosis.
I had one white spot in 2007 that my neuro said was something to be watched. Symptoms of tingling and numbness started when I was 40. In the years in between I became increasingly unable to function fully.
I also have verticle double vision, which worsens with the use of my eyes, I have about 1 hour before I can't make out what's on the page.
I will try to find an MS Specialist. My last neuro told me he couldn't help me, but didn't run any new tests. All of the subsequent Neuros from my big flare are basing their opinions on tests run 2 1/2 years ago. Having a hard time getting anyone to do new tests.
thank you for your words of encouragement. I will keep putting one foot in front of the other (as best I can View Thread
Not yet diagnosed but sure seems like it. I get bounced back between guesses of MS and MG with no tests so far panning out.
Had 6-8 white spots on my brain MRI and was told they are non-specific. I asked what that means and was told they don't know what that part of the brain does. When I asked if the white spots should be there they said no...
Unable to work, frustrated, angry. A host of symptoms from involuntary movements to rubber legs in the heat, disoreintation, facial spasms, ocular migraines, enlarged thymus. Lights and colors that aren't there. many more.
Also having problems later in life, first attack that rendered me incapcited for 2 months happened at age 55.
Twice out on temp disability, now expired. No pay, no help, no end.View Thread