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Multiple Sclerosis Community

Reply: MS Diagnosis, could it be Lyme Disease?

Unfortunately, Lyne isn't that easy to catch. That's one of the reasons I believe I'm in...

Posted by Tritherz

4 Replies | Reply | Watch This DiscussionReport This| Share this:MS Diagnosis, could it be Lyme Disease? Unfortunately, Lyne isn't that easy to catch. That's one of the reasons I believe I'm in...

Reply: MS Diagnosis, could it be Lyme Disease?

Hi there, I had a similar experience over the last few years. Diagnosed with MS, but not...

Posted by Tritherz

Hi there, I had a similar experience over the last few years. Diagnosed with MS, but not really fitting into that diagnosis for a number of reasons. I searched for answers, eventually learning of Lyme after several others in my family were diagnosed (we live in Lyme-endemic upstate NY. I found a specialist who treats Lyme people almost exclusively. Extremely knowledgable doc. I've been doing well on antibiotics, and have steered away from the MS drugs. At his suggestion, I followed up with a Neuro just to be on the safe side. I had opted out of treatment for a few months to give my body a break. At the Neuros recommendation, I had an MRI which showed new lesions on my spine. According to my Lyme doc, this doesn't happen with Lyme disease. His belief is I have Lyme induced MS. And while this will be my lot in life, I know in my gut the antibiotics are helping to keep me on the right track.

If you have Lyme as an underlying condition, and have had it for a long time, I think the body gets to a point when it simply can't distinguish between good and bad and starts to launch the attacks. That's where the antibiotics come in handy. After 3 years, I'm no worse for wear than I was when I was first diagnosed. I've radically changed everything I do though, just to make sure I'm as healthy as a person can be. I would strongly encourage you to join a Lyme group to find a Lyme-literate MD in your area. You may have to travel (most do), but it may prove to be beneficial in the long run.

There is also a group at Vanderbilt University who have some compelling research that lends to another infection (CPN) as a causative factor in many MS diagnosed patients. There protocol is similar to the Lyme treatments.

I also want to point out that this is a confusing disease. There are so many issues that are yet to be explained. I never bought into my body attacking itself for no reason. I believe there's an underlying issue causing the MS. I'm not alone in is thought either; there's a large subset that believe the same.

I hope this helps!View Thread

Posted byTritherz

4 Replies | Reply | Watch This DiscussionReport This| Share this:MS Diagnosis, could it be Lyme Disease? Hi there, I had a similar experience over the last few years. Diagnosed with MS, but not...

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