dottie82 :- Multiple Sclerosis Community -: Support Group

Hello everyone. I am new here and I was just diagnosed with MS August 4th, 2012(Saturday)...

Posted by dottie82

Hello everyone. I am new here and I was just diagnosed with MS August 4th, 2012(Saturday) at age 29. When I had gotten the news that this is what I have been experiencing, 1 week before I had lost my cousin. She was fighting a battle with cancer and all of the extreme tests and experiments to help her get well gave her a heart attack. While I was still trying to process the fact that she passed, I got a phone call from my Dr. office and the nurse told me I have to come in asap to see the doc because the MRI showed that I have lesions on my brain and I have MS. I asked her, "can I come in next Friday?" she said "no, this is kind of serious, can you come in Tuesday?" I replied "yes." When she said I had MS I didn't know what that meant, I really didn't care, I had a lot going on and I was also moving out of my place at the time. MS whatever. Well when I finally had a moment to sit down and breathe, I did some research and *BING* it all made sense. I went to see my doc and he told me again what was seen on the MRI and he told me "there is nothing I can do for you anymore, you are a special case." That may sound harsh but I appreciate him telling me that instead of trying to figure things out aimlessly. He referred me to some neuro docs and wished me well and the journey begins. Now in 2011 I had symptoms such as the headaches and the left side of my face tingling, but I just shrugged it off and kept going. In November of last year I became constipated and I thought it was what I was eating but I didn't eat any weird foods, I was regular all my life. The beginning of this year, headaches were everyday, the back of my head felt heavy, face would tingle all over, speech would slow down and sometimes it wouldn't come out. I went to the ER March of this year b/c I thought I had a stroke. I explained everything but it was no stroke, it was nothing. I was prescribed Ibuprofen for the headaches and with a question unto myself, "what is wrong with you girl?" As time went on and the weather became warm my symptoms exploded *BOOM* so much to the point that people thought I was just a bucket full of exaggeration. I still have headaches, brains slows down for about 5 seconds, scalp feels numb, left side of body tingles, hoarseness, I see spots when too much light is in view, weight loss(loss 10 lbs. and I do eat), numb hands, arms numb and cramp at times, left hand itches on the inside(thought I was bit by something), left hand jumps on its own, legs numb, feet numb, bones feel painful(probably from all the weight I lost), constipation, forgetfulness, depression, TIRED all the time, legs get weak when standing too long, fell down stairs 3 times, balance is off, spine feels like electric runs through it also my lower back when I bend, sleep maybe 4 good hours a night(unless I take a muscle relaxer), spasms in sleep and many more. Some of these symptoms are everyday and they have no scheduled time to show up, but it's like my brain let me know when they are about to happen. It all trickles down from my brain to my feet and when the brain slows or freezes or whatever, I know to pace myself b/c anything is possible. I went to the ER in July of this year, told them all I experience and they did a CT scan and the scan said I had white matter on my brain. They referred me to a neuro doc and they didn't say why even tho they referred me to a neuro doc. I thought, "neuro doc for what???" I found everything out from the MRI and now I am seeing the neuro doc of my choice. My 1st visit with her was last week and she sent me yesterday for another MRI w'wo contrast. I go on the 11th of this month for a EEG. I am taking meds for constipation, sleep and spasms. I have a 3 year old son that I muster up energy for b/c he needs me. The only thing that is keeping me at peace is knowing that this is not a disease unto death. I haven't cried about it, heck, I don't know what to feel. I take it day by day slowly. Any suggestions on how to deal with this? Thanks:)View Thread

Posted bydottie82

7 Replies | Reply | Watch This DiscussionReport This| Share this:Newly diagnosed Hello everyone. I am new here and I was just diagnosed with MS August 4th, 2012(Saturday)...

Reply: Newly diagnosed

I agree with you about taking naps and since I was diagnosed I see the importance of a nap...

Posted by dottie82

7 Replies | Reply | Watch This DiscussionReport This| Share this:Newly diagnosed I agree with you about taking naps and since I was diagnosed I see the importance of a nap...

Reply: Newly diagnosed

Thank you so much Rory. I go back to my neurologist on the 11th and she will go over the...

Posted by dottie82

7 Replies | Reply | Watch This DiscussionReport This| Share this:Newly diagnosed Thank you so much Rory. I go back to my neurologist on the 11th and she will go over the...

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