I don't know if this helps you, but my recent spinal MRI read no MS lesions, but bulging, partial torn/ herniated discs in L4L5, and L5S1 WITH some nerve root impingement. I have been going through testing for MS for past 1 1/2yrs and have "highly probable MS", but neurologist is confident it is MS. 3 lesions in the brain, which have not correlated with my physical symptoms: weak, rubbery legs but walking brings on stiffness and pain to both legs. Also have muscle cramping in feet and lower legs, difficulties walking up stairs. Some bowel & bladder issues, as well. I found a spinal mapping picture online http://www.makoa.org/scimap.htm . I feel this explains some of my physical symptoms. Interestingly enough, my family doctor and neurologist didn't. They feel that the results are "normal age & job related changes" (I'm a 41 y/o nurse). I also have been to a large, world reknown hospital that specializes in MS (that will remain nameless) for 2nd opinion. that neurologist agreed with the normal age/job related changes and made a statement (don't remember exact verbage)to the effect of they only concern themselves with looking at the brain & spinal cord which ends higher up. Anything stenosed, bulging, torn discs or pinched nerves below the end of the cord, they don't feel would cause any problems. I've learned to get a copy of each of my MRI reports, and then research as much as I can to learn about such a confusing disease.Long story short, my neurologist thinks all my symptoms are related to the MS. I agree with her regarding my cognitive issues (they correlate with the lesions/plaques). I personally think the physical symptoms correlate with the spinal MRI results, which are not correlating with any MS lesions. My father also had a back injury to the same area many years ago, has spinal stenosis, and has that same 'catching' that you described. I've been considering seeing a chiropracter, to see if they could do something. I have a PT eval scheduled for next week, so maybe he can give me some advice. Overall, I don't necessarily care what it's related to, as long as the symptoms can be controlled.View Thread
Hello. I hope there is someone out there that can help me. In May 2011, about 2 weeks before my 40th bday, I started choking on my food. When out camping and boating, I couldn't stand the heat anymore. It brought on MAJOR panic attacks. By June I was stuttering ooccaisionally and August brought right leg numbness/tingling, and tripping. I ignored these occaisional occurances until November 2011 when my right leg and foot cramped while driving. I almost hit someone because I couldn't get my right foot off gas and on the brake. Family MD did lots of blood tests in December and MRI, which showed my first lesion. I started seeing my neurologist in January of this year, who went ordered more tests (MRA, evoked potential, lumbar puncture...) By end of January, I was so exhuasted, i was off on FMLA until end of April. Even though the evoked potential and lumbar puncture were negative for MS, my neurologist called this "suspected/ possible MS" in March 2012. I started the Avonex shots, and Provigil. By that time my legs felt like rubber, constant numbness/tingling in both legs, right leg was definately weaker than the left, confused/ forgetful, difficulties emptying my bladder. In June, we did one year MRI and neurologist stated it confirmed what we thought. She diagnosed me with Relapsing/Remitting MS. The Avonex was helping be reducing the severity of the symptoms. I could definately tell when I was due for the next shot. My symptoms have never gone away ( just got to a tolerable level). In August my symptoms have been progressively getting worse. Friends ask "are you having a relapse?" I'm now to a point that when I work my legs are getting stiff, almost like a constant painful cramp, and I find myself dragging both legs. I'm more confused/forgetful. The numbness and tingling is in both legs up to my hips, and both hands. I would like to scratch my skin off.Very depressed, difficult to get out of bed now,and Provigil gives me headaches. On Monday I left work early with HTN headache,and ended up passed out on the floor for I don't know how long. I missed 6 different calls on my cell phone while I was out. My neuro doc just came back from maternity leave, and I couldn't take the symptoms anymore. I took in the list of issues (everything has to be written or I wont remember it) and went to see her yesterday. She reviewed my chart and said she thinks it's probably stress related, ordered another MRI, and doubled my Provigil. I discovered there was no second lesion seen in June, so I questioned her how she could say its definately MS. She stated she thinks the Avonex prevented the second lesion from occuring. I went into the doctor, asking myself "How will I ever know if I'm having a relapse, because my symptoms never go away. They just steadily get worse." I left the doctors asking myself "Do I even have MS?" I am so confused. And desperate. The symptoms are so bad now, I can barely get to work. Any advice? Any ideas? Sorry if I'm rambling.View Thread
For Rory & Kim, Again, thank you so much for responding. I've reached my limit. Interestingly enough, I had my 3rd MRI with & without contrast of the brain today. By the same radiologist that did my lumbar puncture and 2nd MRI. He has always stated he does not believe this is MS. The tech today commented "I would never have guessed you were being worked up for MS when I look at your MRI's (she did the last one, too, and remembered me). "Why isn't your neurologist also having your neck and spine scanned as well? There may be lesions there that we aren't looking for." Her and I looked at the pictures together and she did note a small new area on the right side, that was not there in June. I ended up in the ER this morning from uncontrolled high blood pressure causing chest pain. The ER doc so kindly stated to me "Im sure its all related to anxiety. (he had no idea about stressors at home) Your in the healthcare field and that alone is stressful. But with what you're up against, who wouldn't be anxious!" I started to think up some smart remark about bedside manners, but then thought "he's been the most honest, attentative doctor yet!" Can't fault him for that. I like it straight up, not spoon fed to me as someone else sees fit . When I called the neurologist to let her know my MRI was today and the continued BP issue, there was no response.. So I am currently looking/ seeking out a second opinion. Considering the very first MRI suggested 'undetermined neurodegenerative disease' and the radiologist doesn't think it looks like MS really scares me... The pictures are cool though, and comparing all 3 sets of same pic I can see some minor differences. Who knows? I will let you both know what I find out....
thank you for your response. I will agree with my neuro that I am under an etreme amount of stress right now (helping care for dad with cancer, mom with heart disease, diabetes, and some form of dementia. My oldest sister was diagnosed as Early onset Alzheimers same time I was diagnosed with MS). I only work part time (20hrs now) as a hospice RN Case Manager. So, the stress is there and not going away anytime soon. I agree with you, whole heartedly that I need a second opinion. I have a friend with MS that goes to the Cleveland Clinic. I am going to try and get an appt with her neurologist.I will let you know how that goes....
From the very beginning, I have never been able to be in group setting, without being really confused, and sometimes becoming anxious. Its like sensory overload, bigtime! I have to keep reminding my family & friends to 1: not interupt me because I will completely lose train of thought, and 2: only one person speaking at a time.View Thread
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