I'm gonna look up the Mayo Clinic in Scottsdale that you suggested! I'm new to the state and I want to find a specialist in MS! The frustration is beyond words which I know many on here can relate too! Just scary not knowing what can happen next or what can completely disable you!
I have many of my past records and I'm getting some more from Boston that I'm taking with me to anyone new.View Thread
I have had suspected MS for 6 years now with symptoms from numbness in hands, head, finger, toes to brief paralysis in my left leg that caused my knee to buckle and caught myself on a piece of furniture to prevent falling. Pressure behind eyes, and numerous bouts of Trigeminal Neuralgia, eye twitches during trigeminal neuralgia attacks along with shakiness and chills. No MRI has shown lesions as of now. I have been swaying into walls around corners and hitting them hard with my left arm and left shoulder.
Many episodes of described above to mention. In the meantime I have been DX with fibromyalgia, but this doesn't seem to hold with doctors exam below. I have looked over records from a neurologist apt I had in Boston when I lived in the northeast and this is what he found on examination below
Reflexes were 3+ and symmetric in the upper and lower extremities. There were bilateral finger flexors and Hoffman's signs, more prominent on the right. There were 3 beats of left ankle clonus. Increased reflexes in upper and lower extremities.
I moved to Arizona this past July and waiting on insurance to see a doctor but I feel lost and so concerned, any advise would be awesome!