Many hugs to you as 2012 had to be a very rough year for you! I just wanted to share some thoughts - I wouldn't focus on your MS being the issue that broke the relationship because it wasn't. You said he was golfing during your diagnostic appointment (long before the "real" struggles ). It sounds more like he was showing he had issues and was selfish.
I am having a bad mush brain day today so I am not wording what I am trying to say well but I wanted to share a simliar yet totally different example with my ex. Long before all my physical issues I was married to my ex and pregnant with my now almost 15 yr old and my ex left me in labor for 4 hours to go get lunch off the hospital property (and back then we had no cell phone). A couple years later our sweet little boy was in the ICU for two weeks and they didn't know if he was going to make it or not (praise the Lord, that kiddo has been healthy as a horse since then!) and my ex stopped by for 5 minutes every few days to visit and other than that went on with his normal life (we were still married then) and nothing other than that. Long before I started getting truly sick he was gone and my life is much better. My point was it sounds like your ex was selfish and I am betting that would have eventually been an issue whether you were DX'd with MS or not.
I know its scary to try again after being burned but if you think you are mentioning your MS less because you are trying to hide it out of fear then you probably are. As you get more invested in the relationship you probably feel you have more to lose so you want to protect it and since in your mind MS caused the last breakup...... Well I can easily see where you would start doing that. (I have been guillty of hiding things from my DH because I knew they upset ex or were an issue when we broke up so I totally get it).
Your MS isn't going to go away though and it sounds like this guy isn't afraid of the fact that you have MS (he sounds like a good guy so I would encourage you to seek out some councelling to help heal those old wounds so you aren't carrying old hurts in this new relationship.
I hope that helps and I am sorry my post is kind of rambly. View Thread
I have not seen any research on this subject directly (obviously I assume there must be some in Germany if that is what they are doing) but there is research on B-12 deficiencies resulting in neurological symptoms so it makes sense to look in that direction. Its part of the reason that usually when a patient comes in with neuro symtoms the dr will usually check vitamin B levels.
I have to say that I am happy that worked for her but I would be very cautious with doing something like taking a whole bottle of vitaimins in a day without the supervision of a dr. Technically B vitamins are water soluable BUT you can still overdose by overloading your system with too many all at once which could lead to some nasty side effects (apparently there is a methylcobalamin form of B-12 and another form also which they say has more issues?!) . Also, there can be a big difference between an IV version under doctor supervison and a sublingual version of a med.
Obviously I am no help on the research part ( I tried but most of what I found was posted by companies that sell vitamins that made reference to the research with no links). If I were you I would look into translated German medical research material or European research as what I saw indicated most of the research was in this are was done overseas. I will keep my eye out though!View Thread
Have you read the research on low dose bendryl? I haven't done much reading on it so I don't know if it would be specifically helpful for you being progressive but I figured I would mention it. There are some links to information on it on the information section I believe.View Thread
nikye82, this one is an old post so I am not sure if that person will see your response. Good luck with your neurologist visit and keep us posted. Hopefully you are seeing a knowledgeable neurologist who can help you diagnose the problem. The dizziness can be the pits (I refer to it as feeling as if I have my own personal fun-house all the time and its no fun)View Thread
The problem is that yes, some of those can be symptoms of MS but they can also be symptoms of ALOT of other conditions also. That is the stinky part of it. No two people's exerperiences are the same and there can be a person that I would swear their symptomes sounds exactly like MS to me but it turns out they actually have lyme disease or a B vitamin deficiency or fibromyalgia or even diabetes (which causes eye issues and nerve damage), etc. It may sound nice at the moment but someone who has never met you and will try to help diagnose what you have based on one conversation when the medical condition in question is so murky to diagnose.... well that wouldn't be fair to you. Short example - You could have the strep throat and say "I feel totally run down and have a fever and a sore throat" and someone could read that and respond - "that is exactly how it was when I had the flu" (it would be true but would lead you to possibly think you needed different treatment that you did). Bladder issues, coordination issues, blurry vision can be MS symtoms as you know. Hopefully that isn't what is causing your issues. Hopefully its something much more simple and easy to fix. No one around this place would wish MS on anyone. If you are having issues of falling and possibly numbness and coordination issues, I really encourage you to get a referral to a neurologist who specializes in conditions like MS. Primary dr's are good people but they can only do so much. I would try to get a cervical MRI along with a brain since if it were MS, often lesions can be located on the cervical area and not just the brain. Also there are other issues that can cause numbness and coordiation issues that could present in the cervical area. Since you say you give up and apprently we have unintentionally frustrated you, I will wish you the best of luck and hope they can get your problems figured out and get you back to 100%!View Thread
I am sorry if you did not find Kim's reply supportive but I read it twice and did not find it rude??
Kim's point I believe was to give you some wise advice without playing pretend dr or steering you down a rabbit hole of one possible condition or idea that can lead to you being frustrated and confused.
As Kim suggested document, document, document your medical history. And if you are concerned about MS, you should definitely go see a neurologist as they specilize in that area. It is great that your dr. is ordering an MRI (are they doing the cervical along with the brain?) Also if you are having blurry vision I would go see an eye doctor if you haven't already as they can sometimes detect optic nerve damage if that is causing the blurriness issue. Good luck with your MRI!View Thread