Our 13 year old son has had 2 flare-ups in the last 5 months, the first related to optical neurosis and the second, decreased skin sensation in the abdomen area. Before the initial he had no history of any medical issues.
His initial diagnosis with the Optical Neurosis was ADEM, then Clinically Isolated Syndrome. With is second flare-up, his diagnosis was again stated as ADEM. Each time, treated with hospitalization and high dose predisone.
After 5 MRI's, 3 Lumbar Punctures, multiple blood tests and a CatScan, we saw a ped. MS specialist who confirmed his diagnosis of MS.
We are contemplating a second opinion but as parents, we are questioning if that is just to put ourselves at ease because based on the symptoms and their resolution, high dose prednisone, based on what we've read and speaking with other neurologists, the diagnosis is pretty close to 100%.
The hard part now is choosing a treatment option or whether we choose one at all. Being that he is 13, do we hold out until he has another flare-up to begin treatment?
Any input from any forum members who have experience or children who have had to be treated would be appreciate.View Thread
The opinions expressed in WebMD Communities are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. Communities are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service or treatment.
Do not consider Communities as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.