MS can be a tricky thing. It took 15 years to get a diagnosis for me. I had all the classic symptoms and the neurologist said, "I am sure it is MS but you don't turn enough tests "- even though I had the relapsing-remitting, trouble in fall and early spring, trouble when sick... The first neuro I had only did the MRI of my brain ( I must admit MRI were quite new on the scene in 1991 ) several times over the years and it did not show lesions.-When I had a more severe attack in 2006 and decided I was not going back to the same neuro, I switched drs. The new doc did and MRI of my brain, neck and spine and it showed all my damage was happening in the spine and had been missed all these years.( and at that time I had 2 vertebrae that were glowing on the MRI! ) I do not turn the CSF either.My doc sent me to the Mayo clinic to a MS specialist and I was finally diagnosed after 15 years of wondering. Life goes on and you learn to adapt but there is something unsettling about not having the actual diagnosis. As time goes on ( 22 years now ) fatigue is more of an issue and my type A personality is really having to learn to pace myself. Hang in there.View Thread
I have had MS for 22 years. If I have done physical activity it can be difficult to sit afterwards.. My legs tighten while sitting/ can feel a current go down my leg then my leg pops up/ if I try stretching the muscles fight it and my legs go crazy- kind of a pain and dancing legs. I also have to be choosy on chairs. If they hit the back of my leg wrong, it sets them off- moving- tightening- can't sit. Car rides are okay for the first hour then it all starts.. Whatever position I land in when I get in the car is where I stay. If I move my legs at all they start tightening and moving. I am sensitive to touch and a hand on the top of my leg can start it all. Likewise pants cannot be too tight. I am wondering what really is the cause, the MS or RLS and what would be the best treatment to endure a long car ride? HelpView Thread
I like the idea of the bar of soap. If it works it is an easy fix that does not involve medications!! I really wonder about the compression sock idea as tight pants and such can be a trigger.View Thread
Yes, indeed we do sound very similar. Hearing your response with the popping leg ( where you feel the current run down your leg then up it goes... ) and the other issues I guess I am inclined to say it is probably more the MS than RLS. I have managed to get by with the exercise, stretching and a moist heating pad - most of the time. There are times where none of the above bring any relief and I go a little crazy. The last long car ride My family dr. gave me a low dose of diazepam ( 2mg ) - take 1 or 2 - and it relaxed my legs enough to make it through the whole trip. I am not on a daily muscle relaxant and would like to avoid that as long as possible. I have enough fatigue of my own!!!!!! The heating pad before bed ( legs propped on pillows ) seems to help relax my legs enough for sleep - most nights... I was in a place a few years ago after a bad attack where the nerve pain down the outside of my leg kept me from sleeping. Thank goodness that went away. ( Neurontin until the nerve pain healed- but that stuff makes you feel like a real idiot in your thought processes ) I guess I will continue to count my blessing that this is what I endure and I am still able to walk and function in life. I agree with the slipped disc idea for ilovewritingcalligraphy - it is not!!!!View Thread
From the post I am reading I would guess it is indeed the MS and not RLS! The last longer car trip was much better. I called my family doctor and asked for something to help short term for a car ride and if I can't even sit to watch tv in the evening. He prescribed a low dose of diazepam 2 mg ( take 1 or 2 ) which allowed me to ride in comfort the whole trip. It lasts for 4-6 hours and you can't drive while taking it. It was nice not counting the seconds until we would arrive at our final destination!!!! I've been working through the leg stuff with exercise, stretching and a heating pad with moist heat for years.. I would rather stay off daily meds for it as long as I can endure it. I know the muscle relaxers can make you sleepy and I deal with enough fatigue all on my own! I'll just keep plugging along and counting my blessings daily...View Thread
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