Hi everyone, I have some questions regarding experiences with neurologists. I am a 22 year old male, just diagnosed earlier today with Clinical Isolated Syndrome earlier today. Some brief history:
I presented in mid March with binocular diplopia, which worsened for nearly a month before maintaining a certain level of visual disfunction. About a month later, I began having ptosis of the left eyelid. Just over a month after this occured, The right side of my face became completely paralyzed. I was not able to even close my right eye completely using effort.
Now, I had my first appointment with a neurologist today. At this point the only remaining symptom of my original symptoms, caused by three separate lesions, is the binocular diplopia. It improved slightly at one point, but there has been no difference in over a month other than the occasional worsening of right eye deviance.
I was unsure if the neurologist was even going to be willing to diagnose me with MS at this point, but after I explained the situation and he pulled up the notes from the emergency room visits he was quick to offer a diagnosis and got the paperwork started for the $0 copay of Rebif.
Here is where I have a problem: After he gave me the information about disease modifying drugs, I attempted to talk to him about some symptoms that have been appearing since I last left the hospital. He told me that I did not have new lesions, and that it sounded like it was just anxiety. I could not believe that he had the nerve to say this to me, when he had not even been willing to listen to the symptoms that I have been having. I attempted to mention a couple of the most troubling symptoms, like electric pains shooting through my right jaw and worsening dizziness and balance problems. Before I was able to mention any of the other symptoms that are causing me a lot of grief and not a little anxiety, he stated that he was not willing to treat any of the symptoms at this point, and that I needed to get started on the disease modifying drug before we started worrying about any of the other symptoms.
To me, having just come in to my first neurologist appointment since leaving the emergency room, I felt that I had just been told, "Well, it's confirmed, you have an incurable degenerative disease. Thank you for spending nearly three hundred dollars, we'll talk more when I'm done avoiding all of your questions. Also, I refuse to treat any of your symptoms unless you're on a disease modifying drug."
Needless to say, I'm hurt and upset. Has anybody else ever gone through something similar?View Thread