I first developed classic MS symptoms about nine years ago. It began with extreme fatigue, very foggy thinking, muscle weakness in my right leg, muscle tightness in neck and shoulders, trouble with stuttering or slurred speech, and a weird itch in my right shoulder blade that never goes away. This first episode lasted for six to eight weeks. Doctors couldn't figure out what was wrong, but it went away and I thought I was over it. Then several months later it hit again. This time I was referred to a neurologist, but my MRI was negative.
Over the past nine years I have learned to manage my symptoms, but there is less relapsing-remitting. It's always with me now, but if I manage stress and fatigue I do pretty well. I've had two more MRIs, but they always come out negative for MS lesions. The last MRI in 2008 showed lesions, but the doctor said they were not MS lesions. I've given up gong to the doctor for this issue.
When I catch a cold, that usually brings on more severe symptoms as well. While stress can bring on more severe symptoms, it is not always the case. In fact, my first episode occurred during my summer break when I had no stress at all, but had just gotten over a summer cold.
My question is could I have MS without a positive MRI or is something else causing this? I'm managing it alright now, but I wonder if there is something I can do to prevent this from getting worse or what I can expect to happen as time goes on. Is this a common problem?View Thread
Thank you for responding to my post. It is somehow comforting to know that someone else has gone through years of not knowing, and then finally received a diagnosis. I live on the West Coast, so I'm thinking of getting a referral to the UCLA MS clinic. I also have a Type A personality and have already radically changed my life. But still I find I tend to try to do more until I get sick or have a relapse and must deal with it. Take care.View Thread