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Hopen4Help

Joined: 01/11/2014
My Story:
I was diagnosed with relapsing remitting M.S. 5 years ago. I used Avonex for years and have been put on Tecfidera for 3 months now. My M.S. is flaring to an extreme due to stress. I have had a long journey learning to live with M.S. and still feel as though it rules my life from time to time. I get so angry when I am unable to function due to a flare, I feel as though I should be in more control of it after so many years but, I know that's not how it works. I live in a very small community less than 3000 population. My nearest GP is 26 miles away, and my nuero is 7 hours away. My biggest frustration is that I am unable to find anyone whom really is knowledgeable about M.S. in my community and don't know anyone that has M.S. so I feel very alone with my disorder and really want to make some friends on this site. Someone who really understands what it is to live with M.S. Rumors fly in a small community. People think I am drunk when my gate worsens and my words are not correct or slurred. I'm very frightened because when I started Tecfidera I had no bad reactions to it other than some bad nausea but now I am having severe spinal pressure, muscle soreness, hair loss, and blurry vision. I am waiting for a call back from my nuero's office, due to have new imaging done and am really worried about PML. As I have recently become aware of this really serious side effect that can be caused by this new drug. My attention span seems to be very short and problem solving is rough, I also am unable to drive at the moment. Feeling like I'm starting over again.Thank you for listening, I would be happy to converse with anyone and help if I am able.God Bless and Best wishes in the New year! Also learning this blasted New Computer of which I am not the best at. Sorry for my mistakes. Looking forward to knowing others like myself.

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