MS fatigue is only one of the many ways that MS can effect our sex drive. Some feel that the if the allow them selfs to be intimate it may lead to rejection due to their condition , the fact that the know their partner loves them is not enough to over rule this fear.
If you look under popular dissussions on the right hand side of this page you will find a previous chat we had on this subject. A lot of the people have since left the board but the advice is still good and should give you some place to start.
P.S. I now live in the US but was born in Ireland so I know what you mean by the rainView Thread
While quite a lot of what you discribe could be loss of cognitive function due to MS , there is many other possible reasons for these symptoms.
I would suggest you try to look up your neuro and see if he/she has expierence with MS. It is very hard to make a positive diagnosis so the they expierence of the neuro really is important.
For now keep your appointment. You should make a list of all your symptoms and any thing that you noticed that makes them worse , also how long the last.
Your neuro should order further testing one will be a MRI with contrast and an MRI of the cervical spine. Two others could be a spinal tap (lumbar puncture) and evoked potential test to check nerve speed.
Let us know how it goes Tues and we try to help more if you are still looking at a possible diagnosis.
While people with MS can expierence falls I wouldn't start there in your case. Let your doctor know sooner rather than later and get a total review of current known conditions and meds you take for them .
If that does not reveal a likely cause then you and he/she should try to figure what specialist you need to see.
The simple answer to your question is that yes many people including a few on here have been told that the do not have MS only to be told later,often years later, that the do have it.
Testing can still be hit and miss depending on many factors not least of which is what the doctor knows about MS. Another one is the strenght of the MRI machine and again the knowledge of the radioligist reading the images.
Much of what you describe could be remitting relapsing MS (RRMS) but the could also have many other causes.
You say you cann't afford primary or neuro care but there are ways of getting help .Catholic hospitals often run programs for the needy that cover doctors and testing. Another resourse can be county health clinics in your area. One other thing you could try is to see if there is a local MS support group that may have some suggestions.
For now all I can advise is that you try to work out some sort of coverage and try to find a Neuro who specialises in MS , then gather together all your hospital records and get a second opinion.
There seems to be something going on with you but some doctors may try to tell you it is all in your head or that you are doctor shopping for a diagnosis or even worse meds. If this happens you will have to advocate for yourself ,as you are the one who knows best what is going on with you.
Hope all this helps some bit but at least you know that you are not alone, stay in touch and let us know how you are doing.
There is no definate test for MS it is a process of elemination what follows is a typical diagnostic process that a neuro should follow.
If you suspect MS as the cause of your symptoms you need to try the following.
1 Find a neuro who specializes in MS or an MS care center, try www.msneuroratings.com for patient reviews on a state by state basis.
2 Be prepared to undergo all testing the require which may include,
A MRI's of the brain and cervical spine with and without contrast to look for active and inactive liaisons.
B Possibly a lumber puncture/ spinal tap to look for proteins and O-bands in the fluid around your brain and spine.
C Evoked potential testing to check the speed of your nerve responses, any delay can indicate inflammation.
D A complete neuro workup and a review of your medical history, try to keep a journal of your symptoms and how long the last and any triggers you can think have.
After all this which can take some time, you can hope that a specialist has enough info to make a diagnosis or at least rule out MS altogether, all though there are no guarantees as we often see false negatives or inconclusive results
For now find a specialist and follow his/her advice , let us know how you are doing and know that most of us have been where you are and indeed some on here still are there.
A negative spinal tap does not rule out MS , I for one was diagnosed despite the negative result. The dignosis was based on MRI's , how the MS presented , neurological exams and a medical history, thus meeting enough of the McDonald creteia.
There is no typical for this disease what is true for you may not not be true for any other patient.
What I would do next is gather up all your records and get a second opinion from a neuro who specialises in MS or an MS care center if that is an option where you live.
Also keep a symptom log , what is going on and possible triggers such as weather , fatigue, stress, heat , cold etc.
It will be up to you to advocate for yourself and sometimes you cann't be polite about it. Do not let anyone tell you it's all in your head and if someone does do not walk away RUN. (assuming you are able)
Stay in touch and let us know how you are doing and if you get anymore results.