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My first impression is that you need a second opinion . I am not saying you do not have MS but the way this neuro has gone about the diagnosis process make's me wonder if she has much experience with MS.
Now about Avonex I have been on it since my diagnosis ten years ago. It is not designed to treat symptoms caused by MS rather it is meant to treat MS by reducing the frequency of flares .
You talk about depression, one of the major side effects of Avonex is depression so if there is apossibillity that it is related you should talk to your doctor about changing meds.
Treatment of MS has to be seen in two seperate categrories one are the disease modifying therapies such as Avonex. The other is symptom management such as muscle relaxers for spascity, meds such as neurontin for neuropathic , anti depressents,meds for frequent urination , all of which I think you need to talk about with your doctor.
I would also talk to someone about the possibility of a seizure condition .I have simple partial epilepsy and have come round on the floor a few times with no idea how I got there .(well I figure it out)
For now see about a second opinion and let us know how you are doing ,do not worry about the rambling we all do it now and again.
RoryView Thread

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Con-Ed are working on it but my brother who live's a mile away still has no power but he is running a generator and sharing with his neighbors so at least the have something.
I was in the city yesterday and I have never seen traffic like that wall to wall gridlock. Oh I saw the broken crane and it looks worse in real life than on the news .
RoryView Thread

I really have nothing to add to what Kim said so I am just saying welcome to our group.
One thing I will say is that with all your promblems you are going to have to advocate for yourself as a lot of people will say " well that's another conditon so call your other specialist". It will be up to you and your wife to insist when you know what is going on with you and you are the best one to judge that.
RoryView Thread

At this stage we know that allthough MRI's are considered a diagnostic tool the do not tell the whole story . It is possible that he is reading them from a different perspective than your old neuro .
Another possibility is if you had the MRI done in a different facility it might not be as clear .
If the new neuro continues to say this then have every reviewed by a third one all the way back to 1997.
I would not give up medication at this stage if that is suggested because as Kim says it is due a lot of credit for your continued well being. By the way so are you for staying with the treatment plan, I know that it's not easy.
Let us know how this work's out as I find it interesting and it is nice to hear when one of us is doing well.
RoryView Thread

Well my few blocks seems to have made it through unscathed but that cann't be said for most of the area. If anything the predictions were to mild.
We will have to see how the recovery goes and I imagine that will take a while.
RoryView Thread

I have not been able to find anything about this but if you are having any issues or worries go to the ER and have it checked out.
Let us know , hoping all is well.
RoryView Thread

Have you come across any info on MN-166 from MediciNova to treat progressive forms of MS. From what I can see the are through Phase II trials and have applied for a Patent.
I can find nothing about FDA approval so it is obviosly a long way from release but it nice to know someone is working on treatment options.
Bracing for Sandy here in New York so if I am not around for a few days the power is likely out
RoryView Thread

I have never heard of MS directly causing kidney promblems but my first two thoughts would be something caused by meds or possibly another auto-immune that is effecting the kidneys.
I had a lot of heart tests done last year following a fainting episode but it turned out to be a seizure condition . I am not saying you have that but just letting you know that I feel your pain.
Make sure you follow up and let us know how you are doing.
RoryView Thread
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