I have nothing to add to Kim's reply but I just want you to know that we are here to help in any way we can.
On the Meniers front a brother of mine has it and he has found that valium helps to keep it controlled so it may be worth a shot if you have not tried it .
Hopefully you will be able to get the care you need with Kim's suggestions, if you do try to get some counciling as well . We will help all we can but with all you have going on some professional help is needed .
One of the diagnostic criteria for MS is two flairs seperated by time, with new symptoms . If indeed it turns out you have MS and this is a flair (excaberation) then your new symptoms could meet this .
It is time for a call to your neuro, to see if there is any further testing that the can do or repeat.
Some neuros will diagnose a condition called Clinically Isolated Syndrome (CIS) if there is some evidence of MS but not enough for a full diagnosis. The diagnosis does not mean that full MS will develop but it enables them to start the patient on treatment which will hopefully delay the onset of MS.
Let us know how you are doing and what the neuro thinks is happening,
I don't know how to post al ink but if you google mood changes in MS you will find a few videos with both patients and experts talking about this subject . The may give you a place to start and a better understanding of whats going on with her .
The simple answer is yes , what follows is the typical MS diagnosis process.
If you suspect MS as the cause of your symptoms you need to try the following.
1 Find a neuro who specializes in MS or an MS care center, try www.msneuroratings.com for patient reviews on a state by state basis.
2 Be prepared to undergo all testing the require which may include,
A MRI's of the brain and cervical spine with and without contrast to look for active and inactive liaisons.
B Possibly a lumber puncture/ spinal tap to look for proteins and O-bands in the fluid around your brain and spine.
C Evoked potential testing to check the speed of your nerve responses, any delay can indicate inflammation.
D A complete neuro workup and a review of your medical history, try to keep a journal of your symptoms and how long the last and any triggers you can think have.
After all this which can take some time, you can hope that a specialist has enough info to make a diagnosis or at least rule out MS altogether, all though there are no guarantees as we often see false negatives or inconclusive results
For now find a specialist and follow his/her advice , let us know how you are doing and know that most of us have been where you are and indeed some on here still are there.
Hope this gives you an idea of where to go from here
When it gets me (rarely) it feels like someone has caught my diaphram and is pushing it into my chest. it is painfull but does not cause any difficulty in breathing.
It is caused by a by a lesion that effects a cluster of nerves in the chest or adominal area and the then give you the feeling that everything is tight and pulling in . Some say it is more like someone is pushing out .
The lesion is located in the brain stem or top of the cervical spine but like most things in MS, it effects different parts of the body and all of us in different ways.
Mine is generally well controlled by a combination of baclofen and gabapentin but again that does not work for everyone.
I hate to say this but some neuros say it is not really a symptom of MS , well I for one disagree.
One possibity is Devic's syndrome . For a long time it was diagnosed as MS and then as a Sub-set or particular type of MS.
In the last couple of years neuro's have come to see it as a seperate disease with a different course from MS .
The reason I thought of it , is that it can present as liasons on the spine with balance promblems as a symptom . Typically liasons do not present in other parts of the Central Nervous System (CNS). The other main symptom is optic neurosis or (ON).
It does not respond well to the diease modifying therapies (DMT's) that are available for MS so treatment is mostly for symptoms if the present . Like MS a patient can go long periods between flairs .
I am not a doctor and am in no way trying to diagnse you but it something for you to dicuss with your neuro at your next visit assuming it has not being ruled out all ready. If that is the case ignore this and sorry to have wasted your time.
The reaction of your family is not uncommon and the best way to change it is through education.
If a diagnosis is confirmed and you start on a disease modifying therapy (DMT) you will need to explain how the work as well as how the effect the course of the disease.
As to your employment situation, I do not know how it works in Canada but here we have the Americans with disabilities act(ADA) which would make having that conversation illegal. You should check if Canada has a similar law.
As for the Menieres disease my brother has it and it was uncontrolled until eighteen months ago when he started taking valium and (touch wood ) he has not had an event since. Of course you may be on it allready for depression but if not it may be worth a little research before your next doctors visit.
You sure have a lot going on but remember that you have to be your own best advocate as doctors often say well it's not this so, go home and try some other specialist. In which case you have to start all over again so do not let them give up until you have an answer and treatment plan that you believe is right for you.
Above all do not let anyone tell you It's all in your head or think you are doctor shopping ,this is another common reaction among if the cann't explain your symptoms.
Sorry this is so long but I hope it helps
P.S. could you break up your posts a bit as I have devoloped a promblem reading large blocks of type.View Thread
First a negative spinal tap does not rule out MS , mine was negative and I was still diagnosed.
I was also diagnosed with simple partial epilepsy last year so it is possible to have both MS and a seizure condition . I am not qualified to say you have either but I am worried by your symptoms.
Is your care been co-ordinated at one central point or are you going to various neuro's at different centers. If the latter is the case I feel that should try to get it all under one roof as the expression goes.
Preferably this would be at a teaching hospital or one neuro's office where different doctors can diagnose and then treat your conditons with a plan tailored to you.
As to this not affecting your whole life ,I can tell from one post that it is and maybe you need to make that clear to your neuro.
One other thing Dr. Lava usually check in on Friday so you may want to start a new post with his name in the subject line on wed or thurs and give him a concise explanation of whats going on with you.