I was diagnosed in 2003 after MRI's and neurological exams, negative on the spinaI.
I have worked constuction all my life and at various times have been diagnosed with stenosis , scolliosis , bulged discs and other back promblems. My sister was diagnosed with MS by an ortho who she was seeing about degenerative disc disease which she definately has.
The reason I tell you all this is that you proably have both but the trick is to figure out which promblem is causing which symptom.
You will have to make sure your records are co-ordinated between both your neuor's and the have a plan to watch (treat) both your conditions.
P.S. a pshyio or one of those specialist's who help patients adapt to limited mobility (sorry cann't think of the word) might be able to help with adjusting to the back pain. Ergonomics is the basic word for what the do, tried it myself and it helped.View Thread
One of the major side effects of all the interfurons is depression. You obviousbly feel that this is true for you . That been the case you have to talk to your neuro about other options for Disease modifying therapies (DMT's).
Copaxane is the only injectible open to you as all the other are interfurons of some sort . There is tysabri as well as some of the newer oral meds to consider as well.
Talk to your neuro and come up with a new plan that suits you as depression caused by meds is something you do not have to live with.
My first impression is that you need a second opinion . I am not saying you do not have MS but the way this neuro has gone about the diagnosis process make's me wonder if she has much experience with MS.
Now about Avonex I have been on it since my diagnosis ten years ago. It is not designed to treat symptoms caused by MS rather it is meant to treat MS by reducing the frequency of flares .
You talk about depression, one of the major side effects of Avonex is depression so if there is apossibillity that it is related you should talk to your doctor about changing meds.
Treatment of MS has to be seen in two seperate categrories one are the disease modifying therapies such as Avonex. The other is symptom management such as muscle relaxers for spascity, meds such as neurontin for neuropathic , anti depressents,meds for frequent urination , all of which I think you need to talk about with your doctor.
I would also talk to someone about the possibility of a seizure condition .I have simple partial epilepsy and have come round on the floor a few times with no idea how I got there .(well I figure it out)
For now see about a second opinion and let us know how you are doing ,do not worry about the rambling we all do it now and again.
James it is at 57th street and 6th ave in here in New York about ninety floors up. I am sure there is something on the national news or U-tube by now. Sure is not a pretty sight , will be a big job to get it down.
I really have nothing to add to what Kim said so I am just saying welcome to our group.
One thing I will say is that with all your promblems you are going to have to advocate for yourself as a lot of people will say " well that's another conditon so call your other specialist". It will be up to you and your wife to insist when you know what is going on with you and you are the best one to judge that.
At this stage we know that allthough MRI's are considered a diagnostic tool the do not tell the whole story . It is possible that he is reading them from a different perspective than your old neuro .
Another possibility is if you had the MRI done in a different facility it might not be as clear .
If the new neuro continues to say this then have every reviewed by a third one all the way back to 1997.
I would not give up medication at this stage if that is suggested because as Kim says it is due a lot of credit for your continued well being. By the way so are you for staying with the treatment plan, I know that it's not easy.
Let us know how this work's out as I find it interesting and it is nice to hear when one of us is doing well.
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