Thanks so much Herb.
I would love suggestions to add &/or replace exercises, as I am trying to gain strength. So I will try to answer questions.
1). There are in my mind huge issues regarding my weakness. My gait has definitely been affected. I walk using a rollator walker and have also been trying two canes. I have a trendelenberg bilaterally.
My gait is extremely varied. I go fom what I call "freezing" being unable to move to being able to walk short distances. This used to be 50ish feet at a time, and currently more like 10-20 feet. I use a scooter both in / out of house.
I am also currently evaluating new AfO's. I have an old pair of plastic splints which I did not wear much too bulky, didn't like larger shoes etc. I am investigating carbon AFO's.
I have a fair amount of spasticity, received a baclophen pump end of march. Having a difficult time getting an optimum dose. I have never
used Amypra. I do not have any permanent contractures, although due to tone am limited in ankle dorsiflexion, hamstrings, and abduction. Do a fair amount of stretching as part of program.
Thanks for replying to my email. Just to let you know I am a pediatric PT. I work in a school and haven't done a lot with FES. Plus our guys are little therefore muscle's are little. I definitely agree with you, and have only found it effective for small muscle groups. The reason I am interested in hip abduction is I feel like my muscle group needs to learn to refire.
My hip abduction is a 2 / 3-. I would say most of my hip musculature is 3-, same ith knee as I can't go through full range. Docs say I have good strength 4/5. I laugh at this as it show difference btwn the two : )
Anyways exercises I'm doing are clam shells, abduction slides prone and supine. When I'm at the gym, I try to do the weight machines hip abd / add, knee flex / ext., knee press etc.
My intent is to try it with prone abduction slides. I would eventually like to use it with side lying abd.
Let me know if you can think of other things I should try
I am also interested in tysabri. My neurologist recently said it was another option for me. I am currently on Gilenyia. I would start it yesterday if I thought it would help with my functional mobility. I currently use a scooter and a walker for very short distances. I feel like this is getting so much worse! My neurologist says it will help with relapses, but won't change function. I find this hard to grasp, as I read so much about people who do amazingly better with Tysabri
I am interested if anyone out there has used electrical stimulation to assist with working on muscle strength. Specifically I want to know about large muscle groups such as hip abduction. I have very weak abductors which definitely affects my mobility. I am more familiar with using electrical stim for smaller muscles.
I became interested in this after reading about Dr. Terry Wahls who talks about this,but doesn't give a lot of info. Would love to hear from experts as well, especially the PT