I almost laughed in her face when she asked me the question. Hence; MY anger!!! This is a woman who "knows EVERYTHING about everything" and has had just about every malady known to medical science, yet she PROVED she knows NOTHING about MS and how uncanny the disease can be at times.....with no prior "warning" (as she thought). Oddly enough, she couldn't tell me WHAT I had fouled up or forgotten so I just chalked it up and thought I'd put together some information for her to read and get the FACTS about MS. Thanks for your reply.View Thread
Hackwriter, thanks so much for your reply. I have no idea if my so-called "evaluation" on Friday was negative or positive at this point. Regardless, I'll supply my director with MS information in a few days so SHE can be better informed about how MS tends to change as time goes by!!!
She even asked me if I "knew" when I was going to have a memory problem or did it just "happen." DO WHAT??? I told her that her question didn't make much sense and was much like asking her (which I did)..."Do you know when you're going to have a headache?" It ain't like I PLAN to have memory problems. Geez.......
I might add that my having MS is not something new to her as she's known it for 10 years or more and there's never been a potential problem.....until now. She just doesn't truly understand HOW this goofy disease affects me at times and I think she realized the split second after she asked me her stupid question that her "ignorance" was personified.
This, too, shall pass and life goes on. I was just wondering how other MSer's handle their cognitive/memory problems and how others deal with it on the job.
Thank you again for your quick reply. I really AM clueless right now and am starting to question a lot of things and how I should handle things.
Hi everyone! Long story short.....I had my annual review at work last week. My director questioned me about numerous mistakes I've made this past school year (that I've never made before) and how they are becoming more and more obvious to her. She wanted to know what my "problem" was.
My answer? "It's called MULTIPLE SCLEROSIS and if you'd like more information about the neurological problems it causes, I would be most happy to supply you with the facts so you'd UNDERSTAND what I deal with on a daily basis."
I was diagnosed 16 years ago and I SWORE I'd never use this disease as an "excuse" but over time, things have changed (especially cognition problems) and I'm being questioned about it.
I've had the same job for 25 years (administrative/educational secretary) and I'm not going down without a fight......if it comes to that.
Has any other MSer dealt with this problem? Would love your input and/or suggestions. Thanks so much!!!View Thread
Just for the record......I was in upstate New York several years ago for my youngest brother's wedding and LOVED the countryside area of Rochester! It was beautiful and reminded me so much of East Texas with the rolling hills and I got to see RED apples growing in orchards.....a FIRST for me!!! Down here, I'm accustomed to seeing peach and pear trees only. I need to do more traveling around the USA! Ha!View Thread
No, I've never had any problems staying asleep after injection night. For several years, I had massive problems with Avonex and the aches and chills it caused for several hours afterwards, but it's seemed to taper off. I just have to make SURE I take a couple of Advil before my injection and another two a few hours later and they keep the Avonex injection at bay and I'm back to normal the next day.
I've never been needle "phobic" but just dreaded the effects of the Avonex and had to learn to live with the downside of the drug. Everything's fine now!!!
There are days that FATIGUE has really been bad and NO amount of sleep will help as it's not a "sleep related" problem to begin with, with me. Many other MSer's say that our fatigue problems are MS-medicine related, but I'm still not gonna let it rule my life!!! I don't have TIME to sit down!!!
My bull terrier (Ava) and I walk two or three miles a day after I get off work and it actually takes my mind off of the fatigue I'm feeling at the time. Once we walk our route every afternoon, THEN I'm fatigued and will rest!!!
Hope everyone has a good rest of the weekend. Fall weather and cooler temps are slowly making headway to East Texas. I'm praying for a short winter and a LONG spring!!!
HOW do you post pictures on WebMD? I'm clueless!!!
My neuro wrote a new script for me for the Avonex Pen and there wasn't a problem at all. And as Rory said, everything should remain the same with your insurance company, too.
I also hated "shot day" every week as it got to be an inconvenience and a drag for me to have to "depend" on someone else to administer the shot.
The Avonex Pen CHANGED all that!!! I simply inject myself when I want to each week, at MY convenience, then go to bed, and sleep off the side effects I still get sometimes. It can't get much easier!
For more information, go to www.avonex.com and watch the 2-minute video about the pen. There's also a 30-day trial pack you can sign up for. Biogen-Idec is SUPER about answering any questions you might have and there is a number listed.
Good luck! You'll no longer DREAD taking a weekly injection once you start on the Avonex Pen!
I had to have a nurse (via Medco or wherever I get my meds from!) come to my home and train me on using the Avonex pen and it all was incredibly easy and quick.
I think my heart stopped when I finally gathered up my courage and pushed the plunger to inject my leg and then started laughing 10 seconds later when it was all over with! I never felt a thing (other than pushing the pen against my leg)!!!
And to think I've waited over FIFTEEN YEARS to accomplish something so simple and virtually painless in the process. YAY!!!
Can't wait to hear your results with the Avonex Pen!
Hey Rory, I want you to post after you've used the pen. I'd like to know what you think! It just doesn't get any easier than this......except for a PILL, but I'm staying on Avonex. I no longer dread "shot day" as I've done for the past 15 years.
Hey Ed, Sorry it's taken me such a long time to get back on the MS board and "talk" to other people with this goofy disease we all seem to share. And, as long as it's been, I may have already replied to you, and I've just forgotten. Thank you, MS and NOT the Aging Process.......right?
I'm still on Avonex, have started the injecting with the new Avonex Pen, and after 15 years, I'm finally FREE of having to depend on someone else to inject me weekly. Yes, I was a chicken and never could stab that needle in my leg!!! The Avonex Pen is TOTALLY PAINLESS and I'm thrilled with it!!! Onward and upward!!!
I'm assuming you're still in Houston? Henderson is 30 miles from the Tyler, Longview, and Carthage areas and a 15-minute drive away from Kilgore. I've been in Henderson most of my life (13,000 people) and know most everyone, so it would be interesting to know who YOU might know from Henderson. It's a small world, right?
Are you injecting Avonex also, or Betaseron, or what? I don't plan to change anything with meds. I believe in the old saying, "Why fix it, if it ain't broke???"
Hope to hear from you again, so keep in touch. I gotta get caught up with my "old" friends on this board from years past and it's gonna take me a while. I see Dave, The Swampster, is still on the board.
Several months ago, I posted about using the newly FDA approved Avonex Pen and had a reply or two to it, and I'm following up to find out if anyone else has tried it.
The Avonex Pen has been a miracle for me since I started injecting with it. Yes, I still have all the weird things that accompany MS (mine is relapsing/remitting) but the best part of ALL is that I no longer have to depend on anyone to inject me weekly.
The pen injects instantly WITHOUT any kind of pain whatsoever. I still experience some muscle tightness and chills afterwards but just take two more Advils and go to bed and sleep off the effects.
I'm totally HAPPY with the Avonex Pen. Just hate that it took Biogen-Idec 15 years to get it on the market!!! GRRRRR!
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