Hi Kim and thanks for your input, because you're probably right. Problem is........I'm the THIRD person in my office the director has gotten rid of in the last few years......all for health reasons.
One staff member also had MS and had asked for accommodations and didn't get them. She filed a grievance against the director and her case was going to court until the school district "settled" with her for an undisclosed amount of money.
The other staff member's husband was dying of cancer and was in the hospital. That staff member was written up for her absences (to be with her husband in his final days) and then was informed that her contract was NOT going to be renewed the following school year. She ended up losing her husband AND her job within a month or so!
Suffice it to say that the director has NO EMPATHY for anyone, for ANY reason! Hostile environment is an understatement!!! She's cold-blooded and it needs to STOP!!!
After my demise from the office, I scheduled a meeting with the Superintendent.......not to "fight" for my job back, but to discuss what had just happened and possibly prove that the director needed to be let go, demoted, whatever. FIRING HER would be the best move the school could make! Everyone in the office always wondered if THEY would be her next "target"......as she always had one.......and has always gotten away with it.
My meeting was "productive" with the Superintendent as he took notes, asked me questions, and seemed genuinely concerned about the director and her tactics. And yes, I handed him DOCUMENTATION to prove my points I was trying to make. Isn't that the name of the game?
Yes, I "believe" I was discriminated against (words from EEOC) and I still want some answers from them. I was just wondering if other people had ever fought the same battle and how it all ended. Very hard to prove discrimination? I'm gonna give it my best shot because I have nothing to lose at this point. If nothing else, the EEOC needs to re-word or explain what they mean by discrimination. If nothing will be accomplished or settled, it's kind of a moot point to fight for something that won't happen. "BELIEVE" is the key word!!!
Thanks again for your explanations and slant on the subject.View Thread
Has anyone ever dealt with ADA (Americans with Disabilities Act) since you've been working and trying to manage the weird symptoms of MS?
I've been working in the same office (for school district) for 24 years. I was dx'ed with relapsing/remitting 17 years ago and have exceptionally well until the last year or so. I began to notice I was starting to have "cognitive" problems.
Back in April, I was called into my director's office and written up for some issues that were pure BS but it was at that time that I was asked WHY I was having problems with things that had never been a problem before. I calmly explained the MS sometimes produces cognitive problems.......among other things.
Everyone in my office knows I've had MS a long time, but it's NOT something I've ever used as an "excuse" or talk about. I explained to my director that MS is a neurological disease and I have no control over the problems and don't even KNOW when the cognitive problems are kicking in. I also told her I'd give her some information about so she could read it and understand it. I further told her I'd appreciate her telling me if she noticed it becoming worse on some days so we could discuss the issue. Instead, she WROTE ME UP!
Three weeks ago, I was called into her office and was put on paid administrative leave until my contract ended recently. And since I was an "at will" employee, she didn't have to give me a "reason" for firing me. I was told to load up my stuff and leave......which I abruptly did.
Is it time for me to contact and meet with someone from ADA or the EEOC? In my latest copy of Neurology Now, there was an article on "Workplace Rights" and it literally jumped off the page as I was reading it!!! One sentence in particular said, "If you BELIEVE your rights in the workplace have been violated because of having MS, you can file charges with the Equal Employment Opportunity Commision."
Any suggestions or ideas from anyone? Since I didn't get a CONCRETE answer for being fired, I can only assume my director thought my symptoms would get worse and she fired me. Who knows? Twenty-four years down the drain!!!!!!!!!! I'm NOT going down without a fight but also have NO desire to get my job back.......unless my director leaves!!!!!
Thanks for any help, suggestions, or discussion on this subject.
I was diagnosed 16 years ago and was my neurologist's first patient to inject with Avonex. The side effects were bad (massive chills, tight muscles) but over time, most of the effects have gone away. The new injector pen is a life saver as I no longer have to depend on someone else once a week to help me. I take two Advils before injecting now and two more Advil tabs several hours later and have no problems. The injector pen is the greatest and NOT the least bit painful!!!View Thread
I almost laughed in her face when she asked me the question. Hence; MY anger!!! This is a woman who "knows EVERYTHING about everything" and has had just about every malady known to medical science, yet she PROVED she knows NOTHING about MS and how uncanny the disease can be at times.....with no prior "warning" (as she thought). Oddly enough, she couldn't tell me WHAT I had fouled up or forgotten so I just chalked it up and thought I'd put together some information for her to read and get the FACTS about MS. Thanks for your reply.View Thread
Hackwriter, thanks so much for your reply. I have no idea if my so-called "evaluation" on Friday was negative or positive at this point. Regardless, I'll supply my director with MS information in a few days so SHE can be better informed about how MS tends to change as time goes by!!!
She even asked me if I "knew" when I was going to have a memory problem or did it just "happen." DO WHAT??? I told her that her question didn't make much sense and was much like asking her (which I did)..."Do you know when you're going to have a headache?" It ain't like I PLAN to have memory problems. Geez.......
I might add that my having MS is not something new to her as she's known it for 10 years or more and there's never been a potential problem.....until now. She just doesn't truly understand HOW this goofy disease affects me at times and I think she realized the split second after she asked me her stupid question that her "ignorance" was personified.
This, too, shall pass and life goes on. I was just wondering how other MSer's handle their cognitive/memory problems and how others deal with it on the job.
Thank you again for your quick reply. I really AM clueless right now and am starting to question a lot of things and how I should handle things.
Hi everyone! Long story short.....I had my annual review at work last week. My director questioned me about numerous mistakes I've made this past school year (that I've never made before) and how they are becoming more and more obvious to her. She wanted to know what my "problem" was.
My answer? "It's called MULTIPLE SCLEROSIS and if you'd like more information about the neurological problems it causes, I would be most happy to supply you with the facts so you'd UNDERSTAND what I deal with on a daily basis."
I was diagnosed 16 years ago and I SWORE I'd never use this disease as an "excuse" but over time, things have changed (especially cognition problems) and I'm being questioned about it.
I've had the same job for 25 years (administrative/educational secretary) and I'm not going down without a fight......if it comes to that.
Has any other MSer dealt with this problem? Would love your input and/or suggestions. Thanks so much!!!View Thread
Just for the record......I was in upstate New York several years ago for my youngest brother's wedding and LOVED the countryside area of Rochester! It was beautiful and reminded me so much of East Texas with the rolling hills and I got to see RED apples growing in orchards.....a FIRST for me!!! Down here, I'm accustomed to seeing peach and pear trees only. I need to do more traveling around the USA! Ha!View Thread
No, I've never had any problems staying asleep after injection night. For several years, I had massive problems with Avonex and the aches and chills it caused for several hours afterwards, but it's seemed to taper off. I just have to make SURE I take a couple of Advil before my injection and another two a few hours later and they keep the Avonex injection at bay and I'm back to normal the next day.
I've never been needle "phobic" but just dreaded the effects of the Avonex and had to learn to live with the downside of the drug. Everything's fine now!!!
There are days that FATIGUE has really been bad and NO amount of sleep will help as it's not a "sleep related" problem to begin with, with me. Many other MSer's say that our fatigue problems are MS-medicine related, but I'm still not gonna let it rule my life!!! I don't have TIME to sit down!!!
My bull terrier (Ava) and I walk two or three miles a day after I get off work and it actually takes my mind off of the fatigue I'm feeling at the time. Once we walk our route every afternoon, THEN I'm fatigued and will rest!!!
Hope everyone has a good rest of the weekend. Fall weather and cooler temps are slowly making headway to East Texas. I'm praying for a short winter and a LONG spring!!!
HOW do you post pictures on WebMD? I'm clueless!!!
My neuro wrote a new script for me for the Avonex Pen and there wasn't a problem at all. And as Rory said, everything should remain the same with your insurance company, too.
I also hated "shot day" every week as it got to be an inconvenience and a drag for me to have to "depend" on someone else to administer the shot.
The Avonex Pen CHANGED all that!!! I simply inject myself when I want to each week, at MY convenience, then go to bed, and sleep off the side effects I still get sometimes. It can't get much easier!
For more information, go to www.avonex.com and watch the 2-minute video about the pen. There's also a 30-day trial pack you can sign up for. Biogen-Idec is SUPER about answering any questions you might have and there is a number listed.
Good luck! You'll no longer DREAD taking a weekly injection once you start on the Avonex Pen!
I had to have a nurse (via Medco or wherever I get my meds from!) come to my home and train me on using the Avonex pen and it all was incredibly easy and quick.
I think my heart stopped when I finally gathered up my courage and pushed the plunger to inject my leg and then started laughing 10 seconds later when it was all over with! I never felt a thing (other than pushing the pen against my leg)!!!
And to think I've waited over FIFTEEN YEARS to accomplish something so simple and virtually painless in the process. YAY!!!
Can't wait to hear your results with the Avonex Pen!