Several months ago, I posted about using the newly FDA approved Avonex Pen and had a reply or two to it, and I'm following up to find out if anyone else has tried it.
The Avonex Pen has been a miracle for me since I started injecting with it. Yes, I still have all the weird things that accompany MS (mine is relapsing/remitting) but the best part of ALL is that I no longer have to depend on anyone to inject me weekly.
The pen injects instantly WITHOUT any kind of pain whatsoever. I still experience some muscle tightness and chills afterwards but just take two more Advils and go to bed and sleep off the effects.
I'm totally HAPPY with the Avonex Pen. Just hate that it took Biogen-Idec 15 years to get it on the market!!! GRRRRR!
I agree with everyone's posts back to you. It's time for you to find another neurologist........the sooner, the better........and one that will get you on a MS medication ASAP. What's he waiting for??? Your current neuro sounds INCOMPETENT to me!!!View Thread
Well, Dave, I just got blown away by Eva Cassity's voice and her music as I listened to her a few minutes ago. Such talent and such sorrow that she lost her life to melanoma. Thank you for sharing her with us.View Thread
Hi Kim ~ I started using Avonex back in 1997 when it was first FDA approved. Back then, my nurse had to MIX with the diluent then inject, then the prefilled syringes became available and made things somewhat easier. The Avonex pens are the GREATEST!!! Easy to load and inject, and NO needle pain whatsoever. The "effects" of Avonex are still there (after 16 years) but tolerable for a few hours. Now I can just inject before bedtime, take some Advil, and go to bed and hopefully, SLEEP thru the bad effects. I'm actually looking FORWARD to giving myself another injection next week!!! The Avonex pens are truly wonderful!!!View Thread
Today was a MONUMENTAL day! For the first time in 16 years, I was able to give my own Avonex injection......thanks to the wonderful Avonex pens that have been developed/released recently. I had a fantastic nurse who walked me thru the steps, took a deep breath, then pushed the pen's plunger, waited 10 seconds, and it was all with so quickly. I NEVER felt the needle!!! What a wonderful feeling NOT to have to depend on someone else to give me a weekly shot simply because I've always been too chicken to give my own.
Just wanted to share my good news with others who are contemplating using the Avonex pen. I can't say enough good things about its development.
Hope everyone is surviving this year's heatwave and staying cool. Enjoy the upcoming weekend!!!
I know IZ's music well as I got hooked on listening, once I heard his version of Somewhere Over the Rainbow years ago!!! After listening to one of his CDs four or five times, I began to sing along with him, even though I had NO IDEA what he was saying/singing. LOVE his ukelele and his soft voice. Sadly, he died a few years ago and took his style of music with him. I'll check out Eva Cassidy once I get a few free minutes.View Thread
I finally got back on this forum and saw your reply/questions for my post on the thread about where we live. Sorry it took me SIX MONTHS to reply. I'll try to pop in more often. I used to be a "regular" on this board and was known as "fire-and-rain" until the moderators or the "powers that be" changed up everything and confused me and I'm now posting as Farside_Fan.
It's always nice to meet another TEXAN!!! Thanks for your reply from a while back.
Sorry it's taken me a while to respond back to your questions. I used to post on this forum on a regular basis (daily!) then life and WORK took over and I slacked off. Sorry!
Henderson's near Longview and Kilgore and Tyler (if that helps your internal GPS system any.) Last time I was in Houston, I went to the NHRA drag races there but it sure was a long trip there and back (for the finals on Sunday) then have to get up and go to work on Monday morning. Bummer! LOVE the smell of NITRO and loud burnouts!!!
Yep, Avonex has always been my drug of choice. It hammered me for a long time with its weird side effects (massive chills and aches for a few hours) but it's only ONCE a week injecting. YAY! I only had one MAJOR exacerbation when I began my journey with MS in 1997 and have been in a "remission" state for 14 years now. I consider myself one of the "lucky" people with this disease (knock on wood!!!)
Life is good for now. I'm gonna have to go out and do a rain dance pretty soon if it doesn't rain in the next few days and cool things down a bit here in East Texas. HOT! HOT! HOT!
Take care and stay cool in this brutal Texas heat!!!
Helloooooo from East Texas!!! Long time, no post. Sorry!
Does anyone take Amantadine for fatigue issues? I'd like to know the pros and cons of the drug since I just started taking it yesterday. (100mg. twice daily) Does is work for FATIGUE?
After 14 years, I'm experiencing some MS issues that I've never had before, although I used to follow everyone's conversations from time to time. I know Amantadine has been mentioned at times but I didn't need to know any info about the drug.......until now.
This new "fatigue" thing is kicking my BUTT. Each leg feels like it weighs a hundred pounds and I find myself sitting down more and more often. My passion is working in the yard!!!
Also to go along with my fatigue is the never-ending dizziness, and it's been this way for four or five weeks now. Very annoying!
My neuro wanted me to take Amantadine for 2 weeeks to see if it would help. He didn't want to prescribe Provigil because my insurance company (BCBS) would have frowned on the cost of it (or something like that).
Can anyone shed some light for me about Amantadine or whatever you take for fatigue problems? Yes, I get plenty of sleep but I'm just worn out at work by mid-morning and I'm tired of being tired!!!
Thanks in advance for any answers, suggestions, etc. It's hot, muggy, and dry here in East Texas right now. I'm going to go outside and do a rain dance now..........and expect a MIRACLE!!!
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