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This goes on for 2yrs, 5 Drs. June '10 more MRI'S, 6 possibly 8 lesions, rt frontal lobe, Diag RRMS. No change in my MRI over the last 2 yrs. Findings are always demylenation ,MS.
The last MRI in Aug, 10 lesions, rt frontal lobe. No change from previous MRI'S, demylenation but not classic of MS WTF???
I asked my Dr what the heck does that mean. She said it's just how it's read, still have MS. I'm convinced the only people that know anything about this disease are those of us who have it.
I was also told even though my cervical & thorasic spine show no lesions they could still be there. Oh well, whatcha gonna do.
Hugs,
TammyView Thread

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Another questions can it come & go? It may last several hours, clear up & then come back. Any help would be appreciated:-)
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TammyView Thread

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TammyView Thread

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TammyView Thread

Make sure you tell them if there is any burning or itching with the IV. They had to slow mine down, started itching & turning red.
It does not hurt & it really did make a difference. For me it was really expensive, $750 per day, I have insurance but it still was quite a big out of pocket expense. I couldn't afford to do it through an IV the 2nd time so I did what's called smoothie medral. You mix the Solumedral with any type of fluids, smoothie, shake or whatever. I was the worst thing I ever tasted in my life & my taste was not right for weeks.
Now I just do the taper oral steroid, works good, cheap & really no side effects except it is still hard to sleep, Valium!!
Are you going to be doing this soon? Please let me know how it goes.
Hugs,
TammyView Thread
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