Who are you? Do you have MS? Are you an MS Specialist? Heat can cause worsening of symptoms for those of us who have MS. I have to wear a cooling vest if the temps start getting into the mid 70's.View Thread
In '05 I was tested for MS, had an mri of the brain but it was normal. The Dr I was seeing at the time was great & he said to keep track of my symptoms. I didn't really have any major symptoms untill '08. Unfortunately the Dr I was seeing passed away.
My family Dr ordered another mri, this one had 3 lesions but my cervical & thorasic spine were clean. He sent me to an MS specialist who ran all the tests, his answer was lets wait & see. We will do another mri in a year.
I started reading & learning as much I could about MS, the sooner you start treatment the better. I didn't want to wait & see so I went to another specialist, over 2 years I saw 4 differnt Dr's. Some wouldn't even listen, some made me feel like I was crazy. Finally last June I saw a Dr who actually listened, spent 3hrs with me on my 1st visit.
She said just from the last mri & my worsening symptoms I had RRMS & ordered more mri's. The new one's showed 2 new ones on my brain & 1 on my thorasic spine. You didn't say if you have been to an MS specialist or not. If you haven't that's where you need to start. I wish you luck & please keep us informed. This site helped me a lot, it was very helpfull. Hugs, TammyView Thread
1st don't let the spinal tap wig you out, you have enough on your mind. I had 2 & never had any problems. Make sure you get up & start drinking lots of water, I also drank coffee. Drink untill it's coming out your ears. Next, make sure you have water handy after the tap because you may have a headache when you first sit up. Mine went away in a few minutes after drinking the water. Last but not least, rest the rest of the day. By the way, mine was negative but my lesions & symptoms gave me my diag last June. It took less then a week to get my results.
I too had radical sleep jerks, not the normal falling asleep kind. I had the numbness, tingling, weird sensations & suddenly having trouble doing a job I had done for over 10 years. My husband always finds the good out of everything though. I will sometimes kiss him goodbye 2-3 times before I leave for work since my short term memory sucks:). Good luck Monday & don't forget the water!!!! Let us know how it goes. Hugs, TammyView Thread
I was dx a year ago with RRMS. I have had 3 relapses since Feb and have recently added Cellcept along with my Copaxone. For those of you who have SPMS, how did they determine this? My dr mentioned spms & wants another MRI.
In one year I went from 3 lesions on my brain to 5. I also got 1 on my thorasic spine that wasn't there before. I'm very intersted to hear from those of you who have gone from RRMS to SPMS. Hugs, TammyView Thread
What a bummer, but I understand. I have been on Copaxone since June of last year & I have had 3 relapses since January. I did not want to switch to an interferon drug either.
My Dr has left me on Copaxone & added Cellcept. I have another friend who is on the same dddrugs & says it's working great. I will try anything before changint to an interferon. The only side effect I've had is a headache & my Dr gave me something to take care of that. Best of luck & let me know what you decide to do. Hugs, TammyView Thread