This is a tough decission, I also live in a small town. My job puts me in contact with just about everyone. I decided to be open with my employer of 12yrs why I was missing so much work. Also, if one of my customers asked why I was waking funny or what kind of vest I was wearing(cooling) I told them and why.
Now I don't think it was the best idea. The office manager came to me with some phone numbers they got from there lawyer regarding who to contact if I needed any help with disability, Right, they just wanted to know what rights they have.
They also took me out of a position I loved & was very good at, even with MS. I work with a guy who makes more mistakes then everyone else put together, has had complaints from everyone including the customers but no one cares.
I confronted the office manager telling him I wanted my old job back but he said we noticed I made a few mistakes, forgot 1 minor thing & suddenly I'm not capable. If I made these mistakes and not had MS it would be no big deal.I also deal with she doesn't look sick "look". The only thing that's letting MS interfere with my life is everyone else.
You don't have to justify anything to anyone. I do however have a few friends with MS that I get together with & we all get to gripe about our week. It doesn't sound like it but I will always choose to be open about my MS hoping the more people who know the more educated people will become about this disease. I wish you luck and do what makes you feel comfortable. Hugs, TammyView Thread
Before I was dx with MS I had severe endometriosis. I lost 1 ovary at 23 & said I would probably never have kids. I was blessed with a son at 29. After that the pain got so bad at 30 I had a complete hysterectomy, they took it all.
I was kept very drugged for 3 days & shortly there after I started taking estrogen. I really had no problems with ppremenopausal symptoms. I am now down to .5mg to keep the hot flashes away beacuse that does bother my MS.
It was the best thing I ever did & your sister just needs to decide what's best for her. Please keep in touch & let me know what she decides. Hugs, TammyView Thread
Yes, I had mono twice, chicken pox 3x's. The Dr's said this was possible because it was always very localized, face then stomach, then legs. They said till I have a full blown case it could still reoccur. I've always been weird:)
I use to always get strp throat, like every couple of months untill my mom(worry wart) let them take them out. Hugs, TammyView Thread
They figured my 1st attack was when I was 17. I hand no more episodes unitll I was 33, except for the fact I could no longer run without tripping. I started having attacks about 1-2 times and at 44 I was dx.
You said you had several childhood illnesses, did you ever have Mono? Hugs TammyView Thread
Don't give up, you will find the right Dr. It took me 5 different dr's before I got my dx. Believe it or not my family Dr knew it was MS before any of the specialist did. I had all the tests & don't let them tell you a negative spinal tap means you don't have MS because that's not true.
If you live in Ca I have a wonderfull Dr I can recommend. I really wish you the best & hang in there. Hugs, TammyView Thread
If one more person tells me vitamins/diet cures MS I'm going to scream. One lady was telling me her son, after going through a detox & following a specific diet, his MS was gone. Maybe they missed the part about MS going into remission.
I have a friend who sees a Dr who treats it as allergies & with his treatments it's gone. How I wish it was this simple, imagine a cure for under $50. TammyView Thread
Thanks for all your advice, very much appreciated. I'm so confused, my Dr tells me all about Avonex but then keeps me on Copaxone & added Cellcept. I'm also going to be starting Pamelor & a round of steroids.
I'm beginning to think all these different drugs are making me feel worse. This is my 3rd relapse since January, guess it is the MS:) Hope you all have a great 4th. Hugs TammyView Thread
Sorry about your diag, but this is a good place to come. I was dx a year ago & I decided on Copaxone. MS does not burn out, good thing your going to a different dr.
I chose Coaxone because it has the least side effects, but it is a daily shot. The only issue I have with it is I usually get a fairly large welt that may last a day or 2. The other drugs can have flu like symptoms that last can last 24-36hrs. I have a friend who is on Rebif and she takes it at night with 2 tylenol & does just fine. Good luck & keep us posted. Hugs TammyView Thread
Hi Rory, thanks for writting. It will be nice to only have to do 1 shot a week insted of 7. I'm waiting to see how much it will cost me after insurance & if there are any assistance programs avail. I don't pay anything for my Copaxone.
I use an autoject now but I know you can't use it with the Avonex How is it giving yourself the shot & does it hurt? Copaxone stings & tends to leave a big red welt that last a few days. Thanks again TammyView Thread
Hope everyone is handling the heat:( I have a few questions for those taking Avonex. The Dr wants to switch me from Copaxone to Avonex & I'm worried about the flu like symptoms from it. My question is do you finally adjust to it or do you always feel like crap for a few days after? Also do they offer an assistance program like the do with Copaxone? Hugs TammyView Thread